Husband went to his neurologist appointment today - Neauropathy

arndog64
arndog64 Member Posts: 537
in Head and Neck Cancer #1
I guess I need to research this a little more. Doc said he has Neuropathy in his feet and legs. He will have an all day test on 2.13.2012 and she is sheduling a Cat Scan. I will talk with him a little more tonight when I get off of work.

Comments

  • Puggle
    Puggle Member Posts: 88 Member
    #2
    Welcome to the neuropathy club
    When my husband had his appointment with the neurologist he reviewed his history and did an examination to determine the extent of the neuropathy but didn't think further testing was needed. From his history he was certain that the chemo was the cause. We were told that chemo induced neuropathy can start months after the chemo has ended. My husband had started to see slow improvements. His legs and arms are no longer numb and the tops of his hands and feet have seemed to improve. We're hoping he will continue to see improvement.

    Our neurologist offered some different options for pain management but he really isn't experiencing any pain from this. It's just really frustrating not being able to pick up small items and also have some difficulty walking.

    I would guess that maybe your husband is getting additional tests due to the balance issue and also falling down. Please let me know what tests your doctor will be performing. My husband never had any issues falling down but since this started he has almost constantly worn a pair of tennis shoes, even in the house, so he had traction on the floors. We have also left small lights on at night to avoid tripping over anything in the dark. Please let me know what you find out from the tests.
  • robinleigh
    robinleigh Member Posts: 297
    #3
    Neurontin
    This med seems to help a lot with neuropathy. Andy takes it and has minimal trouble from this chemo induced neuropathy. Good luck!
  • Pam M
    Pam M Member Posts: 2,196
    #4
    At Least You Know
    sorry he has neuropathy - but what a relief it's not "the other thing". I suffered from neuropathy during/after chemo - not bad, but irritating. It has gotten MUCH better. Dunno if it's still improving or not. Now, my hands aren't affected at all. My feet still feel "off", but I have no pain or mobility issues. Hope he "grows out of it".
  • Hondo
    Hondo Member Posts: 6,636 Member
    #5
    Nerve Pain

    Nerve pain sucks but you can learn to live with it, my pain is all on the left side of my face and all due to radiation treatment twice to that area. I get tremendous nerve pain anytime I do something that will cause me to stress. It can be managed so don’t give up just another part of our new normal.

    Wishing you both the best
    Tim Hondo
  • arndog64
    arndog64 Member Posts: 537
    #6
    Puggle said:

    Welcome to the neuropathy club
    When my husband had his appointment with the neurologist he reviewed his history and did an examination to determine the extent of the neuropathy but didn't think further testing was needed. From his history he was certain that the chemo was the cause. We were told that chemo induced neuropathy can start months after the chemo has ended. My husband had started to see slow improvements. His legs and arms are no longer numb and the tops of his hands and feet have seemed to improve. We're hoping he will continue to see improvement.

    Our neurologist offered some different options for pain management but he really isn't experiencing any pain from this. It's just really frustrating not being able to pick up small items and also have some difficulty walking.

    I would guess that maybe your husband is getting additional tests due to the balance issue and also falling down. Please let me know what tests your doctor will be performing. My husband never had any issues falling down but since this started he has almost constantly worn a pair of tennis shoes, even in the house, so he had traction on the floors. We have also left small lights on at night to avoid tripping over anything in the dark. Please let me know what you find out from the tests.

    He has a MRI on the 7th and
    He has a MRI on the 7th and an EEG on the 13th. She wrote on his paper work Ataxia and memory loss. I will let you all know as the story unfolds.
  • Jimbo55
    Jimbo55 Member Posts: 590 Member
    #7
    Found the Problem
    At least you know what you're dealing with now. Sure hope they have a remedy and its something relatively simple, painless and successful. You guys need some relief from this whole ordeal. Stay strong. Cheers.

    Jimbo
  • Daddisgrl
    Daddisgrl Member Posts: 116
    #8
    robinleigh said:

    Neurontin
    This med seems to help a lot with neuropathy. Andy takes it and has minimal trouble from this chemo induced neuropathy. Good luck!

    Not sure about neurontin
    Not sure about neurontin with memory issues. I was on it for back pain & had to stop taking it because I could not remember anything. I'd rather have nerve pain then to be on it.
  • hdwchisholm
    hdwchisholm Member Posts: 20
    #9
    accupuncture
    I would suggest trying accupuncture. I had 2 doses of cisplatin in June 2011 and 6 1/2 weeks of radiation for my throat cancer. Neuropathy set in sometime in October. Hands would get very cold. Calves and Feet would get numb and tingly. Bottoms of feet would get sore. It felt like I had blisters though I actually did not have blisters. The false blisters would move from toes to instep and the size would vary. The discomfort would range from annoyance to not wanting to walk.
    I have been trying accupuncture weekly and am now doing it biweekly since late November or early December. This seems to be working. My hands still get cold but much less frequently. The feet are feeling much better. Hope this helps. Homer

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