Thyrogen shortage???
My Dr. didn't want to wait any longer, so I had my 1 year ultra sounds yesterday. They found a small mass in the thyroid bed. Having had 4th stage hurthle cell carcinoma, this is very concerning.
Now I need to drop to 1/3 of my synthroid level pills and go hypo in order to have an accurate cancer screening. I'm pissed! Has anyone else had issues getting thyrogen shots? Is there a work around to get the shots? I am the sole supporter of my family, and have a high demand job. I won't be able to function well for 2-3 weeks without the appropriate thyroid replacement hormones.
Any insight would be welcomed.
Comments
-
I had thyrogen
Heard it was not available, but two months ago I just called about 20 pharmacies and found one which had it in stock; just one kit. Drove there immediately. No side effects from two thyrogen injections. No side effects from I131. The anticipation was the worst, and in retrospect, it was a breeze.0 -
Hi - I am sorry I don't know
Hi - I am sorry I don't know where you live. However, I had my Thyrogen treatment at North Shore Long Island Jewish Hospital, Manhasset, NY. I was told I would be put on a waitlist and it could take months. However, I was very lucky and got a call and I had my treatment in October, 2011. I was told that I could have the body scan procedure if I had stopped taking my Synthroid. I opted to wait. If you don't want to wait, I would talk to your doctor about your options. I wish you nothing but the best. - Diane0 -
thyrogen shortage
After 2 weeks, my TSH levels were not high enough so I was taken completely off Synthroid on Jan 2. A week and a half ago, TSH was up to 110. I go for I-131 on Monday Feb 6 and the body scan on the 8th. I'm definitely hypo... tired and cold. Can't wait to get back on Synthroid.0 -
Looking for thyrogenMarinMark said:I had thyrogen
Heard it was not available, but two months ago I just called about 20 pharmacies and found one which had it in stock; just one kit. Drove there immediately. No side effects from two thyrogen injections. No side effects from I131. The anticipation was the worst, and in retrospect, it was a breeze.
Hi MarinMark, could I ask you what pharmacies did you call because I called CVS and they never heard of it. Also, the hospital pharmacy didnt know either. The NP at my doctors office in Trumbull, CT that is spossed to take care of it is just not doing her job and she will not let me help with this at all. I am 3 months over do. If you can help in any way, please let me know. Thanks Deb
Ps. Also, If anyone else has an answer for me, let me know. Thank you0 -
Thyrogen has just becomeLizP said:thyrogen shortage
After 2 weeks, my TSH levels were not high enough so I was taken completely off Synthroid on Jan 2. A week and a half ago, TSH was up to 110. I go for I-131 on Monday Feb 6 and the body scan on the 8th. I'm definitely hypo... tired and cold. Can't wait to get back on Synthroid.
Thyrogen has just become available on the UK National Health Service. I was booked in for RAI on 2 April, but had to go in the previous two days for Thyrogen injections. I had been off medication and on the iodine free diet for the previous month as well!0
Discussion Boards
- All Discussion Boards
- 6 CSN Information
- 6 Welcome to CSN
- 121.8K Cancer specific
- 2.8K Anal Cancer
- 446 Bladder Cancer
- 309 Bone Cancers
- 1.6K Brain Cancer
- 28.5K Breast Cancer
- 396 Childhood Cancers
- 27.9K Colorectal Cancer
- 4.6K Esophageal Cancer
- 1.2K Gynecological Cancers (other than ovarian and uterine)
- 13K Head and Neck Cancer
- 6.3K Kidney Cancer
- 671 Leukemia
- 792 Liver Cancer
- 4.1K Lung Cancer
- 5.1K Lymphoma (Hodgkin and Non-Hodgkin)
- 237 Multiple Myeloma
- 7.1K Ovarian Cancer
- 61 Pancreatic Cancer
- 487 Peritoneal Cancer
- 5.5K Prostate Cancer
- 1.2K Rare and Other Cancers
- 538 Sarcoma
- 730 Skin Cancer
- 653 Stomach Cancer
- 191 Testicular Cancer
- 1.5K Thyroid Cancer
- 5.8K Uterine/Endometrial Cancer
- 6.3K Lifestyle Discussion Boards