Having my first chemo drip now!
By the way, I had my pre-chemo party last night and it was the best idea ever! My circle of friends made me laugh until I cried. We ate, and drank and had a fabulous time. For any pink ladies out there who are about to being chemo, I recommend it! It took my mind off of my worries.
Thanks a bunch!!!!
Jobi
Comments
-
DURING Chemo?!
Jobi, you are amazing. I cannot believe you are posting DURING your very first chemo. I was too terrified to even think about doing that. What a trooper! I never was nauseous during chemo. That, unfortunately came afterward. During chemo I was mostly just sleepy. IV Benadryl works wonders. You are so lucky to have your brother with you. What a wonderful brother to be there for this.
Did you feel the Pink Sisters there with you last night?
IRENE0 -
Jobi .. amazing how we can communicateRE said:Hugs!
Lifting you in prayer right now! Remember lots of fluids and rest whenever you want to rest and eat whatever you can handle whenever you can handle it. This is doable and you have us to help carry you through! Glad you have your brother with you!
RE
from anywhere in the world, providing of course, there is Wifi.
Please remember to nipple on saltine crackers, or tolerable finger foods.
I always brought a pair of socks with me -- a comfort thing. After a few
hours - all I wanted to rest or twilight sleep.
So happy that you have your brother with you, he can keep an eye on should
you fall asleep -- or need anything from the cafe'.
Do you see you PA or Onco after your infusion? If so, that would be the time
to ask your questions -- or if you have questions, please make sure your Onco
RN arranges face time with Oncology Staff.
You are in good Company -- Please make sure to describe all symptoms to Staff.
*Neulasta shot tomorrow?, If so, please confirm appointment time before leaving
today.
Gentle hugs,
Strength, Courage and Hope.
Vicki Sam0 -
Pink Sisters!jessiesmom1 said:DURING Chemo?!
Jobi, you are amazing. I cannot believe you are posting DURING your very first chemo. I was too terrified to even think about doing that. What a trooper! I never was nauseous during chemo. That, unfortunately came afterward. During chemo I was mostly just sleepy. IV Benadryl works wonders. You are so lucky to have your brother with you. What a wonderful brother to be there for this.
Did you feel the Pink Sisters there with you last night?
IRENE
I felt the love from my Pink Sisters last night! I carry your support with me at all times!
Thanks for the advice about the Benadryl. I will add it to my list!
Dorene0 -
Good adviceVickiSam said:Jobi .. amazing how we can communicate
from anywhere in the world, providing of course, there is Wifi.
Please remember to nipple on saltine crackers, or tolerable finger foods.
I always brought a pair of socks with me -- a comfort thing. After a few
hours - all I wanted to rest or twilight sleep.
So happy that you have your brother with you, he can keep an eye on should
you fall asleep -- or need anything from the cafe'.
Do you see you PA or Onco after your infusion? If so, that would be the time
to ask your questions -- or if you have questions, please make sure your Onco
RN arranges face time with Oncology Staff.
You are in good Company -- Please make sure to describe all symptoms to Staff.
*Neulasta shot tomorrow?, If so, please confirm appointment time before leaving
today.
Gentle hugs,
Strength, Courage and Hope.
Vicki Sam
The office has a very weak WiFi signal, so I had to give soon after my initial post! But you ladies were with me in spirit! I felt the Pink Power.
The staff checked on me constantly, which was nice. She did think that my headache that I developed after receiving AC was odd. She thinks it is mostly a sinus related side effect. What I am feeling now is most comparable to Acid Reflux feelings. Not unbearable - just annoying or uncomfortable.
I confirmed my appt for tomorrow! Thanks for the reminder!
Dorene0 -
You have an amazing attitudeJobi said:Pink Sisters!
I felt the love from my Pink Sisters last night! I carry your support with me at all times!
Thanks for the advice about the Benadryl. I will add it to my list!
Dorene
You have an amazing attitude Dorene! Big hugs to you!
Leeza0 -
I didn't have IV Benadryljessiesmom1 said:DURING Chemo?!
Jobi, you are amazing. I cannot believe you are posting DURING your very first chemo. I was too terrified to even think about doing that. What a trooper! I never was nauseous during chemo. That, unfortunately came afterward. During chemo I was mostly just sleepy. IV Benadryl works wonders. You are so lucky to have your brother with you. What a wonderful brother to be there for this.
Did you feel the Pink Sisters there with you last night?
IRENE
I didn't have IV Benadryl with A/C - had it orally. The oral version does not make me the least bit drowsey. I'm very allergic to bee/wasp stings so have had to use it often and I really can not see any difference in how I feel after taking it. The IV Benadryl I had with Taxol was a different story. As soon as it started, I went 'nighty-night' and woke up just as abruptly about 1/2 hr before done. So I had a nice comfy bed to sleep in.
Susan0 -
We will always be with youJobi said:Good advice
The office has a very weak WiFi signal, so I had to give soon after my initial post! But you ladies were with me in spirit! I felt the Pink Power.
The staff checked on me constantly, which was nice. She did think that my headache that I developed after receiving AC was odd. She thinks it is mostly a sinus related side effect. What I am feeling now is most comparable to Acid Reflux feelings. Not unbearable - just annoying or uncomfortable.
I confirmed my appt for tomorrow! Thanks for the reminder!
Dorene
We will always be with you in spirit Dorene!
Hugs, Lex0 -
Rough WeekAngie2U said:How are you doing now
How are you doing now Jobi?
Hugs, Angie
Hi, Angie,
The Saturday following chemo was really rough. I couldn't get out of bed. By Monday, I still was tired but went to work. I didn't listen to my body. I ended up taking two more days off of work and had to go to the docs for a sinus infection. I am just starting to feel better now.
I couldn't have made it this far without the ladies on this site. Everyone here gave me information that the docs and nurses neglected to give me that day - which is frustrating. Here's hoping that the Feb 9th session is much better!
Dorene0 -
Dorene wishing you the bestJobi said:Rough Week
Hi, Angie,
The Saturday following chemo was really rough. I couldn't get out of bed. By Monday, I still was tired but went to work. I didn't listen to my body. I ended up taking two more days off of work and had to go to the docs for a sinus infection. I am just starting to feel better now.
I couldn't have made it this far without the ladies on this site. Everyone here gave me information that the docs and nurses neglected to give me that day - which is frustrating. Here's hoping that the Feb 9th session is much better!
Dorene
Dorene wishing you the best with your next infusion. You'll be even more prepared for the next visit. Be easy on yourself and do what your body wants it to do.0 -
Lots and lots of liquid!natly15 said:Dorene wishing you the best
Dorene wishing you the best with your next infusion. You'll be even more prepared for the next visit. Be easy on yourself and do what your body wants it to do.
And really cold stuff, like ice chips, ice pops, or fruit chillers. Thye really help to prevent mouth sores. Your dentist can also give you a special gel to use twice a day that helps neutalize the acid in your mouth to prevent sores and "chemo cavities". I always packed a bag with my prayer shawl, a small pillow, hard candy, snacks, water, juice, (even though the center provided snacks and dcrinks) my MP3, puzzle book, and Kindle. I was prepared for anything! Make your self as comfy as possible. Do you have a power port? That was also a blessing.0 -
Great you had fun at Pre
Great you had fun at Pre chemo Party...I have not advice...I had radiation ONLY..
thinking of you..
Denise0 -
updatejnl said:How are you doing Dorene?
How are you doing Dorene?
Leeza
Hi, Leeza,
Thanks for checking in. Having a hard time, some days. My last drip was on Thursday. Although I have been able to eat small meals rather than large ones, I have a constant full stomach. Is that typical? They slowed the drip this time and lessened the meds which eliminated the bad headaches,but the nausea and tiredness are still around. I have a weird metalic taste in my mouth that is driving me crazy!
I took the day off today, and I am glad that I did. Going to take another nap.
Thanks for checking in!
Dorene0 -
Metallic taste is notJobi said:update
Hi, Leeza,
Thanks for checking in. Having a hard time, some days. My last drip was on Thursday. Although I have been able to eat small meals rather than large ones, I have a constant full stomach. Is that typical? They slowed the drip this time and lessened the meds which eliminated the bad headaches,but the nausea and tiredness are still around. I have a weird metalic taste in my mouth that is driving me crazy!
I took the day off today, and I am glad that I did. Going to take another nap.
Thanks for checking in!
Dorene
Metallic taste is not unusual - use plastic 'Silverware' - at least that's what I've heard - didn't have it myself. Never 'felt full' either - just was never hungry or thought about eating. Hubby called me several times a day to remind me I had to eat something. (He knows what happens when not eating - Mom was aneorxic and the last 4 years of her lifeb we were married so he's very familiar with what not eating does to not only the person bu5t the entire family.)
Susan0 -
UpdateJobi said:update
Hi, Leeza,
Thanks for checking in. Having a hard time, some days. My last drip was on Thursday. Although I have been able to eat small meals rather than large ones, I have a constant full stomach. Is that typical? They slowed the drip this time and lessened the meds which eliminated the bad headaches,but the nausea and tiredness are still around. I have a weird metalic taste in my mouth that is driving me crazy!
I took the day off today, and I am glad that I did. Going to take another nap.
Thanks for checking in!
Dorene
Hi Dorene,
I did 5 of my 6 infusions but side effects got to rough. A PET scan came back clean though so all those side effects you're having will someday be worth it. I'm doing the rads right now and am finding it much better just because I feel proactive by doing something everyday fighting the beast.
The fatigue is probably going to stay with you if you have it early on. I loved finishing the 2nd week post chemo for a "normal" week. That you're still working is commendable and I'm proud of you for pushing on. But if fatigue gets to be too much I hope you'll give in to it. Not a sign of weakness just that our body needs restoration. You're fortunate to be able to sleep too. I wasn't sleepy, just unable to move. Time went by way too slow, so sleep as much as you want and can.
I had a pre-chemo party too. I think the family felt quite relieved to see that I was going into it with a cheerful attitude. I think it helped with some of their anxiety too.
Hang in there, sounds like your health care team is right there working with you.
Lynne0 -
Hi Dorene! Thanks forJobi said:update
Hi, Leeza,
Thanks for checking in. Having a hard time, some days. My last drip was on Thursday. Although I have been able to eat small meals rather than large ones, I have a constant full stomach. Is that typical? They slowed the drip this time and lessened the meds which eliminated the bad headaches,but the nausea and tiredness are still around. I have a weird metalic taste in my mouth that is driving me crazy!
I took the day off today, and I am glad that I did. Going to take another nap.
Thanks for checking in!
Dorene
Hi Dorene! Thanks for posting! Eat as many small meals as you can and still drink lots of water..all that you possibly can.
Are you using plastic silverware? That helps eliminate somewhat the metallic taste from regular metal silverware.
Hoping your nap helped and that you feel better today!
Hugs, Leeza0
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