Will start third round of chemo

Ro10
Ro10 Member Posts: 1,561 Member
in Uterine/Endometrial Cancer #1
Went to the doctor today and he recommends that I start chemo again. My CA 125 is 2700, the highest it has ever been. My CAT scan showed 5 enlarged lymph nodes, three in the neck area and 2 in the abdomen. So I will start chemo February 9th. It will be Taxol and Cisplatin every three weeks. Since both drugs need to be given slowly for me, it will be two day treatment again. This infusion center is open longer than the one in Illinois, so I was hoping it could be done in one day. The doctor said admitting me to the hospital was another option to give the drugs one after the other, but I don't really want that.

It is an hour each way to the cancer center, so I wish it could be done in one day. But I would have to go for lab and see the doctor another day anyway, so this won't be much different.

My CAT scan also showed "chronic pulmonary emboli" which has never been mentioned before. So next week I will have further testing to see if I really do have clots in the lung or if it was a false reading. If it is positive, I will need to go on blood thinners.

The nurse practioner told me that it is very common for patients with cancer to have blood clots in their lungs. I knew clotting problems could occur, but did not know clots in the lung were common. I have not had any symptoms, so I am hoping it is a false reading. I think Diane talked about needing treatment for blood clots in the lung.

My chemo anti-nausea meds will include Emend and Decadron because of the cisplatin. The nurse said this combination reduces nausea greatly. I also have Zofran for a back-up if needed. I am waiting for approval for the Emend from the Medicare D Insurance. I know it is an expensive drug from what others have said. I got it IV as pre-chemo drugs before.

So I have a plan in place. Hope the chemo shrinks to lymph nodes one more time. In peace and caring.
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Comments

  • kkstef
    kkstef Member Posts: 688 Member
    #2
    Thinking of you, Ro
    Ro, I am so sorry to hear that you will jumping back into the chemo world, but you have had such good responses before and I am hoping you get wonderful results this time too. You have a plan!

    I was surprised to hear about "chronic" pulmonary emboli....I always thought that was an acute event, with lots of chest pain, trouble breathing, etc. Will be interested to hear what further testing reveals.

    I am always amazed at your calm approach to the ups and downs of your journey...you are a very special lady, that is for sure!

    Wishing you the best!

    Karen
  • TiggersDoBounce
    TiggersDoBounce Member Posts: 408
    #3
    Ro
    Raising you up with good thoughts and prayers....hoping you breeze through this upcoming round...

    Please keep us updated...we are here to keep you company!

    Laurie
  • paris11
    paris11 Member Posts: 159
    #4
    Ro, You are an inspiration
    Hi Ro,

    Thank you for your message. Your love and faith radiates and gives us peace.

    You have an arduous challenge ahead. Our prayers go with you.

    "Suffering brings patience
    Patience brings experience
    Experience brings hope
    And hope will not fail us."
    Romans 5: 1-5

    Connie
  • txtrisha55
    txtrisha55 Member Posts: 693 Member
    #5
    So Sorry!
    Ro, I am so sorry to hear your news. I am glad you have a plan in place. I will pray that the chemo shrinks everything down. You demonstrate such peace and strength in dealing with this cancer journey. I am glad that you had a good trip and stored up the memories. While getting the chemo you can close your eyes and meditate on the blue of the ocean, smells of the breezes and the calm of the water. I will keep you in my prayers.
    trish
  • HellieC
    HellieC Member Posts: 524 Member
    #6
    Third time lucky, Ro?
    I am so hoping that this third round of chemo will really knock everything back into NED for you, Ro. You have been so accepting of everything that has been thrown at you. The two day chemo regime will be so tiring,I do so hope you get through it OK.
    Thinking of you
    Helen
  • LizGrrr
    LizGrrr Member Posts: 127 Member
    #7
    Hugs
    Wishing you super results in this latest squabble with cancer!

    Keep up your spirits and know that we are sending good thoughts your way.

    Liz in Dallas
  • Double Whammy
    Double Whammy Member Posts: 2,832 Member
    #8
    LizGrrr said:

    Hugs
    Wishing you super results in this latest squabble with cancer!

    Keep up your spirits and know that we are sending good thoughts your way.

    Liz in Dallas

    Doggone it
    I know you were expecting this, Ro, but it still sucks. Best of luck to you as you begin your third round. Sending hugs and prayers. Please let us know how everything is going for you and numbers dropping.

    Suzanne
  • daisy366
    daisy366 Member Posts: 1,458 Member
    #9
    Double Whammy said:

    Doggone it
    I know you were expecting this, Ro, but it still sucks. Best of luck to you as you begin your third round. Sending hugs and prayers. Please let us know how everything is going for you and numbers dropping.

    Suzanne

    Ro
    Glad you have a plan and too bad that hair will go again!!!

    You continue to be an inspiration to me. Hugs to you, friend.

    Mary Ann
  • minniejan
    minniejan Member Posts: 88
    #10
    Hello,
    I too will keep you
    Hello,

    I too will keep you in my thoughts as you battle forward. As others have posted, you are indeed an inspiration.

    MinnieJan
  • Kaleena
    Kaleena Member Posts: 2,088 Member
    #11
    (((((Ro)))))
    Sending you
    (((((Ro)))))

    Sending you comforting thoughts.

    Kathy
  • RoseyR
    RoseyR Member Posts: 471 Member
    #12
    You're a Hearty Lady, Ro1

    Ro,

    Am so sorry to hear you'll need more chemo, but on the bright side, have seen fair number of studies showing how effective cisplatin can be for recurrences.

    We'll all be supporting you as you emerge successfully through another phase of this treatment.

    Stay in touch and let us know how it's going.

    Hugs,
    Rosey
  • snowbird_11
    snowbird_11 Member Posts: 160
    #13
    You are a tough warrior, Ro!
    You are a tough warrior, Ro! I'm sorry you must head back into chemo so soon but understand the need to want to knock things back before they can cause any harm. I'm waiting to schedule my PET/CT to see how things are doing although at least my ca 125 has stayed somewhat stable since last check in early Oct. I have about the same array of nodes that you do in upper abdomen and supraclavicular area. My gyn-onc does not want to treat again unless I become symptomatic from issues but of course I assume every ache or pain or odd symptom is related to cancer. He did not even want me to do ca 125 test or scans but I insisted, as I don't want to bury my head in the sand. But we must just venture on with whatever comes our way. It will be my 4-year anniversary of my very eventful debulking surgery this weekend.

    I'll be sending positive thoughts your way for uneventful infusions for you and much success as a result!
    Annie
  • CindyGSD
    CindyGSD Member Posts: 190
    #14
    Bummer....
    So sorry you have to go through this again, but from reading your posts, I know you knew it was coming. Its especially disappointing that you have to drive an hour for two days straight, but what can you do. That is what thing the doctor's don't understand...how inconvenient cancer is, nor do they try to remedy it.

    I hope everything goes well and you don't get too sick.

    Take care,
    Cindy
  • jazzy1
    jazzy1 Member Posts: 1,379
    #15
    CindyGSD said:

    Bummer....
    So sorry you have to go through this again, but from reading your posts, I know you knew it was coming. Its especially disappointing that you have to drive an hour for two days straight, but what can you do. That is what thing the doctor's don't understand...how inconvenient cancer is, nor do they try to remedy it.

    I hope everything goes well and you don't get too sick.

    Take care,
    Cindy

    Ro~
    I know you're a tough warrior, as this is just another stumbler on your road with the disease. Sending you positive vibes you're strong to endure this and keep a "big smile" on your face.

    Cancer isn't for sissies...show us you can do it!!!

    Hugs always,
    Jan
  • carolenk
    carolenk Member Posts: 907 Member
    #16
    jazzy1 said:

    Ro~
    I know you're a tough warrior, as this is just another stumbler on your road with the disease. Sending you positive vibes you're strong to endure this and keep a "big smile" on your face.

    Cancer isn't for sissies...show us you can do it!!!

    Hugs always,
    Jan

    Neuropathy prevention
    So, Ro, what game plan do you have in place for preventing neuropathy? Best wishes on your next chemo adventure.
  • Ro10
    Ro10 Member Posts: 1,561 Member
    #17
    carolenk said:

    Neuropathy prevention
    So, Ro, what game plan do you have in place for preventing neuropathy? Best wishes on your next chemo adventure.

    Thank you everyone
    I so much appreciate all of your thoughts,prayers and encouraging words. Your support makes this journey so much easier. I have been so lucky that I have not had any problems with neuropathy. I have read what others have taken for their neuropathy, so if I have problems I will consider these. I have such a sensitive stomach, I am cautious about what I take.

    If anyone has suggestions for the metallic taste, I would love to try them. I so dread that part of the chemo.

    Thanks again for being there for me. In peace and caring.
  • cheerful
    cheerful Member Posts: 261 Member
    #18
    Hi Ro:
    I am so sorry to
    Hi Ro:

    I am so sorry to hear that you have to have more chemo. I will keep you in my thoughts and prayers. I wish you all the best.

    As for the metallic taste, try root beer barrels or even peppermints.

    Cheerful
  • Rewriter
    Rewriter Member Posts: 493 Member
    #19
    cheerful said:

    Hi Ro:
    I am so sorry to
    Hi Ro:

    I am so sorry to hear that you have to have more chemo. I will keep you in my thoughts and prayers. I wish you all the best.

    As for the metallic taste, try root beer barrels or even peppermints.

    Cheerful

    Ro
    I just want to add my support and caring to that offered to you by so many of the other women on this board. You will be in my thoughts throughout your upcoming round of chemo. As someone else suggested, perhaps this round will be the charm.

    All my best,

    Jill
  • Sara Zipora
    Sara Zipora Member Posts: 231
    #20
    Thinking and praying for you
    I've bee lurking and not participating, but I couldn't not write and wish you a new begining and end to the bad buggers with your third round of Chemo. You are so positive and supportive of all.
    All the best
    Sara
  • TiggersDoBounce
    TiggersDoBounce Member Posts: 408
    #21
    Ro
    Letting you know you will be in my thoughts today as you begin this round of chemo...

    Hang in and keep us posted on how you are doing!

    ((HUGS))

    Laurie

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