Hi everyone, just wanted to let you know I'm leaving the group

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Comments

  • Robkel7
    Robkel7 Member Posts: 68
    #22
    Don't give up....
    I agree with all the posts here. It's hard to log in here sometimes because it's scary to read about recurrences and sometimes, we lose a friend. I also follow the posts and respond on Inspire which does not make you log on each time...seems like a small thing, but when I am tired, it seems big. I am sorry if I am guilty of not responding to posts, but sometimes I don't know what to say! I do think of all of you and pray that a cure will be found for this stupid disease. I hope you will reconsider and know you are loved and cared for.

    Hugs,
    Robin
  • carolenk
    carolenk Member Posts: 907 Member
    #23
    jepsj5 said:

    AntCat
    You know AntCat, I am involved with quite a few groups/forums/FB etc. I dont regularly respond to this group but I do read alot. Its nice for me to be able to get info and read updates from all of you. My mom(LPack) is on this board as well. Not so much anymore b.c she has been quite sick. I try to check in for her and give her updates about all of you when i can. So please dont go...you are an inspiration to many. Thanks for being you and stay strong! Fight this wicked disease! You can do it!

    I hope Antcat stays on board
    I hope Antcat stays on board & finds a better chemo, too. I have spoken to yet another oncologist who advised me that the idea of surgery is only for very localized tumors. He was a med-onc and not a fan of more than one de-bulking surgeries. In fact, his opinion was that the cancer goes into a growth frenzy after surgery from the inflammation that naturally occurs with healng.

    This med-onc also said that MOST gyn-oncs just want to do surgery & so have their nurses take over ordering chemo & the docs just sign off on it. I already figured out that this was going on with my situation. Gyn-oncs are the experts at de-bulking surgeries. After that you are probably better off with a med-onc.

    Antcat, maybe you can find a research center for another opinion. I am really blown away by all the different opinions I have gotten so far. I would say more of the docs were against Avastin rather than for it. The most recent med-onc felt the risk of lethal effects from Avastin far outweighed any possible benefit.

    He felt that ovarian cancer usually found a way to get around Avastin eventually and that Avastin is always given with chemo so you really don't know WHAT put you into remission. He also said when Avastin is given alone, there is no proven benefit.

    I was afraid Libby was not well, please give her our encouragement & support. Stay strong.
  • da1955
    da1955 Member Posts: 30
    #24
    Wish they would upgrade the forums
    Hi-I have only been here since August of 2011. I don' know you very well, but have read your posts. I am sorry I have never responded, but sometimes I also don't know what to say. I do wish this set up could be more like Facebook where I could "like" a post to show my support, but not necessarily write something. I get much out of reading the posts and will try to make more of an effort to respond. Please stay...your posts could be making a big difference to someone...even if you don't know them. Deb
  • da1955
    da1955 Member Posts: 30
    #25
    Wish they would upgrade the forums
    Hi-I have only been here since August of 2011. I don' know you very well, but have read your posts. I am sorry I have never responded, but sometimes I also don't know what to say. I do wish this set up could be more like Facebook where I could "like" a post to show my support, but not necessarily write something. I get much out of reading the posts and will try to make more of an effort to respond. Please stay...your posts could be making a big difference to someone...even if you don't know them. Deb
  • Radioactive34
    Radioactive34 Member Posts: 391 Member
    #26
    Please stay...recently I
    Please stay...recently I find myself being a grouchy person most days so I do not respond...I try not to spread the negativity...but I read. I read everything people write. I pray for you and the other ladies here.

    Some people do not respond to me either but that is ok. Some situations are just not everyones cup of tea or strike to close.
  • antcat
    antcat Member Posts: 270
    #27
    carolenk said:

    I hope Antcat stays on board
    I hope Antcat stays on board & finds a better chemo, too. I have spoken to yet another oncologist who advised me that the idea of surgery is only for very localized tumors. He was a med-onc and not a fan of more than one de-bulking surgeries. In fact, his opinion was that the cancer goes into a growth frenzy after surgery from the inflammation that naturally occurs with healng.

    This med-onc also said that MOST gyn-oncs just want to do surgery & so have their nurses take over ordering chemo & the docs just sign off on it. I already figured out that this was going on with my situation. Gyn-oncs are the experts at de-bulking surgeries. After that you are probably better off with a med-onc.

    Antcat, maybe you can find a research center for another opinion. I am really blown away by all the different opinions I have gotten so far. I would say more of the docs were against Avastin rather than for it. The most recent med-onc felt the risk of lethal effects from Avastin far outweighed any possible benefit.

    He felt that ovarian cancer usually found a way to get around Avastin eventually and that Avastin is always given with chemo so you really don't know WHAT put you into remission. He also said when Avastin is given alone, there is no proven benefit.

    I was afraid Libby was not well, please give her our encouragement & support. Stay strong.

    Dear Carolenk
    Thanks for the info. I'm going to see my primary care doc today & call my med onc. As far as the Avastin, I couldn't agree with you more. I was so sorry I ever went on Avastin last year. I had originally read somewhere, don't remember where exactly, that when a person goes off of Avastin, if the tumors haven't shrunk, they grown back full force & I think that's what happened to me. The current onc. mentioned Avastin & I told him "no way". In fact there was recently a small article in the paper that Avastin did not give the results for ovarian cancer that was hoped. So, that's where I'm at for now. I'm not exactly sure what I'm going to do as far as continuing treatment or what. Chemo just takes a real toll on a person's body and sometimes a person feels (like I'm feeling), no more. But, I'll see, right now I'm feeling sorry for myself & will be seeing the gyn/onc this week, but I don't think he's going to want to do surgery, but we'll see.
  • vj1
    vj1 Member Posts: 150
    #28
    Stay
    AntCat: I agree with everyone's posts. I have not kept up on my replys. Had to go back on chemo in May, went well, and am back with NED and enjoying our winter in the Fla keys. I should have been responding more, but I do read all the posts for the most part. There are times the "beast" renders the "funk". Stay on the board and pop in whenever you can. Be assured that even though you don't receive responses, you are read.

    Verna

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