Anybody got nuropathy

Gabe N Abby Mom said:

Yep. Me too, fingers and
Yep. Me too, fingers and toes. I haven't found a solution, but I agree that movement generally seems to help.

Hugs,

Linda

Yes...
Yes, I have neuropathyIn both breasts...mine was caused from rads...nerve damage,.due to my recurrence.....in my lymph nodes..an area that was radiated the first time was overlapped for the first 10 rad treatments this time....my RO warned me it could happen...and it did! At times it was almost unbearable....felt like someone poured gasoline on me and set me on fire! It was present, always, to one degree or another...was finally put on Gabapentin...it has changed my life!

Vicki, what is the dosage of your's ? Mine are 300 mg...I take one in the morning and two at bedtime...it also comes in a higher mg...I sometimes have some break through pain and I take another one...I could take 3 at a time if needed or they told me they would increase the dosage of each pill...as I said, it has changed my life...ask about increasing the dosage or taking more if you're on the 300 mg....I have a good friend who has severe neuropathy from contracting Guille- Barea (sp) syndrome 7 years ago...she takes 2700 mg a day...she has said the same thing...changed her life..
Maybe a higher dosage would help you...check with your physician....hope this helps.

Hugs, Nancy

linpsu said:

Neuropathy
I developed this fun side effect during my chemo treatments (4 A/Cm 4 Taxol) - can't remember exactly which treatment since I had so many other side effects that had my oncologist stumped. Anyway, I finished all of my treatments in late 2010, and still have the neuropathy. My oncologist told me that if it hadn't gone away in a year, then it probably wasn't going to go away. I did have it in hands and feet, but now it's just in my feet. I am on Vicodin for another pain-related issue, so the Vicodin works well for me. But I really wouldn't recommmend starting Vicodin for neuropathy. Several different doctors recommended gabapentin (Neurontin), but I had tried that before for my pain issue and it hadn't worked. All of my doctors have just told me to use the Vicodin if it works and not to add gabapentin too. But you might want to talk to your dr. about increasing your gabapentin. Good luck to you. Chemo - the gift that keeps on giving! ha-ha
Hugs,
Linda

I had neuropathy in my hands
I had neuropathy in my hands feet up to my knees, arms, face, and eyes. It resolved very quickly in the eyes, face and arms. but remains in my hands, feet/legs. It has lessened as it was difficult to walk, (staggered) as chen says like a drunken sailor. shoes , sheets, anything on my feet so painful. I can tolerate the sheets and my sneakers now. Work is tough. I also wrote so terribly I thought the bank should have questioned my checks. Slowly ot has all improved. I still have trouble putting on necklaces but dont have to ask people to open things anymore. I wear socks for neuropathy, can only wear certain shoes, but its all good. B6 is recomended, I didnt tolerate neurontin, lyrica is similar but also helpful.

linpsu said:

Neuropathy
I developed this fun side effect during my chemo treatments (4 A/Cm 4 Taxol) - can't remember exactly which treatment since I had so many other side effects that had my oncologist stumped. Anyway, I finished all of my treatments in late 2010, and still have the neuropathy. My oncologist told me that if it hadn't gone away in a year, then it probably wasn't going to go away. I did have it in hands and feet, but now it's just in my feet. I am on Vicodin for another pain-related issue, so the Vicodin works well for me. But I really wouldn't recommmend starting Vicodin for neuropathy. Several different doctors recommended gabapentin (Neurontin), but I had tried that before for my pain issue and it hadn't worked. All of my doctors have just told me to use the Vicodin if it works and not to add gabapentin too. But you might want to talk to your dr. about increasing your gabapentin. Good luck to you. Chemo - the gift that keeps on giving! ha-ha
Hugs,
Linda

Sweetvickid, I, too, have a
Sweetvickid, I, too, have a severe neuropathy since chemo. The bottom
of both feet, lower legs, fingers of both hands and a slight bit around my
mouth. My feet being so numb causes me to be off balance and I was
falling a lot, so I now use a cane. I had a mild idiopathic neuropathy
prior to chemo, but during Taxotere it became severe. Fortunately, my pain
is sporadic and doesn't last long; so unless it becomes prolonged i'm not
taking any medication; if it does last beyond what's tolerable I take a
Vicodin which does stop it. My neurologist says Gabapentin will not help
my balance. but if my pain ever becomes problematic he would prescribe the
Gabapentin. I have a SIL who takes high doses of Gabapentin for neuropathy
which is very painful in her legs, and she says she could not do without it.
Like Nancy indicated in her above post, it's life-changing for her.
I agree with Nancy's advice that a higher dose may help you; it would be
worth it to speak with your M.D. about. Anyway, I hope you can find an answer,
this mess can be so debilitating. Good luck. Love & hugs.

Teresa

Neuropathy
Vicki, I was diagnosed in January 2008, had a lumpectomy, 8 rounds of chemo, and finally 40 rounds of radiation. Neuropathy started developing after the second round of chemo, and eventually affected my fingers on both hands, and all ten toes. After completing chemo in August 2008, my fingers and left foot toes cleared up. Today I still have neuropathy in the four little toes on my right foot. My oncologist says I may have continuing problems with this area, mainly because more nerve damage occured on that foot. I am using massage and walking to help alleviate the pain, and it is working. Everyone is different, so keep moving those areas. Hopefully the nerves will revive themselves. Goood luck...and hugs coming your way. Judy

neuropathy
What is helping for me is massage and water aerobics. Water aerobics have helped the most.

DebbyB said:

neuropathy
What is helping for me is massage and water aerobics. Water aerobics have helped the most.

100 mg three times a day is
100 mg three times a day is a starting dose. so I would talk to my doctor about increasing the dose. I could not tolerate it as it made me severly depressed.
i just went to the neurologist, some of my sensation is improved yay! My balace is still offf and my concentration (not neuropathy related) it will be two years this January and some things are slowly getting better.