latest CEA results- not good

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  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    #42
    tanstaafl said:

    Lisa, I consider the cimetidine as a major factor in her original success wiping one set of mets before 1st surgery, and for stopping the spread of mets, even carrying the para aortic nodes for an extra year. Since cimetidine in essence directs some of the white blood cells to attack cancer cells, it is dependent on WBC levels.

    My wife has used 1-2 betaine hydrochloride+pepsin tablets (stomach acid) with meals, and a 1400 mg equivalent pancreatin for digestion before/after meals. MK4 is the active menaquinone-4 version of vitamin K2 and worked with 5FU (UFT) and vitamin C in our lab tests. Avemar is a somewhat similar molecule, a quinone, to coQ10 and vitamin K that may help kill cancer cells. I am sure we're much higher on the vitamin loads, I would not surprised if LEF type recommendations were quite higher/stronger than your UK formula.

    It is not easy to get consistent recommendations on the supplements. I feel the naturopaths tend to aim low on quantity vs maximum/therapeutic amounts. That's why I've been reading science and medical literature directly, preferably original data. A world of difference.
    Again, for what we have achieved on tumor kill with LEF supplements, it's still not enough to immunologically kill some mets; inhibition with slower growth and no spread then is our goal.

    Pete, MSM is methylsufonylmethane, a derivative of DMSO, that is considered a great source of sulfur, and perhaps other cancer related benefits.

    thanks tanstaffl
    Guess who is about to get iv c and artisiane 80 four mornings a week for 8 weeks free local private hospital.
    It's taken some string pulling, and chocolates and begging. But I will be 500 better off now insurance covers these cancer treatments. The word alternative does not come into it. The 300 pages of vit c research helped.

    Success lies in the search and execution.

    Hugs,
    Pete
  • taraHK
    taraHK Member Posts: 1,952 Member
    #43
    sending loving thoughts
    Sending loving thoughts your way. I think you are wise to consider various optons (possible clinical trials, your current natural approach, and other).

    I certainly understand your concern (and your docs) about going on FOLFOX again. For what it's worth, when I've been on FOLFOX (or any of those slow, oxy infusions), I've done so as an in-patient. That's partly because of the culture here HK) and my dear but conservative oncologist. But I have had allergic reactions to the oxy. I get pretty heavy doses of premeds (I guess -- don't know what other get, really) and then they can keep a good eye on me. Yes, its a drag being in the hospital. But, it's OK. (Just saying -- not trying to push you that way).

    I am concerned about your current levels of discomfort -- wish there were some way of getting all that under control, even before contemplating next approach to treatment/management.

    Love,
    Tara
  • tootsie1
    tootsie1 Member Posts: 5,044 Member
    #44
    Praying for you
    Lisa,

    I've already expressed my sadness on facebook, so I will just say that I am praying this is your time for a great miracle. It saddens me to see the picture of your lovely face, knowing that you're facing such dire possibilities.

    *hugs*
    Gail
  • karen40
    karen40 Member Posts: 211 Member
    #45
    Lisa
    I pray the best plan finds you and you get a better answer regarding that lump.
    Karen
  • usakat
    usakat Member Posts: 610 Member
    #46
    Warm and Loving Hugs, Lisa
    Lisa, dearest, keeping you in my most ardent thoughts and prayers. And sending you endless hugs and strength of spirit. Blessings and love to you.....Katie

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