desmoplastic round cell tumor

mb6475
mb6475 Member Posts: 1
in Sarcoma #1
Does any one have this particular type of cancer.

Comments

  • leahc
    leahc Member Posts: 8
    #2
    My boyfriend does
    My boyfriend was diagnosed with Desmoplastic Small Round Cell Tumors in January of 2011. He just finished 7 rounds of chemo and is due to start radiation next week.
  • emalee
    emalee Member Posts: 1
    #3
    Indeed, my sister in law was
    Indeed, my sister in law was diagnosed in June.. She has completed 2 out of 7 rounds of chemo.. She will be getting surgery after her third round to remove the rest of the tumor on her back and most likely radiation after she finishes her chemo. The chemo has actually shrunk the tumor on her back, tremendously. Which is very encouraging. Her doctor said, her chances of getting rid of the cancer is more than 50/50.
  • Kalimac
    Kalimac Member Posts: 2
    #4
    Support Groups
    There are two support groups offered online for desmoplastic small round cell tumor. Desmoplastic small round cell tumor is considered a childhood cancer but it can happen to any age group. Because Desmoplastic small round cell tumor is more often found in the pediatric population it is most often treated by pediatric oncologists. Adult oncologists appear to know very little about this rare type of cancer. Desmoplastic small round cell tumor should always be treated by a sarcoma specialist preferably someone who has experience with the disease.

    Our group consists of Desmoplastic small round cell tumor patients, caregivers, relatives, friends, and parents. We offer support and share information.

    You can google Desmoplastic small round cell tumor Yahoo Group. We are also available on Facebook as Desmoplastic small round cell tumor Support Group. All are welcome.

    Patty R
  • mblack95
    mblack95 Member Posts: 1
    edited May 2017 #5
    Seeking information

    im curious to know if anyone whom has this rare cancer would be up for talking. I think i might have it but i dont want to alarm my family yet and i would love to talk to someone about this.. I kind of feel alone and im afraid the doctors might have wrongfully diagonsed me.

Discussion Boards