Emotional time of year to begin with

2

Comments

  • rae_rae
    rae_rae Member Posts: 300 Member

    January surgery too
    Thank you for starting this thread Flatlander (and GaryM for your encouragement!) Sm4Pack - good luck with your surgery on Jan 9th. I just recently joined the club too and have a 3cm mass on lower right kidney and scheduled for open partial nephrectomy just after you on January 12th. I was offered the procedure mid-December but the surgeon suggested I enjoy the holidays and shcedule it for early January and I am very thankful I did. My son is 3 now and this was his most exciting Christmas yet - couldn't imagine missing that. I will be thinking of you and your kids on January 9th and hoping all goes well for both of us!

    Welcome lawmanmike,
    Though

    Welcome lawmanmike,

    Though we are sorry for the reason you are joining our group, you will find a lot of support, encouragement, information and humor at this site.

    Rae
  • rae_rae
    rae_rae Member Posts: 300 Member

    Location of incision
    I've not seen pictures of wounds on this site before, which makes it all the more interesting. I'm guessing that just as no two cases of RCC are the same, so incisions will vary greatly from patient to patient. Can other contributors say whether their incisions resemble flatlander's? Obviously lap. wounds are pretty different from this, but do they occur in similar places on the body or do they vary widely from patient to patient? I've got both (due to a switch from lap. to open, during my op.) and the 3 little lap. incisions are a long way apart - one close beside my navel, one just at the top of my hip bone and the third about midway between the two but a few inches lower down. My open incision looks very much like flatlander's but perhaps a little further round to the front and a little less far round my back, but more horizontal. What really strikes me is that his lesion was mid-lobe and mine at the bottom of the kidney but my incision looks to be higher on my torso than his does. I suppose the fact is we all have slightly different internal layouts and part of the skill of the surgeon is to find the best route to navigate to where (S)he needs to go. (This reminds me - I should have included the fair sex in my comment above about the character of firefighters - my apologies for that oversight.)

    flatlander, love4life had it right when she said:

    "it will give the people around you the chance to show you how much they care and appreciate you." Well they sure took the chance you gave them and you must be a pretty special guy that your brothers and sisters turned out for you in the way they did.

    TW
    My incision is in front,

    TW
    My incision is in front, running up my left side up under my sternum sort of like a hook. Maybe I will post a picture later. My tumor was on the top wedged between spleen and pancreas which made it difficult to remove (hence the nicked spleen and pancreas), and I assume the incision location is different than most.
    Rae
  • flatlander
    flatlander Member Posts: 46
    rae_rae said:

    Welcome lawmanmike,
    Though

    Welcome lawmanmike,

    Though we are sorry for the reason you are joining our group, you will find a lot of support, encouragement, information and humor at this site.

    Rae

    Back in ER waiting 45
    Back in ER waiting 45 ;minutes after surgeon said come back in.
  • flatlander
    flatlander Member Posts: 46
    rae_rae said:

    Welcome lawmanmike,
    Though

    Welcome lawmanmike,

    Though we are sorry for the reason you are joining our group, you will find a lot of support, encouragement, information and humor at this site.

    Rae

    Back in ER waiting 45
    Back in ER waiting 45 ;minutes after surgeon said come back in.
  • Texas_wedge
    Texas_wedge Member Posts: 2,798

    Back in ER waiting 45
    Back in ER waiting 45 ;minutes after surgeon said come back in.

    Back in ER
    Do let us know the outcome as soon as you have a spare moment.

    You've got a great team to help you (although I was a bit concerned about how you came to be released as you were - it sounds as though a mistake was made and I imagine some investigation is going on about that).

    You got off your pain meds very fast. You're a very physical, strong guy and if you want to stay that way please don't push yourself in the next few weeks of recovery - it's still very early. You can do no better than read and heed the expert advice foxhd (and garym) give us all on this subject.
  • lawmanmike
    lawmanmike Member Posts: 29
    rae_rae said:

    Welcome lawmanmike,
    Though

    Welcome lawmanmike,

    Though we are sorry for the reason you are joining our group, you will find a lot of support, encouragement, information and humor at this site.

    Rae

    Thanks Rae!
    It is definitely helpful and encouraging to hear from people who have gone through the same thing!
  • lawmanmike
    lawmanmike Member Posts: 29
    Thanks Texas_wedge! I'm not entirely sure why the side entry instead of abdomen but the surgeon did clearly say we want to avoid going through the abdomen. There are several reasons he recommended an open procedure vs. laparoscopic... I think opinions do differ on this from what I've read, but the open procedure is still the "Gold" standard for a partial nephrectomy. My doctor said some docs might try a laparoscopic approach but there are greater risks associated with it such as bleeding from the kidney. With an open procedure he said they can put the kidney on ice during the procedure which is beneficial (though I don't really know why) and will allow him the best access to look at the kidney and make sure he gets all of the mass out with good margins and will allow him to visually inspect the area around the mass. The location of my tumor apparently is good (lower part of kidney) so they can cut a pie-shape chunk of the kidney, remove the entire mass and close it up without coming near the adrenal gland. We did discuss all the option available to me and he did say this is the best procedure for me and I trust him so that is what I will do. It will carry a longer recovery period but he thinks it is the best choice for me given my age (41) with fewer risks of complication. I hope it is the right decision!
  • Texas_wedge
    Texas_wedge Member Posts: 2,798

    Thanks Texas_wedge! I'm not entirely sure why the side entry instead of abdomen but the surgeon did clearly say we want to avoid going through the abdomen. There are several reasons he recommended an open procedure vs. laparoscopic... I think opinions do differ on this from what I've read, but the open procedure is still the "Gold" standard for a partial nephrectomy. My doctor said some docs might try a laparoscopic approach but there are greater risks associated with it such as bleeding from the kidney. With an open procedure he said they can put the kidney on ice during the procedure which is beneficial (though I don't really know why) and will allow him the best access to look at the kidney and make sure he gets all of the mass out with good margins and will allow him to visually inspect the area around the mass. The location of my tumor apparently is good (lower part of kidney) so they can cut a pie-shape chunk of the kidney, remove the entire mass and close it up without coming near the adrenal gland. We did discuss all the option available to me and he did say this is the best procedure for me and I trust him so that is what I will do. It will carry a longer recovery period but he thinks it is the best choice for me given my age (41) with fewer risks of complication. I hope it is the right decision!

    Lap. v open
    Brother law man Mike, I'm sure you've made the right decision. You've been given a cogent and persuasive explanation of why it's to be open (and it's probably a matter of ease of access and minimal tissue damage that indicates the side access - if you find out I'd be glad to know). Beyond that, you've decided to trust your man and that's crucial in giving you the positive attitude that so greatly helps in every way. I was not wanting to call into question the advice you had received, but was just being academically curious.

    My primary objective was to further buttress your positive attitude. In that cause, may i give you a cheering comparison?

    Like you, my lesion was low on the right kidney. My consultant is one of the world's top laparoscopic surgeons and he had hoped to carry out my op. laparoscopically but knew it would be tricky. I was confident that I was in the best of hands and also had the backup of being in the hospital that pioneered lap. surgery in the UK and is leading the way in robotic surgery in the whole of Europe. So that was as good as could be hoped for and my Wife and I acknowledged that there might be a need to switch to open surgery if the practicability of completing laparoscopically proved to be insuperably difficult. In the event, they had to switch, with copious bleeding, and the op. took around four hours longer than had been anticipated, involving a fourth incision about ten inches long.

    On 5th Dec. I had a radical nephrectomy, you're having partial. My adrenal gland was left untouched, as were all my lymph nodes but you are going to have those benefits plus having both kidneys still in play. Your tumour is 3cm. so its cubic size is 3 x 3 x 3 = 27 cc. Mine was 8 x 8 x 8 = 512 cc i.e. 19 times the size of yours. You're 41, I'm 69. I had the benefit of being very fit and strong and healthy (apart from the little RCC problem) and maybe you're not a physical wreck. Thus, overall, compared with me you've got everything going for you!

    So how's it going for me? I'm just after 4 weeks post-op and feeling fine. I'm off all medications, eating well, look much as I did, except for the scars (fading fast and giving no trouble) and a slight residual swelling. I'm walking a fair amount and busting to get back to my golf, rowing and weightlifting and hope eventually to get back into shape to run the London Marathon again. I'm giving a lot of (free) help to a friend with complex easement, wayleave and prescription issues in a squabble with the adjacent landowner (his Brother), helping another golfing buddy and his Wife and their neighbours in a long-running planning permission battle. I'm trying to finish a comprehensive legal analysis of a seminal golf damages case (in Scotland) decided in November but am having to spend many hours each day on issues with my Mother-in-law and a cousin of my Wife's, both of whom are much more seriously ill and close to death than most of us here.

    Garym has good grounds for encouraging you to believe that you can be up and running (metaphorically!) in less than three months. I reckon my cognitive functioning was back to near normal by a couple of weeks post-op, at most. As long as you don't overdo it physically in the next few weeks, you should have no real work problems. (I must admit that's easy for me to say because I'm no longer practising law, being based at home and now in computer software.) Gary was also shrewd in observing that "court-room drama will never be as important as it used to be."

    I reckon you've got it made and you'll know that all here will be pulling for you too.
  • garym
    garym Member Posts: 1,647

    Lap. v open
    Brother law man Mike, I'm sure you've made the right decision. You've been given a cogent and persuasive explanation of why it's to be open (and it's probably a matter of ease of access and minimal tissue damage that indicates the side access - if you find out I'd be glad to know). Beyond that, you've decided to trust your man and that's crucial in giving you the positive attitude that so greatly helps in every way. I was not wanting to call into question the advice you had received, but was just being academically curious.

    My primary objective was to further buttress your positive attitude. In that cause, may i give you a cheering comparison?

    Like you, my lesion was low on the right kidney. My consultant is one of the world's top laparoscopic surgeons and he had hoped to carry out my op. laparoscopically but knew it would be tricky. I was confident that I was in the best of hands and also had the backup of being in the hospital that pioneered lap. surgery in the UK and is leading the way in robotic surgery in the whole of Europe. So that was as good as could be hoped for and my Wife and I acknowledged that there might be a need to switch to open surgery if the practicability of completing laparoscopically proved to be insuperably difficult. In the event, they had to switch, with copious bleeding, and the op. took around four hours longer than had been anticipated, involving a fourth incision about ten inches long.

    On 5th Dec. I had a radical nephrectomy, you're having partial. My adrenal gland was left untouched, as were all my lymph nodes but you are going to have those benefits plus having both kidneys still in play. Your tumour is 3cm. so its cubic size is 3 x 3 x 3 = 27 cc. Mine was 8 x 8 x 8 = 512 cc i.e. 19 times the size of yours. You're 41, I'm 69. I had the benefit of being very fit and strong and healthy (apart from the little RCC problem) and maybe you're not a physical wreck. Thus, overall, compared with me you've got everything going for you!

    So how's it going for me? I'm just after 4 weeks post-op and feeling fine. I'm off all medications, eating well, look much as I did, except for the scars (fading fast and giving no trouble) and a slight residual swelling. I'm walking a fair amount and busting to get back to my golf, rowing and weightlifting and hope eventually to get back into shape to run the London Marathon again. I'm giving a lot of (free) help to a friend with complex easement, wayleave and prescription issues in a squabble with the adjacent landowner (his Brother), helping another golfing buddy and his Wife and their neighbours in a long-running planning permission battle. I'm trying to finish a comprehensive legal analysis of a seminal golf damages case (in Scotland) decided in November but am having to spend many hours each day on issues with my Mother-in-law and a cousin of my Wife's, both of whom are much more seriously ill and close to death than most of us here.

    Garym has good grounds for encouraging you to believe that you can be up and running (metaphorically!) in less than three months. I reckon my cognitive functioning was back to near normal by a couple of weeks post-op, at most. As long as you don't overdo it physically in the next few weeks, you should have no real work problems. (I must admit that's easy for me to say because I'm no longer practising law, being based at home and now in computer software.) Gary was also shrewd in observing that "court-room drama will never be as important as it used to be."

    I reckon you've got it made and you'll know that all here will be pulling for you too.

    Cube vs. sphere...
    Just in case anyone is wondering, if you assume the above tumors to be spherical instead of cubic in shape, the calculation is a bit more difficult but the result is the same, roughly 19 times larger by volume. I found this to be interesting, having never thought about it this way before. Leave it barristers to fretter out the details.
  • Texas_wedge
    Texas_wedge Member Posts: 2,798
    garym said:

    Cube vs. sphere...
    Just in case anyone is wondering, if you assume the above tumors to be spherical instead of cubic in shape, the calculation is a bit more difficult but the result is the same, roughly 19 times larger by volume. I found this to be interesting, having never thought about it this way before. Leave it barristers to fretter out the details.

    Cube v sphere
    Gary - I must confess I should have expressed myself better - I should have acknowledged that for the sake of simplicity I had cancelled out pi/6. I was simplifying it down to the way of comparing the volumes of 2 spheres. The volumes I gave for the tumours were actually the volumes for cubes with sides of the dimension of the diameters of the tumours i was comparing. So the actual volumes are roughly half what I said - when you multiply them by pi/2 - about 14 and 268. As you rightly stated, the comparison was correct at roughly 19 times.
  • garym
    garym Member Posts: 1,647

    Cube v sphere
    Gary - I must confess I should have expressed myself better - I should have acknowledged that for the sake of simplicity I had cancelled out pi/6. I was simplifying it down to the way of comparing the volumes of 2 spheres. The volumes I gave for the tumours were actually the volumes for cubes with sides of the dimension of the diameters of the tumours i was comparing. So the actual volumes are roughly half what I said - when you multiply them by pi/2 - about 14 and 268. As you rightly stated, the comparison was correct at roughly 19 times.

    Cube vs. sphere...
    T,

    It was just the engineer in me that wondered if the relationship changed because the volumes were so different and I was a bit surprised that it did not. BTW, mine was 5.0 so yours was roughly 4 times larger, quite a change in perspective. Gary
  • Texas_wedge
    Texas_wedge Member Posts: 2,798
    garym said:

    Cube vs. sphere...
    T,

    It was just the engineer in me that wondered if the relationship changed because the volumes were so different and I was a bit surprised that it did not. BTW, mine was 5.0 so yours was roughly 4 times larger, quite a change in perspective. Gary

    Cube v sphere
    Gary - wasn't looking for a 'Mine's bigger than yours' competition but your arithmetic is, indded correct! ;-)
  • garym
    garym Member Posts: 1,647

    Cube v sphere
    Gary - wasn't looking for a 'Mine's bigger than yours' competition but your arithmetic is, indded correct! ;-)

    Man to man...
    In this case I'm happy to state that yours was bigger than mine, LOL
  • flatlander
    flatlander Member Posts: 46

    Thanks Rae!
    It is definitely helpful and encouraging to hear from people who have gone through the same thing!

    attempt at poem this morning
    The snow is coming down, the visiting nurse just left.
    After measuring the urine coming out of my chest.

    Soon we'll pick up the meat from the pigs we grew.
    Then drop the Bacon and ham with a smoke house crew.

    They lost their daughter a firefighter like me.
    As she died of her cancer I CANT complain about pee

    Now the world is on loan to me and my bag of pee
    So when the big C has got you down, look at the sky and try not to frown

    How life is decided we will never know
    Until its over enjoy the show.
  • Texas_wedge
    Texas_wedge Member Posts: 2,798

    attempt at poem this morning
    The snow is coming down, the visiting nurse just left.
    After measuring the urine coming out of my chest.

    Soon we'll pick up the meat from the pigs we grew.
    Then drop the Bacon and ham with a smoke house crew.

    They lost their daughter a firefighter like me.
    As she died of her cancer I CANT complain about pee

    Now the world is on loan to me and my bag of pee
    So when the big C has got you down, look at the sky and try not to frown

    How life is decided we will never know
    Until its over enjoy the show.

    Poem
    Keep 'em up, flatlander - the chin and the poetry. The last couple of lines make another great mantra, capturing the spirit of these threads.
  • lawmanmike
    lawmanmike Member Posts: 29

    attempt at poem this morning
    The snow is coming down, the visiting nurse just left.
    After measuring the urine coming out of my chest.

    Soon we'll pick up the meat from the pigs we grew.
    Then drop the Bacon and ham with a smoke house crew.

    They lost their daughter a firefighter like me.
    As she died of her cancer I CANT complain about pee

    Now the world is on loan to me and my bag of pee
    So when the big C has got you down, look at the sky and try not to frown

    How life is decided we will never know
    Until its over enjoy the show.

    Glad to see your spirits up!
    Glad to see your spirits up and you're doing better! Hang in there!
  • lawmanmike
    lawmanmike Member Posts: 29

    Lap. v open
    Brother law man Mike, I'm sure you've made the right decision. You've been given a cogent and persuasive explanation of why it's to be open (and it's probably a matter of ease of access and minimal tissue damage that indicates the side access - if you find out I'd be glad to know). Beyond that, you've decided to trust your man and that's crucial in giving you the positive attitude that so greatly helps in every way. I was not wanting to call into question the advice you had received, but was just being academically curious.

    My primary objective was to further buttress your positive attitude. In that cause, may i give you a cheering comparison?

    Like you, my lesion was low on the right kidney. My consultant is one of the world's top laparoscopic surgeons and he had hoped to carry out my op. laparoscopically but knew it would be tricky. I was confident that I was in the best of hands and also had the backup of being in the hospital that pioneered lap. surgery in the UK and is leading the way in robotic surgery in the whole of Europe. So that was as good as could be hoped for and my Wife and I acknowledged that there might be a need to switch to open surgery if the practicability of completing laparoscopically proved to be insuperably difficult. In the event, they had to switch, with copious bleeding, and the op. took around four hours longer than had been anticipated, involving a fourth incision about ten inches long.

    On 5th Dec. I had a radical nephrectomy, you're having partial. My adrenal gland was left untouched, as were all my lymph nodes but you are going to have those benefits plus having both kidneys still in play. Your tumour is 3cm. so its cubic size is 3 x 3 x 3 = 27 cc. Mine was 8 x 8 x 8 = 512 cc i.e. 19 times the size of yours. You're 41, I'm 69. I had the benefit of being very fit and strong and healthy (apart from the little RCC problem) and maybe you're not a physical wreck. Thus, overall, compared with me you've got everything going for you!

    So how's it going for me? I'm just after 4 weeks post-op and feeling fine. I'm off all medications, eating well, look much as I did, except for the scars (fading fast and giving no trouble) and a slight residual swelling. I'm walking a fair amount and busting to get back to my golf, rowing and weightlifting and hope eventually to get back into shape to run the London Marathon again. I'm giving a lot of (free) help to a friend with complex easement, wayleave and prescription issues in a squabble with the adjacent landowner (his Brother), helping another golfing buddy and his Wife and their neighbours in a long-running planning permission battle. I'm trying to finish a comprehensive legal analysis of a seminal golf damages case (in Scotland) decided in November but am having to spend many hours each day on issues with my Mother-in-law and a cousin of my Wife's, both of whom are much more seriously ill and close to death than most of us here.

    Garym has good grounds for encouraging you to believe that you can be up and running (metaphorically!) in less than three months. I reckon my cognitive functioning was back to near normal by a couple of weeks post-op, at most. As long as you don't overdo it physically in the next few weeks, you should have no real work problems. (I must admit that's easy for me to say because I'm no longer practising law, being based at home and now in computer software.) Gary was also shrewd in observing that "court-room drama will never be as important as it used to be."

    I reckon you've got it made and you'll know that all here will be pulling for you too.

    Thanks!
    Thanks Texas_Wedge - glad you are doing well too! By the end of the three-month recovery I will probably be looking forward to some court room drama!
  • barbjc
    barbjc Member Posts: 2

    Thanks for normalizing my
    Thanks for normalizing my emotional ups and downs. I had a visitor today from a brother I never met and learned my wifes car is an easy fix, likely just battery. I told wife I can handle it, she said no you can't! I guess it kind of hit me then that I could, but I'm too damn tired.to.fight her about it and go get a new one and put it in. I've been falling asleep and waking in puddles of swet, more than the.normal tired.father of three little ones.

    Anyways this summer we sold our house in the city at great expense and moved to the.hills on a lake to start a life of raising more.of.our.own food.etc. when we.arrived my back hurt. As a slightly.fat firefighter who lifts fatter people in and out of ambulances daily I figured it was a disc or muscle problem. My doctor.said.probably.a.disc let.me.know if.you.want MRI.etc. I said.I'd try a.couple.weeks of anti inflamitory pills OTC. So two months of that.and Lots of rum and cokes to sleep better and it still hurt. Then my wife spotted.a.lump on my belly. She says.call MD. I did and ultrasound.proved it.was.harmless.lipoma. however as MD.ordered.test of belly too, they spotted problem on left kidney. Allergic .to cat scan.dye a MRI showed it tobe 3.7cm tumor in middle lobe.

    First.guy said full nephrectomy on.Jan 12.... It was before.thanksgiving. next.guy last week said, partial and December 20 if I didn't.want.to.wait. he said.they.mostly.go.slow.and.could.probably wait. I said Yes.but.if.you r wrong and statistically.this.is.a.1% fast grower.I die.... We took the December.20 spot and.I hope to escape for.christmas eve.night.at.home.

    At the same time I.am doing this a brother from my same department has a belly cancer gone mets to the.lungs. so when I came across study from med journal saying sciatica linked to rcc find on occasion I get worried. Thankfully I also found many people who's back issued went away with kidney

    IL-2
    HI, Flatlander. My HUsbnd was told her had RCC back in july of 2010. he also hd his left kidney taken out, Hoever it alsomest to his lung,liver,and spleen. The day before thanksgiving 2010 the dr gave him only 6-12 to live,he was 42 yrs old.we had goneto an oconolgilsit near us and said there was nothing he could do. So we had gotten a referall for a dr. Sosman in Nashville, Tn he said he doesn't go by the toe tag like other DRs. He told my HUdsband about this BIO treatment that has been around now for at least 7 yrs called Interleukin-2 . you will go trhough different tests to see if your body can handle the treatment. you would be in hosp for 5 days and out for 9 days back in for 5 more, that cyle goes 3 times. each day you will get a "bag" of meds thru iv, you maybe get sick out of boh ends, loss of appiete and maybe a skin rash and you may peel like a sun burn. it is a long shot, but my husnbands cancer went away. although he now has a new groeth on his lyph node on his lung and will be getting a pet scan. but it is past the year that the other dr said and hsband is doing well evefn with this new growth. I wish you lcuk in future and will pray for you and your family.
  • flatlander
    flatlander Member Posts: 46

    Glad to see your spirits up!
    Glad to see your spirits up and you're doing better! Hang in there!

    MY Mom Says IM Special ;-)
    Went to visit MD couple days ago and he couldnt take my foley out yet. Been draining into two bags and a foley since Dec 20. I have "rare" complications. Yesterday the top Drain on my side stopped and the lower Drain slowed some. Curious if anyone else had trouble with Kidney healing post partial nephrectomy?
  • flatlander
    flatlander Member Posts: 46

    MY Mom Says IM Special ;-)
    Went to visit MD couple days ago and he couldnt take my foley out yet. Been draining into two bags and a foley since Dec 20. I have "rare" complications. Yesterday the top Drain on my side stopped and the lower Drain slowed some. Curious if anyone else had trouble with Kidney healing post partial nephrectomy?

    Back to ED last night
    Got a fever yesterday and called my MD. He said come to ED ASAP. They said I could stay overnight or go home with Cipro. 101 fever, malaise and kidney pain. Ultrasound, IV, labs and Cipro and Im back home today. I think fever broke about an hour ago.