ANYONE WITH UPSC NOT HAVE A RECURRENCE????

24

Comments

  • deanna14
    deanna14 Member Posts: 732
    #22
    daisy366 said:

    Jill
    Thanks for your encouragement and kind words. I'm glad that you returned here to check on us - I missed you!!

    I love your picture. You look like Jamie Lee Curtis in it - I love her!!

    Continued blessings to you. And continue all the good things you are doing to keep that worry at bay - it truly is a useless waste of time and good karma.

    I've got lentil soup on my agenda!! Mary Ann

    Sharing
    I was diagnosed with UPSC in Sept 2008, finished treatment in June 2009. I remain cancer free....
  • daisy366
    daisy366 Member Posts: 1,458 Member
    #23
    deanna14 said:

    Sharing
    I was diagnosed with UPSC in Sept 2008, finished treatment in June 2009. I remain cancer free....

    Hi Deanna,
    Nice to hear from you. I'm so happy for you!!!!! How are they monitoring you now?

    Whatever you are doing must be working for you. Did you return to FT work? any suggestions for us?

    Love to you, Mary Ann
  • Double Whammy
    Double Whammy Member Posts: 2,832 Member
    #24
    daisy366 said:

    Hi Deanna,
    Nice to hear from you. I'm so happy for you!!!!! How are they monitoring you now?

    Whatever you are doing must be working for you. Did you return to FT work? any suggestions for us?

    Love to you, Mary Ann

    I know 2 survivors who have had no recurrence
    I have a friend who was Stage 2 - FIVE years ago. She had chemo and abdominal and internal rads. NED. Dancing the night away with him.

    Another friend, Stage 1b (85% invasion, nodes negative). She's almost 2 years since dx and well over a year since end of treatment. Doing well.

    Suzanne
  • Becky444
    Becky444 Member Posts: 29 Member
    #25
    Double Whammy said:

    I know 2 survivors who have had no recurrence
    I have a friend who was Stage 2 - FIVE years ago. She had chemo and abdominal and internal rads. NED. Dancing the night away with him.

    Another friend, Stage 1b (85% invasion, nodes negative). She's almost 2 years since dx and well over a year since end of treatment. Doing well.

    Suzanne

    2 Years - No Recurrance so far!
    I was diagnosed 8/09 and finished treatment 1/18/10. On January 18 I will have been NED for 2 years! There isn't a day I am not grateful. I was diagnosed 3A but they tell me if I were diagnosed now I would be a stage 1. I had 6 rounds of carobo/taxol & 5 brachy therapies.

    I could not have done this without a great doctor who performed the debulking hysterectomy plus the chemo & radiation. I have some neuropathy in my feet but I can deal with that. The meditation, exercise and watching what I eat (most of the time) have helped. I feel more in control that way...if there is any control. I don't eat red meat but do eat lots of veggies. It is Christmas & have splured with the sweets but that will be done in a couple days.

    I thank you all for all the support you give to everyone who posts and those who don't post a lot like me. I wouldn't have made it this far without you!

    May the Lord bless you all!
  • deanna14
    deanna14 Member Posts: 732
    #26
    daisy366 said:

    Hi Deanna,
    Nice to hear from you. I'm so happy for you!!!!! How are they monitoring you now?

    Whatever you are doing must be working for you. Did you return to FT work? any suggestions for us?

    Love to you, Mary Ann

    Hi Mary Ann
    How are things going with you? I'm subbing at a local school, usually 2-3 days a month.
    I see the rad/onc every 6 months alternating with the gyn/onc every 6 months. So I am actually examined every 3 months. next scan in may... Making it 11 months from the last.
    I don't do anything special, in fact, I have gained a lot of weight from not being as active. Stress is less due to not working. I really do believe Linda was correct, it's a crap shoot.
    Love & Hugs
  • daisy366
    daisy366 Member Posts: 1,458 Member
    #27
    deanna14 said:

    Hi Mary Ann
    How are things going with you? I'm subbing at a local school, usually 2-3 days a month.
    I see the rad/onc every 6 months alternating with the gyn/onc every 6 months. So I am actually examined every 3 months. next scan in may... Making it 11 months from the last.
    I don't do anything special, in fact, I have gained a lot of weight from not being as active. Stress is less due to not working. I really do believe Linda was correct, it's a crap shoot.
    Love & Hugs

    Becky, Deanna, and Suzanne
    Suzanne, I think it is very good to know of people in long remission - maybe even cure!!! Let's keeping changing those nasty stats.

    Becky, I wish you continued health and happiness. I think you have nailed a great lifestyle for you - moderation, gratefulness, enjoying life!!

    Deanna, nice to chat with you here. I had recurrence after one year (in supraclavicular lymph nodes) and completed treatment over a year ago. All well since. Will have PET in Jan. I strive for exercise and good diet - but admit not so good right now. One thing that I believe has helped me - and you mentioned it - lower stress!! I retired from FT work when treated for recurrence. Now I work only a few hours a week. I still enjoy my choral group - we practice weekly and that is like an oasis of happiness for me. We have an awesome conductor and several spectacular concerts this season!!!

    May we all live long and prosper. Wishing all countless blessed Christmases and healthy new years!! Mary Ann
  • california_artist
    california_artist Member Posts: 816 Member
    #28
    daisy366 said:

    Becky, Deanna, and Suzanne
    Suzanne, I think it is very good to know of people in long remission - maybe even cure!!! Let's keeping changing those nasty stats.

    Becky, I wish you continued health and happiness. I think you have nailed a great lifestyle for you - moderation, gratefulness, enjoying life!!

    Deanna, nice to chat with you here. I had recurrence after one year (in supraclavicular lymph nodes) and completed treatment over a year ago. All well since. Will have PET in Jan. I strive for exercise and good diet - but admit not so good right now. One thing that I believe has helped me - and you mentioned it - lower stress!! I retired from FT work when treated for recurrence. Now I work only a few hours a week. I still enjoy my choral group - we practice weekly and that is like an oasis of happiness for me. We have an awesome conductor and several spectacular concerts this season!!!

    May we all live long and prosper. Wishing all countless blessed Christmases and healthy new years!! Mary Ann

    Diagnosed UPSC. Will be four years Feb 27 of 2012
    Only changed my diet and lifestyle. All medical interference refused. So far, seems to be going well.

    Cannot expect to not change any behaviors after having surgery to remove your cancerous tumor and not have your cancer return in my humble, yet highly researched opinion.

    The box is the medical standard treatment guidelines. Think outside the box.
  • fanniemay
    fanniemay Member Posts: 53
    #29
    california_artist said:

    Diagnosed UPSC. Will be four years Feb 27 of 2012
    Only changed my diet and lifestyle. All medical interference refused. So far, seems to be going well.

    Cannot expect to not change any behaviors after having surgery to remove your cancerous tumor and not have your cancer return in my humble, yet highly researched opinion.

    The box is the medical standard treatment guidelines. Think outside the box.

    Thank you all. You are all
    Thank you all. You are all giving me hope. Was diagnosed with 1A November 14th. Am scared to not take the treatment, even though I feel really good. Am scared of getting neuropathy. Have it a little on the heel of my left foot. Starting chemo carbo/taxil on Jan. 3rd. 4 all together(3 weeks apart) and then 3 internal radiation. Have been trying to stick to a healthy diet but fell off over Christmas(eating too many cookies). With the help of God and my awesome doctor, I know I will beat this thing. Blessings to everyone!
  • debrajo
    debrajo Member Posts: 1,095 Member
    #30
    So far so good for me at 17
    So far so good for me at 17 months. Will have a check-up Jan. 23. I really don;t think I can go through that again, mentaly.
  • imackie48
    imackie48 Member Posts: 96
    #31
    fanniemay said:

    Thank you all. You are all
    Thank you all. You are all giving me hope. Was diagnosed with 1A November 14th. Am scared to not take the treatment, even though I feel really good. Am scared of getting neuropathy. Have it a little on the heel of my left foot. Starting chemo carbo/taxil on Jan. 3rd. 4 all together(3 weeks apart) and then 3 internal radiation. Have been trying to stick to a healthy diet but fell off over Christmas(eating too many cookies). With the help of God and my awesome doctor, I know I will beat this thing. Blessings to everyone!

    Fanniemay
    I am the same situation as you dx Nov 8th, stage 1a, grade 3 UPSC, starting chemo jan 9th, I tell you I'm scared as heck. My tx plan adjuvant 4 months taxol? Did you get a port placement?
    Please keep me posted on how your doing. My problem is I have Neurtopenia already for 7 yrs. I know that's the first thing that drops the WBC.
    Tare care, Irene
  • Gracegoi
    Gracegoi Member Posts: 59
    #32
    debrajo said:

    So far so good for me at 17
    So far so good for me at 17 months. Will have a check-up Jan. 23. I really don;t think I can go through that again, mentaly.

    Still on the Wagon
    I had my 2.5 year celebration on Christmas, stage 1b UPSC old staging . Now would be Ia.

    I had no treatment other than debulking surgey. I radically changed my diet imediately and have been drinking medicinal tea daily .

    Grace
  • I Will Survive
    I Will Survive Member Posts: 27
    #33
    Gracegoi said:

    Still on the Wagon
    I had my 2.5 year celebration on Christmas, stage 1b UPSC old staging . Now would be Ia.

    I had no treatment other than debulking surgey. I radically changed my diet imediately and have been drinking medicinal tea daily .

    Grace

    HUH?
    California Artist wrote "Only changed my diet and lifestyle. All medical interference refused. So far, seems to be going well."

    Didn't you have a hysterectomy? I think that is the ultimate medical interference!

    Hannah
  • fanniemay
    fanniemay Member Posts: 53
    #34
    imackie48 said:

    Fanniemay
    I am the same situation as you dx Nov 8th, stage 1a, grade 3 UPSC, starting chemo jan 9th, I tell you I'm scared as heck. My tx plan adjuvant 4 months taxol? Did you get a port placement?
    Please keep me posted on how your doing. My problem is I have Neurtopenia already for 7 yrs. I know that's the first thing that drops the WBC.
    Tare care, Irene

    Hi Irene
    I was waiting for someone to call me about the port, but no one ever did, so I'm thinking I'm getting the iv. I am also scared as heck. I am 61 and no one in my family has ever had any type of cancer. You say you are having 4 months of taxol. I am having 4 treatments 3 weeks apart of taxol/carbo which is the routine procedure I guess. I also have diabetes and am 50 pounds overweight. Which are risk factors. I am trying to eat healthy and excercise. If I feel well enough I will post Tuesday how the chemo went...I heard that its cumulative so side effects get worse with each treatment. I already have insomnia and find it hard to sleep. I hear that also is worse after chemo. I am glad your dr. recommends the treatment. I always tell others to find a doctor who recommends some treatment even if you are stage 1A. My first chemo is 8 hours. I didn't realize they were going to that long. Think positive. When did you have your surgery?
    So happy that I have found someone else to talk to in my situation. Regards, Edith
  • fanniemay
    fanniemay Member Posts: 53
    #35
    Gracegoi said:

    Still on the Wagon
    I had my 2.5 year celebration on Christmas, stage 1b UPSC old staging . Now would be Ia.

    I had no treatment other than debulking surgey. I radically changed my diet imediately and have been drinking medicinal tea daily .

    Grace

    Hi Grace
    Congratulations on the 2.5 years cancer free. What is medicinal tea? Is that green tea?
    Please keep us posted. Thanks, Edith
  • daisy366
    daisy366 Member Posts: 1,458 Member
    #36
    fanniemay said:

    Hi Grace
    Congratulations on the 2.5 years cancer free. What is medicinal tea? Is that green tea?
    Please keep us posted. Thanks, Edith

    Edith
    You said, "I was waiting for someone to call me about the port, but no one ever did, so I'm thinking I'm getting the iv. I am also scared as heck."

    I sure understand the scared part - it probably will not be as bad as you imagined - that's how is worked out for me anyway.

    One thing I learned is NOT TO WAIT for people to call me!! Everyone is busy and things get forgotten. If I want something, I go after it. The port is a good thing (it will save your veins from chemo damage!!) and it can be inserted anytime. Please followup about this. (Sorry if I'm coming across too bold).

    Hugs, Mary Ann
  • imackie48
    imackie48 Member Posts: 96
    #37
    fanniemay said:

    Hi Irene
    I was waiting for someone to call me about the port, but no one ever did, so I'm thinking I'm getting the iv. I am also scared as heck. I am 61 and no one in my family has ever had any type of cancer. You say you are having 4 months of taxol. I am having 4 treatments 3 weeks apart of taxol/carbo which is the routine procedure I guess. I also have diabetes and am 50 pounds overweight. Which are risk factors. I am trying to eat healthy and excercise. If I feel well enough I will post Tuesday how the chemo went...I heard that its cumulative so side effects get worse with each treatment. I already have insomnia and find it hard to sleep. I hear that also is worse after chemo. I am glad your dr. recommends the treatment. I always tell others to find a doctor who recommends some treatment even if you are stage 1A. My first chemo is 8 hours. I didn't realize they were going to that long. Think positive. When did you have your surgery?
    So happy that I have found someone else to talk to in my situation. Regards, Edith

    Hi Edith
    Edith, so nice to hear your input on your up coming treatments. I had my TAH, robotic , Nov 8th, then I had the port Dec 15th, the port is still uncomfortable. My doctors said I didn't need to start chemo until after the holidays, I was so happy to hear that. On we'd I am going in for pre chemo teaching the dos and donts, I am going to go shopping for a wig too. I live in CT and don't know of anyone near that is in my situation so this board is so good to go to for support. My doc told me if I didn't have theUPSC cell I wouldn't need any further treatment. No one in my family has cancer either. I am trying to put some weight on, since I know I'll lose it during chemo. Please keep me posted on your progress. BTW,I'm 63 yrs, I have been drinking protein shakes everyday. Take care, Irene
  • daisy366
    daisy366 Member Posts: 1,458 Member
    #38
    daisy366 said:

    Edith
    You said, "I was waiting for someone to call me about the port, but no one ever did, so I'm thinking I'm getting the iv. I am also scared as heck."

    I sure understand the scared part - it probably will not be as bad as you imagined - that's how is worked out for me anyway.

    One thing I learned is NOT TO WAIT for people to call me!! Everyone is busy and things get forgotten. If I want something, I go after it. The port is a good thing (it will save your veins from chemo damage!!) and it can be inserted anytime. Please followup about this. (Sorry if I'm coming across too bold).

    Hugs, Mary Ann

    Irene
    FYI, many of us GAINED weight during chemo - we get lots of steroids. Just a thought as you try to gain weight before tx.

    My best to you. Mary Ann
  • imackie48
    imackie48 Member Posts: 96
    #39
    fanniemay said:

    Hi Irene
    I was waiting for someone to call me about the port, but no one ever did, so I'm thinking I'm getting the iv. I am also scared as heck. I am 61 and no one in my family has ever had any type of cancer. You say you are having 4 months of taxol. I am having 4 treatments 3 weeks apart of taxol/carbo which is the routine procedure I guess. I also have diabetes and am 50 pounds overweight. Which are risk factors. I am trying to eat healthy and excercise. If I feel well enough I will post Tuesday how the chemo went...I heard that its cumulative so side effects get worse with each treatment. I already have insomnia and find it hard to sleep. I hear that also is worse after chemo. I am glad your dr. recommends the treatment. I always tell others to find a doctor who recommends some treatment even if you are stage 1A. My first chemo is 8 hours. I didn't realize they were going to that long. Think positive. When did you have your surgery?
    So happy that I have found someone else to talk to in my situation. Regards, Edith

    Hi Edith
    Edith, so nice to hear your input on your up coming treatments. I had my TAH, robotic , Nov 8th, then I had the port Dec 15th, the port is still uncomfortable. My doctors said I didn't need to start chemo until after the holidays, I was so happy to hear that. On wed I am going in for pre chemo teaching the dos and donts, I am going to go shopping for a wig too. I live in CT and don't know of anyone near that is in my situation so this board is so good to go to for support. My doc told me if I didn't have theUPSC cell I wouldn't need any further treatment. No one in my family has cancer either. I am trying to put some weight on, since I know I'll lose it during chemo. Please keep me posted on your progress. BTW,I'm 63 yrs, I have been drinking protein shakes everyday. Take care, Irene
  • fanniemay
    fanniemay Member Posts: 53
    #40
    daisy366 said:

    Irene
    FYI, many of us GAINED weight during chemo - we get lots of steroids. Just a thought as you try to gain weight before tx.

    My best to you. Mary Ann

    The Port
    Irene,Thanks for the info on the port. I was hesitant to get it because someone I know, part of hers got lost in her body and they never found it. But I suppose that is not the norm. She was thin...I guess it holds better when you have more meat on your bones, which I have..LOL Hugs, Edith
  • daisy366
    daisy366 Member Posts: 1,458 Member
    #41
    fanniemay said:

    The Port
    Irene,Thanks for the info on the port. I was hesitant to get it because someone I know, part of hers got lost in her body and they never found it. But I suppose that is not the norm. She was thin...I guess it holds better when you have more meat on your bones, which I have..LOL Hugs, Edith

    vascular surgeon
    A vascular surgeon put my port in. I have only had raves from all nurses about my port.

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