Facebook

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  • adube
    adube Member Posts: 63
    #42
    Mazj said:

    Would love to be added
    Can't find my Facebook address- I think because I use my phone to access it. But I love the idea of the private group. If you can find me I am Marilyn Jacobs of Melbourne, Victoria, Australia. Thank you so much.

    trouble searching
    Hey there Marilyn... I'm having trouble searching for you. If you could, send me a friend request (my address is in the top post) and then I can get you on the list... :)
  • adube
    adube Member Posts: 63
    #43
    Update Complete
    Master list has been updated. :) Yay! I'm glad everyone is so excited about this new method of communication!! I sometimes can't get through all the thread updates because I've been away from my computer for days-- I'm glad this will help us all stay in touch. :)

    <3 Alissa

    (daughter of mike, IV)
  • i35chica
    i35chica Member Posts: 16
    #44
    Please Add
    We are new to EC. In October, my sister (Gayle) was diagnosed with stage IV Please add us. We are new to FB and could not find the group. Please add Karyn Riley Wilson, Frisco, Texas, and Gayle Riley Dewbre, Blanchard, Oklahoma. Thanks and God Bless Everyone.
  • mruble
    mruble Member Posts: 174
    #45
    adube said:

    great idea
    hey is there a way to make it public so we can follow the link and then have to request to join it? that would save you from having to invite everyone, then you could just accept the requests? Just a thought. Either way, I'd like to be added! :D

    Thanks!!
    -Alissa

    If only
    Good idea, Alissa, if only I knew how to do it! Once people become members they are free to add other people themselves so it's not too bad the way it is. And I've added you.
  • mruble
    mruble Member Posts: 174
    #46
    adube said:

    great idea
    hey is there a way to make it public so we can follow the link and then have to request to join it? that would save you from having to invite everyone, then you could just accept the requests? Just a thought. Either way, I'd like to be added! :D

    Thanks!!
    -Alissa

    If only
    Good idea, Alissa, if only I knew how to do it! Once people become members they are free to add other people themselves so it's not too bad the way it is. And I've added you.
  • mruble
    mruble Member Posts: 174
    #47
    i35chica said:

    Please Add
    We are new to EC. In October, my sister (Gayle) was diagnosed with stage IV Please add us. We are new to FB and could not find the group. Please add Karyn Riley Wilson, Frisco, Texas, and Gayle Riley Dewbre, Blanchard, Oklahoma. Thanks and God Bless Everyone.

    Friend request
    Karyn - I've sent friend requests to both you and Gayle. Once you respond to those, I can add you to the group. I'm very sorry to hear about Gayle's diagnoses. My husband is also stage 4 and has been fighting the beast for 26 months.
  • casp42
    casp42 Member Posts: 79
    #48
    mruble said:

    Friend request
    Karyn - I've sent friend requests to both you and Gayle. Once you respond to those, I can add you to the group. I'm very sorry to hear about Gayle's diagnoses. My husband is also stage 4 and has been fighting the beast for 26 months.

    If possible, can you add me
    If possible, can you add me to the facebook page
    https://www.facebook.com/profile.php?id=1446896462&ref=pymk#!/profile.php?id=100000226714900.

    Thanks so much,

    Carolyn
  • cher76
    cher76 Member Posts: 292
    #49
    mruble said:

    Facebook group
    Someone mentioned a Facebook group but it doesn't look like one has been set up yet so I created one (hope that's okay) https://www.facebook.com/groups/140991832678744/
    It is a secret group so you are only able to see it, its members and any postings if you are a member of the group. Right now I'm only friends with a couple of people from here so they are the only ones who have been added to the group. Everyone is welcome and once you are a member, you can add additional people.

    CSN Esophageal Cancer Group

    Facebook page
    Please invite me to the group. My name is Cheryl Grover Janssen, and my profile page is
    https://www.facebook.com/profile.php?id=1753740459
    Thanks,
    Cheryl
  • T-Bird
    T-Bird Member Posts: 25
    #50
    casp42 said:

    If possible, can you add me
    If possible, can you add me to the facebook page
    https://www.facebook.com/profile.php?id=1446896462&ref=pymk#!/profile.php?id=100000226714900.

    Thanks so much,

    Carolyn

    me 2 please
    Hi Mary; I would like to be added as well, with thanks!

    https://www.facebook.com/#!/profile.php?id=622587092

    Teresa
  • chrissiebass
    chrissiebass Member Posts: 56
    #51
    T-Bird said:

    me 2 please
    Hi Mary; I would like to be added as well, with thanks!

    https://www.facebook.com/#!/profile.php?id=622587092

    Teresa

    me also
    Add me to please, even though I do not post often, I am more of a lurker who reads everyday!!

    http://www.facebook.com/#!/profile.php?id=100001393994118
  • Donna70
    Donna70 Member Posts: 852 Member
    #52
    chrissiebass said:

    me also
    Add me to please, even though I do not post often, I am more of a lurker who reads everyday!!

    http://www.facebook.com/#!/profile.php?id=100001393994118

    my hubby's on FB I am not
    Hi,
    It is a family and friends joke, I post on my hubby's facebook all the time and don't want to go on it myself but we post my ups and downs and surgeries etc and congrats when they come. My son is a regular jokester so we wind up with some funny stuff on ours. But if you don't mind going on my hubby's he is Ronald James Nesbitt Baltimore MD there is only one that we know of and we both go on and off of it. Everyone that knows us knows I do most of the typing and posting, just friend us and we will accept. take care,
    Donna70 sorry I dont know the fb address system
  • mrkokomo
    mrkokomo Member Posts: 12
    #53
    Me also for Facebook

    http://www.facebook.com/profirle.php?id=100000439210553
  • Wpturner05
    Wpturner05 Member Posts: 114
    #54
    add me as well
    Hi Ali

    Can you please add me as well - name Whitney Turner

    https://www.facebook.com/#!/profile.php?id=1559313379

    Thanks much - I look forward to it.

    Sincerely,
    Whitney
  • Unknown
    Unknown
    #55
    This comment has been removed by the Moderator
  • Proactive Daughter
    Proactive Daughter Member Posts: 55
    #56
    Please add me
    Can you add me as well. I think this it how you'll find me http://www.facebook.com/#!/profile.php?id=516110720

    OR I'm Jen Collins Sudbury, Ontario
  • sandy1943
    sandy1943 Member Posts: 824
    #57
    Proactive Daughter said:

    Please add me
    Can you add me as well. I think this it how you'll find me http://www.facebook.com/#!/profile.php?id=516110720

    OR I'm Jen Collins Sudbury, Ontario

    Please add me also---Sandra
    Please add me also---Sandra Batchelor--Conley Ga.
  • baileybell
    baileybell Member Posts: 9
    #58
    Me too Please
    http://www.facebook.com/#!/profile.php?id=1768478168
  • lilrusty
    lilrusty Member Posts: 49
    #59
    sandy1943 said:

    Please add me also---Sandra
    Please add me also---Sandra Batchelor--Conley Ga.

    Add Me
    Please add me. Chrissy Carter Rust, Pittsburgh Pa
  • JReed
    JReed Member Posts: 428
    #60
    baileybell said:

    Me too Please
    http://www.facebook.com/#!/profile.php?id=1768478168

    cannot locate your profile
    I can add you as a friend and then add you to the group, but I don't know your name and for some reason the profile links are not pulling up the person like it should.

    If you want to give your name, anyone is this group can friend you (or you can send them a friend request on fb and a message to add you to the CSN group on fb).

    thanks,
    Judy
  • K_ann1015
    K_ann1015 Member Posts: 500
    #61
    another EC daughter--on facebook
    Hi Ali,

    I haven't been on here much lately but was for a few years from 8/09 til about 6 months ago. My dad Kenny Heburn recently passed away from EC. His brother passed 5/10 also of EC. The sadness of my dad's passing is still overwhelming at times but I am trying to be producitve.

    I wouldn't normally "friend" people I don't know on facebook---but if it can spread a preventive or awareness message about EC---then I'm all for it. I have worked with ECAN.org to get April EC Awareness Month in the past & hope to do so this year as well. So--add me to the EC fb list for those interested in furthering ECAN's mission---to increase awareness, research & research funding to improve overall EC care & prevention.

    I got so much comfort from this board when I needed it & if we can all share that comfort & knowledge on facebook---SO BE IT!
    Kim Heburn Priest

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