My update

Update
Thanks for the update and it sounds like you are doing relatively well. I'm also having problems with neuropathy and probably always will according to my oncologist. My pooping schedule is another story, one that is rewritten new everyday. I'm never ever sure what to expect. Glad to see your post.

Kim

Brooks:
About time you checked in, been wondering about you. Don't say away so long, our newer members need your wisdom and knowledge.

Good job getting the disability. If you can get the kids covered that should ease up the finances a bit.

Take care - Tina

Happy things going good
I'm really happy that things are going good for you. I know the pooping problems, I try to go to stores where I know where the bathrooms are for you never know when the quick need will arise!! I'm praying everything goes well with you and your family.
Jeff

Update
Great news regarding your update. It is an inspiration. This site provides so much information. I thought that I was the only one going through neuropathy. The feelings in my hands returned somewhat, however, my grandchildren now button for me. I can button but it takes a lot longer. As for my feet, I still have the numbness and tingling. I make sure that I wear shoes with good soles (just in case I walk on something and not feel it right away.)I am also glad that you got your disability, the first time trying. The real reason many people are turned down for Social Security Disability, is not because they aren't disabled, all of the necessary medical information is not sent in from the medical sources, that we need. I say "we" because I have been a disability examiner for the last 31 years. When I received my diagnosis it was kind of hard because I knew exactly what the doctors were saying to me. The good news is I have been cancer free for a year and two months. I pray to stay that way. By the way, you can call your local Social Security field office and they can make sure that you receive a copy of your award letter for it is kept in your file. As for the poop situation, my son is helping me to change my diet and eat more natural foods. He's a vegetarian. I am hoping that it helps. Have a blessed, healthy and wonderful new year.

Peace and Blessings,
Karen

tootsie1 said:

Good!
I love it when things go well for you, Brooks!

*hugs*
Gail

Brooks
I am also experincing alot of pain from the OXI. Mine is feet, hip and shoulders and neck. Is there anything you are doing to help it. I cant seem to get under control. Especially in my neck and shoulders. Feet are bad too, but I can't seem to get my GP to acknowlegde anything about the OXI. Any suggestions?

RickMurtagh said:

Glad to hear
Glad to hear from you and that disability went through w/out a problem! And ofc no cancer is great too!
As for the pooping. I had problems too. Now me and my ileostomy are living happily very after. I was so miserable. I have a life now. Here is to hoping you get more of your life back and giving less to the ceramic throne.

Neuropathy and Oxaliplatin
Hi Brooks: There have been lots of discussions about neuropathy caused by oxaliplatin on this board. I had 12 treatments of oxaliplatin and never really had any problems. I think because I daily took the following: alpha lipoic acid tablets (good quality) 3 times a day, 5 grams L-Glutamine Fermented in juice once per day, Vit B6 once a day, and calcium/magnesium once a day. These are things recommended for fibromyelgia, another "nerve" disease.
Cheryl

brooks
it's been a while ;-) bout time you posted mr! great news on your disability. hope you find something that can help with the damage oxy has caused :-(