Best news of a crappy situation

grams2jc
grams2jc Member Posts: 756
No mets anywhere but my brain, who would have ever thought that was good news? Chest, abdomen and pelvic CT all cear as was bone scan. Had rad #2 then came home to my own little bed, thinking about a nap.

Yesterday, before scans I asked MO since I am now stage 4 if I could expect about 10 years...she said no, too optimistic, average is 2 years but those are statistics and you are not a statistic. Today when she gave me the "good news sh said, I never do thie, it isn't my practice, I don't want you or me disappointed..but I have "long-term'HOPE for you. Best gift she could give me and it wasn't done due to the season. She does not sugar coat, or blow smoke up your skirt...tells it like it is. I have been happy dancing ever since. LONG - TERM HOPE 3 wonderful words.

I have 3 maybe 4 spots on my brain but no bone,liver o rchest involvement,they think it will shrink, or die with the rads but there are other options if we don't get results we want. Next 3 weeks, no work, driving, or excercising and if steroids make me hungry...eat. NEVER had a doc tell me that, They also said they thought it was blood borne and started befoe my intial dx and surgery, OMG, an here I thought chemo and Tamox protected your brain, too....nope. Hope to live long enough to keep learning.

Thank you for the prayers ladies, you helped me get the "best of the worst"

Love to you all,

Jennifer
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Comments

  • Texasgirl10
    Texasgirl10 Member Posts: 668
    I'm with you
    Oh Jennifer, I'm with you.. I love the words long term hope!!! We are praying for you & I can't wait to see you post that the rads zapped those spots right out of you :)

    You take good care of yourself & keep taking those naps & eat girl eat ;)

    Hugs & God Bless,

    Dawne
  • DianeBC
    DianeBC Member Posts: 3,881 Member
    Praying for you!
    Hugs, Diane

    Praying for you!


    Hugs, Diane
  • gami43
    gami43 Member Posts: 281

    I'm with you
    Oh Jennifer, I'm with you.. I love the words long term hope!!! We are praying for you & I can't wait to see you post that the rads zapped those spots right out of you :)

    You take good care of yourself & keep taking those naps & eat girl eat ;)

    Hugs & God Bless,

    Dawne

    I love those 3 words too;
    I love those 3 words too; and so glad no more mets
    anywhere else. Of course, will keep praying rads will
    get rid of those nasty spots. Sending you support, love,
    hope and hugs.

    Teresa
  • Double Whammy
    Double Whammy Member Posts: 2,832 Member
    DianeBC said:

    Praying for you!
    Hugs, Diane

    Praying for you!


    Hugs, Diane

    This is so much more positive
    than the original post. I, too, love those three words, "long term hope".
    Remember that we are with you every step of the way on this journey. I'm so happy the rest of your organs are clear. Let's zap those suckers in your brain good!

    Suzanne
  • Noel
    Noel Member Posts: 3,095 Member

    This is so much more positive
    than the original post. I, too, love those three words, "long term hope".
    Remember that we are with you every step of the way on this journey. I'm so happy the rest of your organs are clear. Let's zap those suckers in your brain good!

    Suzanne

    I love the long term hope
    I love the long term hope too Jennifer. So glad that your scan showed it was nowhere else. Good luck with rads!
  • BetsyJane
    BetsyJane Member Posts: 127
    Long term Hope - FANTASTIC NEWS
    Jennifer,

    I'm sure those three words - long term hope was the best Christmas present you could have gotten this year. I'm praying for at least another 50 years for you!

    Merry Christmas!

    Betsy
  • mollyz
    mollyz Member Posts: 756 Member
    BetsyJane said:

    Long term Hope - FANTASTIC NEWS
    Jennifer,

    I'm sure those three words - long term hope was the best Christmas present you could have gotten this year. I'm praying for at least another 50 years for you!

    Merry Christmas!

    Betsy

    Thank God!
    Happy News,Merry Christmas.~~MollyZ~~
  • Sunrae
    Sunrae Member Posts: 808
    mollyz said:

    Thank God!
    Happy News,Merry Christmas.~~MollyZ~~

    Hi Jennifer, Thank you for
    Hi Jennifer, Thank you for updating us and giving us all hope. Keeping you in my prayers and waiting to hear that rads blasted those spots, no more to be heard from.
  • TraciInLA
    TraciInLA Member Posts: 1,994 Member
    mollyz said:

    Thank God!
    Happy News,Merry Christmas.~~MollyZ~~

    Don't forget the other "good" news in this crappy situation...
    You actually had a doctor tell you NOT to exercise for the next 3 weeks! When did you ever think you'd hear that from a medical professional? :-)

    Take extra special care of yourself, Jennifer -- and let everyone around you do the same.

    Traci
  • grams2jc
    grams2jc Member Posts: 756
    TraciInLA said:

    Don't forget the other "good" news in this crappy situation...
    You actually had a doctor tell you NOT to exercise for the next 3 weeks! When did you ever think you'd hear that from a medical professional? :-)

    Take extra special care of yourself, Jennifer -- and let everyone around you do the same.

    Traci

    This was not my RO, a fill in Dr for him this week
    Will see reg RO on Tuesday so will make the most of his ideas until then. He also told me to take a multi vitamin daily and when I asked about drinking green tea he said he didn't care what I drink, even green Beer(BLECH) So a lot of this may change next week. But until then I have a plan. I am always better with a plan.

    Merry Christmas weekend everyone!!

    Jennifer
  • Lynn Smith
    Lynn Smith Member Posts: 1,264 Member
    grams2jc said:

    This was not my RO, a fill in Dr for him this week
    Will see reg RO on Tuesday so will make the most of his ideas until then. He also told me to take a multi vitamin daily and when I asked about drinking green tea he said he didn't care what I drink, even green Beer(BLECH) So a lot of this may change next week. But until then I have a plan. I am always better with a plan.

    Merry Christmas weekend everyone!!

    Jennifer

    Better News
    Better news than the first post.I kept thinking how hard Christmas would be for you but now things are looking up.I hope the brain mets are gone soon with your treatment and I especially like what your doctor said.Long Term. I think doctors know or have a idea.We look at our X rays but they mean nothing. Doctors see X rays everday and they can tell by looking and what the prognosis is.

    You are my prayers that things go good for you with treatment. I believe it won't be long till you will be posting with some real good news.Keep us informed.

    Merry Christmas to you and your family.

    Lynn Smith
  • butterflylvr
    butterflylvr Member Posts: 944

    Better News
    Better news than the first post.I kept thinking how hard Christmas would be for you but now things are looking up.I hope the brain mets are gone soon with your treatment and I especially like what your doctor said.Long Term. I think doctors know or have a idea.We look at our X rays but they mean nothing. Doctors see X rays everday and they can tell by looking and what the prognosis is.

    You are my prayers that things go good for you with treatment. I believe it won't be long till you will be posting with some real good news.Keep us informed.

    Merry Christmas to you and your family.

    Lynn Smith

    I can't tell you how happy I
    I can't tell you how happy I am to read this latest post. All of us have long term hope, so you will be with us long after those ten years you predicted. ♥

    Hugs buddy,
    Lorrie
  • camul
    camul Member Posts: 2,537
    I love the doctors
    who consider us people not statistics, that is good news that everything else is clear! Yes it is the best of a not so good situation, but sounds like she believes it is one that you can overcome.

    Wishing you the best,
    Carol
  • VickiSam
    VickiSam Member Posts: 9,079 Member
    camul said:

    I love the doctors
    who consider us people not statistics, that is good news that everything else is clear! Yes it is the best of a not so good situation, but sounds like she believes it is one that you can overcome.

    Wishing you the best,
    Carol

    Jennifer ...
    Prayers and Hope ... I happy you have a plan --

    We will be with you every step of your journey ..

    Prayers for Strength, Love, Support, Hope, HEALTH and over coming odds.


    Vicki Sam
  • Chickadee1955
    Chickadee1955 Member Posts: 356 Member
    VickiSam said:

    Jennifer ...
    Prayers and Hope ... I happy you have a plan --

    We will be with you every step of your journey ..

    Prayers for Strength, Love, Support, Hope, HEALTH and over coming odds.


    Vicki Sam

    Merry Christmas
    Merry Christmas Jennifer!!

    Long Term Hope---Who doesn't love that??

    You've been in my prayers daily, Jennifer, and will remain there as you work that Plan.

    Deborah
  • MsGebby
    MsGebby Member Posts: 659
    Jennifer ... HOPE is the
    Jennifer ... HOPE is the greatest gift we have. We can only ask for long term hope and when gifted with those 3 beautiful words, one must smile. And keep smiling. I read this post with tears and smiles. Christmas is here and miracles abound. I wish you a Blessed Christmas, Jenn. Thank you for always having the right words for us sisters when we think life couldn't get any worse.

    Love,
    Mary
  • LoveBabyJesus
    LoveBabyJesus Member Posts: 1,679 Member
    Hope...
    Sweet Jennifer -- This post made me feel better. I always have hope for all of us, no matter the situation. But when a Physician says it: "long-term hope", it's even more soothing. Yes it is.

    Very happy there was nothing else found. May it continue that way. Once we have a plan, it makes us feel more in control about the situation. Not knowing is not so pleasant. But we will continue to pray so this plan works for you. And also that you stay positive and try having a nice holiday (hard, but possible).

    I wish I can hug you right now. Please keep us posted.
  • carkris
    carkris Member Posts: 4,553 Member

    Hope...
    Sweet Jennifer -- This post made me feel better. I always have hope for all of us, no matter the situation. But when a Physician says it: "long-term hope", it's even more soothing. Yes it is.

    Very happy there was nothing else found. May it continue that way. Once we have a plan, it makes us feel more in control about the situation. Not knowing is not so pleasant. But we will continue to pray so this plan works for you. And also that you stay positive and try having a nice holiday (hard, but possible).

    I wish I can hug you right now. Please keep us posted.

    that is wonderful, if you
    that is wonderful, if you are going to be stage 4 then i guess that is a good spot. I know someone who has brain mets and it has been 8-9 years. so far and going strong.
  • ladyg
    ladyg Member Posts: 1,577
    That is a good
    thing to hear. Long term hope says to me that you are here to stay. I hope the rads do their job and you are with us for a long time to come.

    Merry Christmas
    Georgia
  • laughs_a_lot
    laughs_a_lot Member Posts: 1,368 Member
    You
    You'd be suprised how even bad news can have good news hidden inside it.