scared- getting more out of breath by the day

Lisa
My heart goes out to you. You have really had a rough time. I have COPD and use spiriva and symbicort. Both help my breathing considerably so that my only reminder of my condition is when I forget and try to run up stairs. Perhaps your doctor could try you on one or both of these.
I wish you well, Diane

Specialists
Sometimes I feel like I should hve gone to med school so I could understand what to do when I am sick! An oncology pulmonologist may certainly be able to tell you if radiation or chemo might help with your breathing. However, a pulmonologist is a specialist in breathing. The onco pulmonologist is a cancer specialist. I saw an onco. pulmonologist early in my treatment and they dismissed me from seeing them as I wasn't really advanced enough to need chemo. I thought that meant that nothing could be done about my breathing problems so I did nothing. So maybe they would help you. . . then again. . . It took me another two years of coughing before I finally understood that the pulmonologist (different specialist than the onco. pulmonologist) could help me with coughing. The pulmonologist helped in lots of ways. They had me evaluated with a battery of tests to determine my oxygen level and possible causes--besides just the cancer and surgery. Then they worked at finding a medical solution to my coughing. Though I have lung cancer, apparently I also have some asthma and maybe some COPD, probably some allergies. When things are really messed up, they use a combination of prednisone, antibiotics, corta-steroid nasal sprays and inhalers to get me cough free. When things are better, the nasal sprays and inhaler are my main meds. I don't do the over-the-counter meds unless the doctor okays the mix because of possible side effects. Sometimes he uses them, sometimes he points out that the meds he prescribes are better. I especially like the new nasal sprays that aren't addictive and stop the sinus symptoms better than the over the counter stuff that messed with my head.

Sometimes I notice folks with more lung problems than I currently have. The literature and conversations I hear at the pulmonologist's office gives me some ideas of things that might help. Some folks breath better during the day if they breath better at night. The pulmonologist also specializes in sleep disorders and offers many sorts of machines that deliver warmed, moist air. I think some folks are on oxygen with those machines. Others get regular air but with a mask that helps the air go in. Other folks need to be on oxygen part or all of the day. It is not unusual for folks in my town to go grocery shopping, pick up children from school, or even go to the concerts while on their portable oxygen machine. It might be a hassle, but it is better than keeling over from lack of oxygen.

Sometimes a general physical can find a different reason for breathlessness. Just because you have cancer doesn't mean you can't have another problem, not that anyone needs other problems. But another friend of mine found that she had a fluid build-up that affected her heart and she was feeling breathless and winded. The doctor put her on some diuretics (oops I'm not sure I can spell, but maybe you know what I mean) and though it sent her to the bathroom for a while, her fluid problem and her breathing problem cleared up. Now she is much better, though she will have to see the cardiologist to keep checking on her heart. Another doctor: Ugh!

So talk with your oncology pulmonologist and ask him or her what else they think you should check out. If they are clueless, consider your regular doctor for a checkup and a pulmonologist for another opinion. They may have some ways to maximize your quality of life. Good luck!