nasopharyngeal carcinoma stage 4B
Comments
-
What a ride, huh?
It's a roller coaster for sure. You've got to hang on real tight. Great response to treatment to say the least and very encouraging. Sounds like you have a good grasp of what is happening to both of you and are dealing well with the most scary 5 months of your life. The numbness isn't anything to worry about right now. Either is the swallowing as it seems to be improving already. Young is always a plus for fighting purposes. Welcome to the Board. What an inspirational post although I regret the malignant diagnosis of your partner/friend. Check out the Super thread to answer many of your questions and hang out with us for awhile.0 -
Hi caregiver
So sorry, that you find yourself in need of CSN, but glad that you found our site. There are a lot of great people here, who are very supportive, and full of great knowledge. I did not have NPC, but I had SCC stage IV.
The speech therapist can usually help with swallowing. They may have a swallowing study done, to ascertain why she is having problems with swallowing. There are swallowing exercises that can be done, or if the issue is due to a stricture, they can go in and dilate or stretch out the esophagus. Many of us have had that done, even multiple times.
Here is a link to the superthread. It is full of a lot of useful information, mostly in the form of links to other threads on CSN and different websites pertaining to all aspects of head and neck cancer.
HNC SUPERTHREAD0 -
Welcome
Hi Caregiver, it sounds like you're already a regular here in terms of your knowledge, and you and your friend's harrowing time. As said, you been on the E ticket ride: fast to show, fast to treat, and quick response and recovery. The lingering numbness is not an indicator either way. Now you have to learn to wait, you are waiting in the "line ride" as depicted on one episode of South Park. Tough luck you didn't find this site sooner, but use it now.
best, Hal0 -
NPC here
Hi, im NPC too still on treatment, stage 2b i would have adjuvant chemo starting on Dec. 19, im done with radiation with concurrent chemo and im only 35 yrs. old, im actually eating now gained like 7 pounds, i also have very slight numbness on my right side of my face, there is a lot of NPC survivors here, so don't worry your girlfriend would be fine.0 -
NPC too
Hi,
I'm NPC too (stage 3) at 39 yrs old. I (like sumarah) am also due for my post rad chemo soon. The doctors told me too that this type of SCC (non-keratinizing) is very responsive to treatment. You sound like you both went through a lot. But it looks like you have both gone past the hump. Stay strong, it looks like things are only improving for her from here.0 -
Thank you allac said:NPC too
Hi,
I'm NPC too (stage 3) at 39 yrs old. I (like sumarah) am also due for my post rad chemo soon. The doctors told me too that this type of SCC (non-keratinizing) is very responsive to treatment. You sound like you both went through a lot. But it looks like you have both gone past the hump. Stay strong, it looks like things are only improving for her from here.
Thank you for all of your insightful feedback and suggestions. I was kinda shocked to find so many young NPC out there. This CSN forum has been a great place for information, I probably learned more from the posts here than from my gf's docs and nurses. Keep you the good work and good luck to all!0 -
wife is also at stage 4caregiver99 said:Thank you all
Thank you for all of your insightful feedback and suggestions. I was kinda shocked to find so many young NPC out there. This CSN forum has been a great place for information, I probably learned more from the posts here than from my gf's docs and nurses. Keep you the good work and good luck to all!
I forgot the technical term stage. However I'm glad to hear your girl is doing so well. My wife is 38 and it's been tough. We've just finished her rad treatment and for some reason the very last one turned out to be the worse. It's like someone turned up the dial as a percaucion. I will show her your results because she's having trouble keeping up with the regiment. Thank you for your post.0 -
hang in thererobertjuy said:wife is also at stage 4
I forgot the technical term stage. However I'm glad to hear your girl is doing so well. My wife is 38 and it's been tough. We've just finished her rad treatment and for some reason the very last one turned out to be the worse. It's like someone turned up the dial as a percaucion. I will show her your results because she's having trouble keeping up with the regiment. Thank you for your post.
Robert, the last 2 weeks of rad treatment was tough for my gf. Her skin was burned pretty bad, the lotion provided by the doctors helped a little. Within a month I noticed most of her burned skin disappeared and her throat was cleared of mucos. She could go out again without having to carry a tissue box. Your wife will start to feel better very soon. I had arranged my gf to see a swallowing specialist and they did some post rad swallowing test to see if anything wrong but all came out great, she just need to do couple of sessions on how to excersie her tongue so the food goes in more smoothly.0 -
Hi caregivercaregiver99 said:Thank you all
Thank you for all of your insightful feedback and suggestions. I was kinda shocked to find so many young NPC out there. This CSN forum has been a great place for information, I probably learned more from the posts here than from my gf's docs and nurses. Keep you the good work and good luck to all!
Yep there are quite a few of us here who had NPC, so far I count the number at 34 many of them left CSN only a few of us stay back to help others going through treatment.
Wishing you both well in the future, God bless
Hondo0 -
NPCHondo said:Hi caregiver
Yep there are quite a few of us here who had NPC, so far I count the number at 34 many of them left CSN only a few of us stay back to help others going through treatment.
Wishing you both well in the future, God bless
Hondo
Also, NPC, who finished tx in 4/09, and clean ever since. Little different tx regiment with the chemo and rads. No Primary ever found. C showed with two left-side neck tumors in 11/08. NPC can be beat with great success.
As for the "young" people with NPC, I am not 28, as I wish I was. Would you believe I'm 33? Okay, how about 57? (Unfortunately, the last age is the correct one)
kcass0 -
Hi KentKent Cass said:NPC
Also, NPC, who finished tx in 4/09, and clean ever since. Little different tx regiment with the chemo and rads. No Primary ever found. C showed with two left-side neck tumors in 11/08. NPC can be beat with great success.
As for the "young" people with NPC, I am not 28, as I wish I was. Would you believe I'm 33? Okay, how about 57? (Unfortunately, the last age is the correct one)
kcass
Yep you are right, I am just one year behind you at 56, if us old people can do it with our old bodies then the younger ones can beat it standing on there heads. Last NPC treatment for me was 3-16-2005, that is 6 years plus, I thanks God for ever year extra he has giving me.
Hay did I just call us Old, I am not old because I feel too young,
Take care
Hondo0 -
Rad burnsrobertjuy said:wife is also at stage 4
I forgot the technical term stage. However I'm glad to hear your girl is doing so well. My wife is 38 and it's been tough. We've just finished her rad treatment and for some reason the very last one turned out to be the worse. It's like someone turned up the dial as a percaucion. I will show her your results because she's having trouble keeping up with the regiment. Thank you for your post.
I tried everything they gave me,nothing helped,and then out of desperation I tried Neosporin spray.It burned a little but in two weeks all scabing was gone.The best thing I found.0 -
Glad
Hi
Glad to know that she was alright after the treatment. Thanks for your info.
cheers,
Neo0
Discussion Boards
- All Discussion Boards
- 6 CSN Information
- 6 Welcome to CSN
- 121.8K Cancer specific
- 2.8K Anal Cancer
- 446 Bladder Cancer
- 309 Bone Cancers
- 1.6K Brain Cancer
- 28.5K Breast Cancer
- 397 Childhood Cancers
- 27.9K Colorectal Cancer
- 4.6K Esophageal Cancer
- 1.2K Gynecological Cancers (other than ovarian and uterine)
- 13K Head and Neck Cancer
- 6.4K Kidney Cancer
- 671 Leukemia
- 792 Liver Cancer
- 4.1K Lung Cancer
- 5.1K Lymphoma (Hodgkin and Non-Hodgkin)
- 237 Multiple Myeloma
- 7.1K Ovarian Cancer
- 61 Pancreatic Cancer
- 487 Peritoneal Cancer
- 5.5K Prostate Cancer
- 1.2K Rare and Other Cancers
- 539 Sarcoma
- 730 Skin Cancer
- 653 Stomach Cancer
- 191 Testicular Cancer
- 1.5K Thyroid Cancer
- 5.8K Uterine/Endometrial Cancer
- 6.3K Lifestyle Discussion Boards