Pseudomyxoma survivor support network
Pseudomyxomasurvivor
Member Posts: 1
Hi all I am new to this forum so I hope to get to know some of you better and get to read your stories.
I am posting as I was diagnosed with pseudomyxoma peritonei in 2008 and wrongly given less than 3 months to live.
I would love to hear from anyone touched by this cancer. x
I am posting as I was diagnosed with pseudomyxoma peritonei in 2008 and wrongly given less than 3 months to live.
I would love to hear from anyone touched by this cancer. x
0
Comments
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pmp
I too have been recently diagnosed with PMP on november 28 I am still recovering from surgery. I am at a loss and would greatly love to hear any comments, treatments etc.0 -
PMP?janineramage said:pmp
I too have been recently diagnosed with PMP on november 28 I am still recovering from surgery. I am at a loss and would greatly love to hear any comments, treatments etc.
I've not about this cancer. Can you tell me about it?
Thanks Tina xxxx0 -
Lack of knowledge
Hi,
I've not heard of it either. Would it be painful to talk about it?
AussieMaddie0 -
I'm an Appendix Cancer survivor
tho not PMP. However, there is an excellent closed PMP/Appendix Cancer support group on FB, if either of you are interested.
While I had mucinous adenocarcinoma, I did not have the belly-full of mucin common to PMP, just some small pools. I know that I had the same treatment at Memorial Sloan Kettering as my friend with PMP: debulking followed immediately by multiple courses of Intraperitoneal chemo (they don't do HIPEC there) followed by systemic chemo with Folfox.
Is your PMP of appendix origin?
Alice0
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