Shout out to Chen...

CypressCynthia said:

We are all rooting for you
We are all rooting for you and pray you are doing better. (((Hugs)))

chenheart said:

Aside from THAT Mrs. Lincoln, how did you enjoy the play????
If you only knew how difficult this site is for me to access! But, here I am!

Quick recap...as most of you know I am in a clinical trial, and I seem to be responding quite well~ I don't of course know for sure, but I feel really well! Alright, really well for a bald tired woman,in the middle of chemo anyway! I absolutely LOVE my medical team , which is a good thing, as I seem to live at the cancer center! LOL For example, next week on Thursday I have labs, a uninalysis, nuclear bone scan and a CT scan~ and Friday I have chemo, which takes about 5 hours! First of course I get the IV steroids for almost an hour, then Taxotere ( I was allergic last time, needed oxygen and 50 mgs of Benedry pushed) then the "investigational drug" for about an hour, then Zometa for an hour. Most of these drugs can be given much faster~ I however react adversely when the drip is fast so it is slowed down to almost nothing. Takes much longer of course, but with fewer SE's. I also take an insulated lunch bag with 2 bags of ice chips--I hold my fingers in one bag for as long as I can, and out of the other I suck on the ice. This has been known to help some of us with both neuropathy and mouth sores. So far so good! No mouth sores, no neuropathy! Friday is my 3rd infusion, btw.
What I do have from the infusions is LOW white count! Though I do eat red/white boosting foods, it has not helped as far as the white count is concerned. My levels dipped to a "critically low level" last week...2.6. I got 3 Neupogen shots ( I take Aleve and Claritin and have NO bone pain!!!) and OMG~ my cancer center called me expecting me to be in severe pain!!! Why????? The neupogen elevated my white count from 2.6 to ( are you ready??) 76.4!!!! But, no pain...whew! Aways something on this journey!

Personally, life is good~ my Reggie is attentive, supportive and considers himself the lucky one in this marriage...I allow him to think that even though I know better! We still have our 2 year old granddaughter living with us 5 days a week~ Reggie calls her my REAL medicine, I suspect he is right. We too her out tonight to our small towns lighting of the Christmas tree in the Park, complete with an orchestra, dancers, carrollers, and every little shop had lighted decorated trees outside ther door. So festive and pretty!

I know as always I have missed greeting new ones, hugging my long-time Kindreds, hearing about your ornaments, riding the Pink Bus, sending congrats on great results...all of the things I wish I were a part of. I miss all of you!!!!!!

In case I can't find my way back here because of the computer gremlins barring the disccussion room door~ I wish you all a peaceful, happy and ultimatly healthy winter season. To those who celebrate, to those who don't...I send you much love, courage and every bit of encouragement from now and all through 2012.

You fill my ♥ Kindreds...I don't know what I would do without you heping me navigate the road. Again!

Holiday Hugs,
Chen♥

chenheart said:

Aside from THAT Mrs. Lincoln, how did you enjoy the play????
If you only knew how difficult this site is for me to access! But, here I am!

Quick recap...as most of you know I am in a clinical trial, and I seem to be responding quite well~ I don't of course know for sure, but I feel really well! Alright, really well for a bald tired woman,in the middle of chemo anyway! I absolutely LOVE my medical team , which is a good thing, as I seem to live at the cancer center! LOL For example, next week on Thursday I have labs, a uninalysis, nuclear bone scan and a CT scan~ and Friday I have chemo, which takes about 5 hours! First of course I get the IV steroids for almost an hour, then Taxotere ( I was allergic last time, needed oxygen and 50 mgs of Benedry pushed) then the "investigational drug" for about an hour, then Zometa for an hour. Most of these drugs can be given much faster~ I however react adversely when the drip is fast so it is slowed down to almost nothing. Takes much longer of course, but with fewer SE's. I also take an insulated lunch bag with 2 bags of ice chips--I hold my fingers in one bag for as long as I can, and out of the other I suck on the ice. This has been known to help some of us with both neuropathy and mouth sores. So far so good! No mouth sores, no neuropathy! Friday is my 3rd infusion, btw.
What I do have from the infusions is LOW white count! Though I do eat red/white boosting foods, it has not helped as far as the white count is concerned. My levels dipped to a "critically low level" last week...2.6. I got 3 Neupogen shots ( I take Aleve and Claritin and have NO bone pain!!!) and OMG~ my cancer center called me expecting me to be in severe pain!!! Why????? The neupogen elevated my white count from 2.6 to ( are you ready??) 76.4!!!! But, no pain...whew! Aways something on this journey!

Personally, life is good~ my Reggie is attentive, supportive and considers himself the lucky one in this marriage...I allow him to think that even though I know better! We still have our 2 year old granddaughter living with us 5 days a week~ Reggie calls her my REAL medicine, I suspect he is right. We too her out tonight to our small towns lighting of the Christmas tree in the Park, complete with an orchestra, dancers, carrollers, and every little shop had lighted decorated trees outside ther door. So festive and pretty!

I know as always I have missed greeting new ones, hugging my long-time Kindreds, hearing about your ornaments, riding the Pink Bus, sending congrats on great results...all of the things I wish I were a part of. I miss all of you!!!!!!

In case I can't find my way back here because of the computer gremlins barring the disccussion room door~ I wish you all a peaceful, happy and ultimatly healthy winter season. To those who celebrate, to those who don't...I send you much love, courage and every bit of encouragement from now and all through 2012.

You fill my ♥ Kindreds...I don't know what I would do without you heping me navigate the road. Again!

Holiday Hugs,
Chen♥

chenheart said:

Aside from THAT Mrs. Lincoln, how did you enjoy the play????
If you only knew how difficult this site is for me to access! But, here I am!

Quick recap...as most of you know I am in a clinical trial, and I seem to be responding quite well~ I don't of course know for sure, but I feel really well! Alright, really well for a bald tired woman,in the middle of chemo anyway! I absolutely LOVE my medical team , which is a good thing, as I seem to live at the cancer center! LOL For example, next week on Thursday I have labs, a uninalysis, nuclear bone scan and a CT scan~ and Friday I have chemo, which takes about 5 hours! First of course I get the IV steroids for almost an hour, then Taxotere ( I was allergic last time, needed oxygen and 50 mgs of Benedry pushed) then the "investigational drug" for about an hour, then Zometa for an hour. Most of these drugs can be given much faster~ I however react adversely when the drip is fast so it is slowed down to almost nothing. Takes much longer of course, but with fewer SE's. I also take an insulated lunch bag with 2 bags of ice chips--I hold my fingers in one bag for as long as I can, and out of the other I suck on the ice. This has been known to help some of us with both neuropathy and mouth sores. So far so good! No mouth sores, no neuropathy! Friday is my 3rd infusion, btw.
What I do have from the infusions is LOW white count! Though I do eat red/white boosting foods, it has not helped as far as the white count is concerned. My levels dipped to a "critically low level" last week...2.6. I got 3 Neupogen shots ( I take Aleve and Claritin and have NO bone pain!!!) and OMG~ my cancer center called me expecting me to be in severe pain!!! Why????? The neupogen elevated my white count from 2.6 to ( are you ready??) 76.4!!!! But, no pain...whew! Aways something on this journey!

Personally, life is good~ my Reggie is attentive, supportive and considers himself the lucky one in this marriage...I allow him to think that even though I know better! We still have our 2 year old granddaughter living with us 5 days a week~ Reggie calls her my REAL medicine, I suspect he is right. We too her out tonight to our small towns lighting of the Christmas tree in the Park, complete with an orchestra, dancers, carrollers, and every little shop had lighted decorated trees outside ther door. So festive and pretty!

I know as always I have missed greeting new ones, hugging my long-time Kindreds, hearing about your ornaments, riding the Pink Bus, sending congrats on great results...all of the things I wish I were a part of. I miss all of you!!!!!!

In case I can't find my way back here because of the computer gremlins barring the disccussion room door~ I wish you all a peaceful, happy and ultimatly healthy winter season. To those who celebrate, to those who don't...I send you much love, courage and every bit of encouragement from now and all through 2012.

You fill my ♥ Kindreds...I don't know what I would do without you heping me navigate the road. Again!

Holiday Hugs,
Chen♥

chenheart said:

Aside from THAT Mrs. Lincoln, how did you enjoy the play????
If you only knew how difficult this site is for me to access! But, here I am!

Quick recap...as most of you know I am in a clinical trial, and I seem to be responding quite well~ I don't of course know for sure, but I feel really well! Alright, really well for a bald tired woman,in the middle of chemo anyway! I absolutely LOVE my medical team , which is a good thing, as I seem to live at the cancer center! LOL For example, next week on Thursday I have labs, a uninalysis, nuclear bone scan and a CT scan~ and Friday I have chemo, which takes about 5 hours! First of course I get the IV steroids for almost an hour, then Taxotere ( I was allergic last time, needed oxygen and 50 mgs of Benedry pushed) then the "investigational drug" for about an hour, then Zometa for an hour. Most of these drugs can be given much faster~ I however react adversely when the drip is fast so it is slowed down to almost nothing. Takes much longer of course, but with fewer SE's. I also take an insulated lunch bag with 2 bags of ice chips--I hold my fingers in one bag for as long as I can, and out of the other I suck on the ice. This has been known to help some of us with both neuropathy and mouth sores. So far so good! No mouth sores, no neuropathy! Friday is my 3rd infusion, btw.
What I do have from the infusions is LOW white count! Though I do eat red/white boosting foods, it has not helped as far as the white count is concerned. My levels dipped to a "critically low level" last week...2.6. I got 3 Neupogen shots ( I take Aleve and Claritin and have NO bone pain!!!) and OMG~ my cancer center called me expecting me to be in severe pain!!! Why????? The neupogen elevated my white count from 2.6 to ( are you ready??) 76.4!!!! But, no pain...whew! Aways something on this journey!

Personally, life is good~ my Reggie is attentive, supportive and considers himself the lucky one in this marriage...I allow him to think that even though I know better! We still have our 2 year old granddaughter living with us 5 days a week~ Reggie calls her my REAL medicine, I suspect he is right. We too her out tonight to our small towns lighting of the Christmas tree in the Park, complete with an orchestra, dancers, carrollers, and every little shop had lighted decorated trees outside ther door. So festive and pretty!

I know as always I have missed greeting new ones, hugging my long-time Kindreds, hearing about your ornaments, riding the Pink Bus, sending congrats on great results...all of the things I wish I were a part of. I miss all of you!!!!!!

In case I can't find my way back here because of the computer gremlins barring the disccussion room door~ I wish you all a peaceful, happy and ultimatly healthy winter season. To those who celebrate, to those who don't...I send you much love, courage and every bit of encouragement from now and all through 2012.

You fill my ♥ Kindreds...I don't know what I would do without you heping me navigate the road. Again!

Holiday Hugs,
Chen♥