After my app with my onc I asked him wat would be the next step in case I get Ned for a certain pe

pepebcn
pepebcn Member Posts: 6,331 Member
in Colorectal Cancer #1
but we get a further recurrence , he told me some options sine I'm a Kras, mutant, he told me among others vaccines! don't know about ,does any of you hear about it ?

Comments

  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    #2
    i have heard of vaccines but you will not need them
    dear ned pepe,

    your protected by the good karma in the walking post.

    hugs,
    pete
  • pepebcn
    pepebcn Member Posts: 6,331 Member
    #3
    pete43lost_at_sea said:

    i have heard of vaccines but you will not need them
    dear ned pepe,

    your protected by the good karma in the walking post.

    hugs,
    pete

    Tks Pete!
    BtW don't forget to open the walking post number 3!
    Hugs!
  • plh4gail
    plh4gail Member Posts: 1,238 Member
    #4
    I don't know Pepe....just
    I don't know Pepe....just wanted to say hi!

    Love, Gail
  • pepebcn
    pepebcn Member Posts: 6,331 Member
    #5
    plh4gail said:

    I don't know Pepe....just
    I don't know Pepe....just wanted to say hi!

    Love, Gail

    Hi beauty!
    Hugs!
  • plh4gail
    plh4gail Member Posts: 1,238 Member
    #6
    pepebcn said:

    Hi beauty!
    Hugs!

    Aww. ...thank's.....I want
    Aww. ...thank's.....I want someone special that will call me that and treat me like I am that everyday. Anyone have suggestions? I think I will be alone forever sometimes. And sometimes I am ok with that.
  • PGLGreg
    PGLGreg Member Posts: 731
    #7
    vaccines
    I've seen several references to cancer vaccines. Here's one:
    http://fightcolorectalcancer.org/research_news/2010/11/patients_own_tumor_cells_make_effective_cancer_vaccine

    --Greg
  • pepebcn
    pepebcn Member Posts: 6,331 Member
    #8
    PGLGreg said:

    vaccines
    I've seen several references to cancer vaccines. Here's one:
    http://fightcolorectalcancer.org/research_news/2010/11/patients_own_tumor_cells_make_effective_cancer_vaccine

    --Greg

    Thks Greg!
    Tacke care!
  • pepebcn
    pepebcn Member Posts: 6,331 Member
    #9
    plh4gail said:

    Aww. ...thank's.....I want
    Aww. ...thank's.....I want someone special that will call me that and treat me like I am that everyday. Anyone have suggestions? I think I will be alone forever sometimes. And sometimes I am ok with that.

    I don't think you will be alone
    for long time , dear!
    Hugs!
  • pepebcn
    pepebcn Member Posts: 6,331 Member
    #10
    pepebcn said:

    Thks Greg!
    Tacke care!

    It sounds good isn't !
    Greg!
  • Lilmiss82
    Lilmiss82 Member Posts: 257 Member
    #11
    pepebcn said:

    It sounds good isn't !
    Greg!

    NED is Great!!
    I hate chemo and don't see the point in treating what is not there. Chemo is so hard on the body so why put up with such poison. BUT I do suggest if you chose no more chemo to build your immune system and feed your body foods that help fight cancer. If I did that I don't think my reccurance would of happened. Best wishes to you Pepe:)
  • Joecham
    Joecham Member Posts: 13
    #12
    Lilmiss82 said:

    NED is Great!!
    I hate chemo and don't see the point in treating what is not there. Chemo is so hard on the body so why put up with such poison. BUT I do suggest if you chose no more chemo to build your immune system and feed your body foods that help fight cancer. If I did that I don't think my reccurance would of happened. Best wishes to you Pepe:)

    I agree 100%
    Lilmiss 82 you are correct. I had a stage 4 and docs did not really give me too much of a chance. Almost died a few times going though chemo and operations. I told my doc to take my port out and I went to a place where they taught me how to heal myself, which I believe Is the only way you will truly ever beat cancer. I changed my life around dramatically and starting eating raw foods juicing and exercising to boost my immune system. Every test since I started doing this has come out negative. It has been 2 years. The place I went has been helping people heal naturally for over 50 years. Tens of thousands have healed themselves of terminal cancers when doctors gave up. There is a lot more to it than just eating raw food it is more a lifestyle change. It is working for me. Just thought I would share oh the place is Hippocrates institute in west palm beach, magical place.
  • Nana b
    Nana b Member Posts: 3,030 Member
    #13
    Joecham said:

    I agree 100%
    Lilmiss 82 you are correct. I had a stage 4 and docs did not really give me too much of a chance. Almost died a few times going though chemo and operations. I told my doc to take my port out and I went to a place where they taught me how to heal myself, which I believe Is the only way you will truly ever beat cancer. I changed my life around dramatically and starting eating raw foods juicing and exercising to boost my immune system. Every test since I started doing this has come out negative. It has been 2 years. The place I went has been helping people heal naturally for over 50 years. Tens of thousands have healed themselves of terminal cancers when doctors gave up. There is a lot more to it than just eating raw food it is more a lifestyle change. It is working for me. Just thought I would share oh the place is Hippocrates institute in west palm beach, magical place.

    Pepe, we will be NED
    Pepe, we will be NED forever....just keep thinking that!
  • Nana b
    Nana b Member Posts: 3,030 Member
    #14
    Joecham said:

    I agree 100%
    Lilmiss 82 you are correct. I had a stage 4 and docs did not really give me too much of a chance. Almost died a few times going though chemo and operations. I told my doc to take my port out and I went to a place where they taught me how to heal myself, which I believe Is the only way you will truly ever beat cancer. I changed my life around dramatically and starting eating raw foods juicing and exercising to boost my immune system. Every test since I started doing this has come out negative. It has been 2 years. The place I went has been helping people heal naturally for over 50 years. Tens of thousands have healed themselves of terminal cancers when doctors gave up. There is a lot more to it than just eating raw food it is more a lifestyle change. It is working for me. Just thought I would share oh the place is Hippocrates institute in west palm beach, magical place.

    Pepe, we will be NED
    Pepe, we will be NED forever....just keep thinking that!
  • pepebcn
    pepebcn Member Posts: 6,331 Member
    #15
    Nana b said:

    Pepe, we will be NED
    Pepe, we will be NED forever....just keep thinking that!

    I like it Rachel !
    Hugs!
  • Kenny H.
    Kenny H. Member Posts: 502 Member
    #16
    pepebcn said:

    I like it Rachel !
    Hugs!

    NED....
    say it 100 times
    NED....

    say it 100 times day.
  • krick12345
    krick12345 Member Posts: 1
    #17
    Joecham said:

    I agree 100%
    Lilmiss 82 you are correct. I had a stage 4 and docs did not really give me too much of a chance. Almost died a few times going though chemo and operations. I told my doc to take my port out and I went to a place where they taught me how to heal myself, which I believe Is the only way you will truly ever beat cancer. I changed my life around dramatically and starting eating raw foods juicing and exercising to boost my immune system. Every test since I started doing this has come out negative. It has been 2 years. The place I went has been helping people heal naturally for over 50 years. Tens of thousands have healed themselves of terminal cancers when doctors gave up. There is a lot more to it than just eating raw food it is more a lifestyle change. It is working for me. Just thought I would share oh the place is Hippocrates institute in west palm beach, magical place.

    thank you
    I considering going to Hippocrates and this is just the kind of feed back I was looking for. I also have stage 4 colon spread to liver I have not had surgery but did 12 rounds of chemo. The chemo didn't work which was music to my ears. I have the mutant Kras so the next chemo could be more brutal. I wonder if you or anyone else has other advise. I am 45 years old and have a lot to live for.
  • smokeyjoe
    smokeyjoe Member Posts: 1,425 Member
    #18
    krick12345 said:

    thank you
    I considering going to Hippocrates and this is just the kind of feed back I was looking for. I also have stage 4 colon spread to liver I have not had surgery but did 12 rounds of chemo. The chemo didn't work which was music to my ears. I have the mutant Kras so the next chemo could be more brutal. I wonder if you or anyone else has other advise. I am 45 years old and have a lot to live for.

    Oh Pepe, I pray you stay
    Oh Pepe, I pray you stay NED FOREVER!!! The vaccines seem interesting.
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    #19
    krick12345 said:

    thank you
    I considering going to Hippocrates and this is just the kind of feed back I was looking for. I also have stage 4 colon spread to liver I have not had surgery but did 12 rounds of chemo. The chemo didn't work which was music to my ears. I have the mutant Kras so the next chemo could be more brutal. I wonder if you or anyone else has other advise. I am 45 years old and have a lot to live for.

    i gave the australian equivalent a go
    hi krick12345,

    give it a go and fight real hard, the crc is a dam tough adversary.
    i enjoyed the health and lifestyle changes, i still have my challenges but loved the retreats. i did a 5 day at petria king and a 10 day at ian gawler , they are in australia.

    just goodluck and a sincere welcome to the board, sorry you had to find us.

    hugs,
    pete
  • Lifeisajourney
    Lifeisajourney Member Posts: 216
    #20
    Just had to pop in
    cause I got the liver reoccurance, sugery resection didn't go. They openned me up, couldn't do rfa or liver resection because of tumor location and my liver probably wouldn't come back, it was in bad shape. That was 6/l. I have refused chemo, sir spheres. CEA at 10, liver functions still ok. My body, I believe just will not tolerate much chemo without side effects. I don't feel great due to results of 7 folfox and bad reaction, but I am alive. I am making this choice with diet changes/supplements. I still have issues which would only be worse with chemo. Onc is going along with me relunctantly,but I have to have some quality. They can't guarantee side effects won't be there and so I am on my journey, which may be foolish, but it is a chance I have to take for now. I may change my mind, onc said it may be too late by then, but so far no regrets. I DON'T encourage anyone to take my path,but wanted to let you know someone has decided to do it this way....Bless you all on your journey.....Pat

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