Got PET scan results today...

Sorry
Sorry to hear that it has spread. It's good that you are getting a second opinion as they might have a different approach that they want to try. Maybe there is a chance that you could have surgery to remove it.

Kim

Kenny
Hey Kenny

If you don't like what MD has to say....drive north up I-45 260 miles to Dallas. I go to UTSW and we're the MD Anderson of North Texas. We kick **** up here every day of the week and I point to myself as an example of exemplary care.

We've got the top-rated hospital in the metroplex and our cancer center is an NCI facility now as well.

My surgeon is rated in the top 3 for cardiovascular and thoracic surgeries. I've done 2 lung surgeries with him and trust him implicitly.

You can visit the lung forum, but that's mostly for primary lung cancer. I think you'll find good knowledge and help right here where you are at - especially since it's colorectal mets to the lung.

Myself, Phil, and Chip have all done 2 or more. I'm available if I can be of help to you.

Recurrence is a tough thing and why I think the real battle of cancer is fought right there; that's what makes cancer so tough. I've had 3 recurrences myself in 7 years, but I'm shining bright as ever. I worry about a 4th time, but know I've got one of the best medical teams that this country has to offer.

I know most of us think that it will be a one-time thing and then cancer will be a memory. I've seen in myself and through many others, where that is not the case. That's why cancer is so difficult - it's relentless in its pursuit.

But, you're on it early and the tide can be turned back....look at me, man. I've done it 3x now and 2x as a stage 4....it can be done.

I can get you my guys name is you need it. I'll be happy to PM it to you if you want to come to Dallas. You wouldn't be sorry, I can tell you that.

Take care and let's get ready to rumble!

-Craig

Was thinking of you.
Am
Was thinking of you.
Am sorry you got this news! I would imagine it's only what could be called demoralizing...understatement.
However, as you can see, there is plenty of hope here and people who have come through it to tell you--fear not. It will be okay. Hard at first, maybe esp. getting used to the idea, but the procedures sound less invasive than most of us experienced.
You can do this. You can get through this. You are not alone.

Kenny H. said:

Thanks Craig, Jennie,
Thanks Craig, Jennie, Tommycat.
Ya it hit me like a ton of bricks today and Im thinking also at MD I'll just get the same news. Good to know the folfuri really worked. But did you have to stay on it it? Onc scarers me with "indefinate" chemo. And at such an early stage.

Dear Kenny
So sorry to hear that your news was not good.

Don't worry overly much about the 'indefinate' chemo. You may have excellent results with it. You know how stats are...just remember you can be on the up-side of those stats and be very successful.

Praying that treatments lead to better days for you.

Hugs,

Marie who loves kitties

taraHK said:

Sorry and....
sorry to hear this news. I think it's great and very important that you are seeking a second opinion. They may not have "better" news/plan but at the very worst you will get confirmation of the current plan, which can be reassuring (for me, at least). Agree with previous comment that you shouldn't necessarily abandon us (!) for the lung cancer board. I'm sure you could get some great advise/support there but there are also folk here who have experience with colorectal cancer lung mets. Like me! 3 times! I can certainly understand why "indefinite chemotherapy" is bumming you out at the moment. Not the news anyone wants to hear, no matter how sugar-coated. But I am one of those -- as I prefer to call it -- 'chronic disease model' types. I will probably be on/off chemo for the rest of my life (let it be long!). I'm coming up to my 9th anniversary since diagnosis - yea!! I've had several surgeries and been on/off chemo but been fortunate to tolerate chemo reasonably well and to enjoy the non-chemo times immensely. I am currently on a "chemo break" (my onc and I both fully accept I'll be back on chemo again). During this period I've already hosted family and other visitors, travelled, and thrown myself into a major work project (woo hoo!). I don't mean to come over as a complete Pollyanna -- but it's do-able. I'm with you - -and others too.

Tara

Oops, Tara:)
Tara

Please forgive me:)

How could I have forgotten about all of those lung surgeries you did? I'm sorry. I blanked out when I was talking to Kenny.

I won't forget you the next time:)

-Craig

FOLFIRI
FOLFIRI worked well for me and many other people I know to get things back under control after spread. Even if you don't qualify for surgery or radiation now, it doesn't mean that you won't ever qualify. If you have many small spots, the chemo might take enough out for you.

It is always good to get a second opinion to see if someone might through other options out to thing about. Please update us after you get the second opinion.