Newly diagnosed

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  • txtrisha55
    txtrisha55 Member Posts: 693 Member
    #42
    ingridjee said:

    MMMT stage three same treatment
    Thank you Trish for sharing.
    I am going through the same treatment, same stage, same operation, from 7 lymph glands 1 was cancerous but had it also on the right tube and ovary, and the cervix.
    They said it is aggressive and thus I need aggressive treatment.
    Now one more round of chemo - I did not get a break on tiredness, bad mouth taste, bone pain. I also had allergic reaction to chemo and take it with steroids. In one month I have chemo and then maybe one good week after chemo of feeling well .
    I wonder how is radiation, some people say side effects are less than chemo . Well, I guess I will know.

    I am taking a day at the time, afterall it is almost impossible to plan anything but I do feel lots of uncertainty, specially because even though I work at home, I feel too tired to work, an I have sore throats and cannot speak on the phone. The STD pays dirt and I wonder if I could go back to work after radiation or even with radiation! ;)

    Thanks for sharing!

    How are you doing?
    Have not seen any response from you lately and just wondering how you were doing? trish
  • txtrisha55
    txtrisha55 Member Posts: 693 Member
    #43
    Hilajoan said:

    MMMT, CarcinoSarcoma, Surgery, recovery and the future
    I had 'radical' hysterectomy on 14 November - just over 2 weeks ago and have carcinosarcoma - used to be called MMMT. Someone recommended the MD Anderson Center in Texas - though we have good facilities in London (England, where I live) but I would travel if there were reason to. Chemo - 6 rounds - scheduled, followed by 25 sessions of pelvic radiation. Just not sure whether the poisoning of the body and the burning of it to protect it for the future is the best possible way forward. Any ideas, anyone? Joan

    I went to UT Southwestern
    I went to UT Southwestern Simmons Cancer Center here in Dallas, TX. Their Cancer center is NCI recognized just like MD Anderson down in Houston. I have carcinosarcoma too stage 3c1 and had the whole hysterectomy done back in April. 6 rounds of Carbo/Taxol starting 6 May through 22 Aug. No radiation, as Dr said it was not necessary. (will see if she was right down the road). I have had two CT scans. 12 Sep was NED. 22 Nov, which I get the results on 5 Dec. Hopefully the same. Then blood work every 3 months. If you do not want to go the radiation, you could always ask for a 2nd opinion. trish
  • ybrlabs
    ybrlabs Member Posts: 11
    #44
    ybrlabs said:

    Back home
    I had my surgery on the 22nd as planned and came home today. The good news is that the doctors could not find anything abnormal with a visual look. They removed a large section of Omentum, my appendix, lymph nodes, uterus, ovaries, and Fallopian tubes. Dr Abbas andDr Zucker saw nothing abnormal. We won't have the biopsy results for 7-10 days. I'm actually hoping something is found because what if nothing appears? Where did the papillary serous cells originate.

    I'm recovering as expected. Feeling pretty bloated but I can work thru this. I have to give myself the anti-DVT shots in the morning and am nervous about that.

    Thanks for all of the positive thoughts and prayers!

    Sandy

    Well the doctor called Tuesday evening with pathology reports. I was told all was clear with the exception of a minimally invasive spot on the cervix. He said they would recommend close monitoring but no chemo or radiation. Needless to say we were ecstatic. However he called back on Wednesday and said the pathologist changed their mind. Now there is a spot of cancer on the cervix but no more details than that. He wants to wait for the full pathology report which won't be in until 12/5 or 12/6. I didn't want to push for much more because he was really angry at the pathologists. I asked if the uterus and ovaries were still clear and he said yes. So I guess that is still good news. I'll take it where I can get it. I have an appointment with him on 12/6. This is really frustrating!

    Sandy
  • txtrisha55
    txtrisha55 Member Posts: 693 Member
    #45
    ybrlabs said:

    Well the doctor called Tuesday evening with pathology reports. I was told all was clear with the exception of a minimally invasive spot on the cervix. He said they would recommend close monitoring but no chemo or radiation. Needless to say we were ecstatic. However he called back on Wednesday and said the pathologist changed their mind. Now there is a spot of cancer on the cervix but no more details than that. He wants to wait for the full pathology report which won't be in until 12/5 or 12/6. I didn't want to push for much more because he was really angry at the pathologists. I asked if the uterus and ovaries were still clear and he said yes. So I guess that is still good news. I'll take it where I can get it. I have an appointment with him on 12/6. This is really frustrating!

    Sandy

    Pathology reports are very
    Pathology reports are very confusion anyway. Make sure you request a copy of it. My GynOnc Dr who did my surgery, abdominally, so she could really get in there are explore, first said that the tumor was contained to just the uterus and she did not see any other spots. The pathology report came back with 2 microscope cells in 1 lymph node. That would not have been something the Dr could have seen.
    I pray that your pathologist finds all the spots/cells so you can get a full picture of what you have to fight against. Hopefully with a copy of the report you can find out more. Make sure you take someone with you when you go for your appointment. Make a list of questions. You can discover some of them on this site from the messages that people have posted here. Like was an assay of the cancer done, which chemo works best. Staging and Grade. Hormone Receptive positive/negative. If you have to have chemo, how many treatments, what type. Will you have to have radiation?
    When I went for the first visit, my sister and my daughter went both had lots of questions. We also used my daughter's iPhone to record the conversation, just in case we missed something.
    I had surgery on Friday April 8 and the pathology report took till Wednesday 20 April. My Cancer Center has a website set up that each patient can have their own site and it list all reports including blood work, all appointments has a way you can email the drs and nurses. I have full access to all my reports and test results including CT scan reports.
    So there are no guessing games of what the reports say. Now can I understand the reports no but I can pull out words I do not understand and find it on the Internet.
    Good Luck on your visit and I will add you to my prayer list as I do for all on this site. trish
  • LizGrrr
    LizGrrr Member Posts: 127 Member
    #46
    txtrisha55 said:

    When do you start the chemo?
    When do you start the chemo? Will you do it at the Irving hospital?
    trish

    Chemo postponed
    Argh ... Chemo was to begin Monday the 5th but my incision is infected again so that's postponed. The good news is that I've switched doctors so that makes me feel better. Hopefully my check up on the 5th will show a clean incision and I can get back on the chemo schedule for the 12th. I'm mentally ready and these delays are driving me nuts. Once I'm back on schedule the chemo will be in the dr office by Medical City.

    Liz in Dallas
  • LizGrrr
    LizGrrr Member Posts: 127 Member
    #47
    txtrisha55 said:

    When do you start the chemo?
    When do you start the chemo? Will you do it at the Irving hospital?
    trish

    Chemo postponed
    Argh ... Chemo was to begin Monday the 5th but my incision is infected again so that's postponed. The good news is that I've switched doctors so that makes me feel better. Hopefully my check up on the 5th will show a clean incision and I can get back on the chemo schedule for the 12th. I'm mentally ready and these delays are driving me nuts. Once I'm back on schedule the chemo will be in the dr office by Medical City.

    Liz in Dallas
  • LizGrrr
    LizGrrr Member Posts: 127 Member
    #48
    ybrlabs said:

    Well the doctor called Tuesday evening with pathology reports. I was told all was clear with the exception of a minimally invasive spot on the cervix. He said they would recommend close monitoring but no chemo or radiation. Needless to say we were ecstatic. However he called back on Wednesday and said the pathologist changed their mind. Now there is a spot of cancer on the cervix but no more details than that. He wants to wait for the full pathology report which won't be in until 12/5 or 12/6. I didn't want to push for much more because he was really angry at the pathologists. I asked if the uterus and ovaries were still clear and he said yes. So I guess that is still good news. I'll take it where I can get it. I have an appointment with him on 12/6. This is really frustrating!

    Sandy

    Hang in there!
    I'm so sorry for all the mixed messages you're getting... I can't imagine how frustrated and scared you must be. One day you'll look back at this and be amazed how strong you were!
  • ybrlabs
    ybrlabs Member Posts: 11
    #49
    Sandi_Zert said:

    Hi Sandy,
    I am glad to see
    Hi Sandy,

    I am glad to see you are getting wonderful support from this sight. Hang in there! I am also having anxiety from "not knowing" what tyoe of cancer I have. This cancer escaped detection by a Pap smear I just had done 6 weeks ago so I am puzzled that I now have a once inch half solid, half fluid mass growing in my uterine wall. I went into the ER with severe abdominal distress and wished I had appendicitus rather than this. I am a busy professional and can't afford this crisis now. I hope I can remain active while I have treatment.

    Hi,

    I met with my doctor on 12/7 and received good news! My ovaries, uterus, lymph nodes, etc were all clear of cancer. What they found was a glandular cancer high in the cervix. Apparently, the pathologist had a very hard time finding the cells. The margins were clear! I have to have an additional debunking surgery in a couple of months due to being only 44. My doctor said if he had known it was in the cervix hew would have performed a more radical hysterectomy. He is pretty confident that now the he knows what he is dealing with he can do the next surgery robotically. I'm just relieved that he does not see a need for chemo or radiation.

    I'm healing pretty well from the abdominal hysterectomy. At the end of the day I'm pretty sore but it's manageable!

    Thanks you for all of the support!

    Sandy

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