a week of great sadness and great relief........

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  • HellieC
    HellieC Member Posts: 524 Member
    #22
    Susanna23 said:

    Well done Helen!
    I'm just catching up as have been away for a few days - had been wondering how things were with you as I knew you were waiting for scan results. So that's fantastic news - I am so pleased. I share your feelings about Linda though but everyone is right - she would want us all to celebrate your news!
    Do you still have your pelvic pain symptoms that were the need for the scan?
    Have a good weekend -
    Susan x

    Thanks ladies
    Thank you all for your support, ladies. I do hope all of you in the US had a great thanksgiving with family and friends. Here in the UK, we have to wait until Christmas for our big celebration!
    Susan - thanks for your concern - yes - I do still have the pelvic pain. The scans didn't show any degeneration in the bones from radiotherapy, so we can only conclude that it is either general "wear and tear" of the hips/pelvis(I used to do a lot of active horseriding when I was younger) or possibly being caused by the fibrosis in the pelvis stopping the bowel being as mobile as it should be. But it is well under control with normal painkillers (I take 400mg ibuprofen in the morning and 1000mg paracetamol at bedtime - so a really low dose, which is good). I have also started Glucosamine on the recommendation of my oncologist. Apparently there have been some studies which show that it can be as effective as paracetamol! I may also start on chondroitin as well, as I believe it can also help joints. So we shall see what happens in the next few months. Next appt. is at the end of May.
    Helen xx
  • snyderpm
    snyderpm Member Posts: 40
    #23
    Happy days
    Go girl, that kind of news sure makes your day and year. Keep it up. Pat
  • Songflower
    Songflower Member Posts: 608
    #24
    HellieC said:

    Thanks ladies
    Thank you all for your support, ladies. I do hope all of you in the US had a great thanksgiving with family and friends. Here in the UK, we have to wait until Christmas for our big celebration!
    Susan - thanks for your concern - yes - I do still have the pelvic pain. The scans didn't show any degeneration in the bones from radiotherapy, so we can only conclude that it is either general "wear and tear" of the hips/pelvis(I used to do a lot of active horseriding when I was younger) or possibly being caused by the fibrosis in the pelvis stopping the bowel being as mobile as it should be. But it is well under control with normal painkillers (I take 400mg ibuprofen in the morning and 1000mg paracetamol at bedtime - so a really low dose, which is good). I have also started Glucosamine on the recommendation of my oncologist. Apparently there have been some studies which show that it can be as effective as paracetamol! I may also start on chondroitin as well, as I believe it can also help joints. So we shall see what happens in the next few months. Next appt. is at the end of May.
    Helen xx

    Good News!
    We all need some good news! Linda would share in your happiness. I am having a hard time with my grief although I never met her. She was so geniune on this blog site. I thought about leaving the site because the grief wells up in me each time I read and I have written although they seemed to disappear.

    I hope exercise will help your aching pelvis too.

    diane

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