Anyone taking just AVASTIN, having side affects?

Carolyn68
Carolyn68 Member Posts: 39
in Peritoneal Cancer #1
I am on Avastin, maintenance since last December, last infusion was Oct 27th, 2011. Since June, 2011 I have had diaherra episodes, my doctor is not concerned, but I am. I take a probiotic and yogurt everyday and nothing helps. I am tired of it! anyone have suggestions or have you felt this way....it is causing anxiety...I take Immodium when it is really bad.... I am also very gasy....I have read probiotics can do that to you too.
Any suggestions?

Thanks...

Comments

  • LaundryQueen
    LaundryQueen Member Posts: 676
    #2
    Ask your doctor to do a
    Ask your doctor to do a stool culture. Maybe you have an infection.
  • LaundryQueen
    LaundryQueen Member Posts: 676
    #3
    Double post
    Oops!
  • westie66
    westie66 Member Posts: 642
    #4
    LaundryQueen said:

    Double post
    Oops!

    Avastin
    Hi: I had read that Avastin was pulled in the US but I think only for ovarian cancer patients. It is being pulled completely as far as I know here in Canada because of the nasty side effects and some lack of results. What's the word?
    Cheryl
  • Carolyn68
    Carolyn68 Member Posts: 39
    #5
    westie66 said:

    Avastin
    Hi: I had read that Avastin was pulled in the US but I think only for ovarian cancer patients. It is being pulled completely as far as I know here in Canada because of the nasty side effects and some lack of results. What's the word?
    Cheryl

    AVASTIN
    Hi, Avastin is only being pulled in the US for ADVANCED breast cancer patients, not ovarian. Avastin is used for lots of other cancers. I was on AVASTIN for 16 months and had good results, some side affects, but not as bad affects as with carbo/taxol. I have PPC Stage 3C. From my onc stand point, she has experienced good results. She said some of her patients with PPC have had their 10th year anniversary. Every drug is different every person is different. I am thinking positive!
  • AussieMaddie
    AussieMaddie Member Posts: 345 Member
    #6
    Carolyn68 said:

    AVASTIN
    Hi, Avastin is only being pulled in the US for ADVANCED breast cancer patients, not ovarian. Avastin is used for lots of other cancers. I was on AVASTIN for 16 months and had good results, some side affects, but not as bad affects as with carbo/taxol. I have PPC Stage 3C. From my onc stand point, she has experienced good results. She said some of her patients with PPC have had their 10th year anniversary. Every drug is different every person is different. I am thinking positive!

    10 years sounds good!
    My oncologist has said that he has once patient go for six years but I don't know what chemo or other treatment was used.

    As many know who know me, I'm not worried about the time I have left so much am I am about sorting out my home before that happens.

    It would be nice to have any side-effects managed well, but I'm confident of that being done, so my attitude remains calm and content I must say. I get down when I can't sleep. That's usually the hardest part for me.

    Talking of that, it's just on 6.03am and I'm able to sleep so it's off ot bed!

    Goodnight all,

    AussieMaddie
  • LaundryQueen
    LaundryQueen Member Posts: 676
    #7
    AussieMaddie said:

    10 years sounds good!
    My oncologist has said that he has once patient go for six years but I don't know what chemo or other treatment was used.

    As many know who know me, I'm not worried about the time I have left so much am I am about sorting out my home before that happens.

    It would be nice to have any side-effects managed well, but I'm confident of that being done, so my attitude remains calm and content I must say. I get down when I can't sleep. That's usually the hardest part for me.

    Talking of that, it's just on 6.03am and I'm able to sleep so it's off ot bed!

    Goodnight all,

    AussieMaddie

    Just curious: did you ask
    Just curious: did you ask for the stool culture or was it the doctor's idea? I kind of wish EVERY doctor could have the experience of a C. diff. infection so that they would be a little quicker to investigate diarrhea and not let patients suffer so long before getting diagnosed & treated.
  • Carolyn68
    Carolyn68 Member Posts: 39
    #8
    LaundryQueen said:

    Just curious: did you ask
    Just curious: did you ask for the stool culture or was it the doctor's idea? I kind of wish EVERY doctor could have the experience of a C. diff. infection so that they would be a little quicker to investigate diarrhea and not let patients suffer so long before getting diagnosed & treated.

    CDIFF
    My doctor onc suggested a GI eval....but, I wanted it sooner....CDIFF is worse than chemo itself! Nausea and tired! Yes, I didn't realize there was even such an infection out there... GI doctor says from too many ABS...which I needed for my UTI infections. Seems like a no-win situation! I am in remission and suppose to be enjoying the holidays, instead I am sick and feeling worse than ever! Every day matters.... thanks for thinking of me LAUNDRYQUEEN!...

Discussion Boards