Rare breast cancer - anyone else?

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Comments

  • VickiSam
    VickiSam Member Posts: 9,079 Member
    #22
    Noel said:

    Jworkman and Lisa, you are
    Jworkman and Lisa, you are so very young to be dealing with this. Unfortunately, bc has no age limit. Stay strong, stay focused and come here for support.

    Best of luck and praying for you two,


    Noel

    Lisa .. I am sorry that you had to
    find our site, but happy on the other hand, because -- we can lend our support, help, experiences -- love and prayers.

    If possible .. can you locate a breast cancer specialist?

    Jworkman offer up some excellent information,,, Thank you.



    Vicki sam
  • Just_Lisa
    Just_Lisa Member Posts: 16
    #23
    VickiSam said:

    Lisa .. I am sorry that you had to
    find our site, but happy on the other hand, because -- we can lend our support, help, experiences -- love and prayers.

    If possible .. can you locate a breast cancer specialist?

    Jworkman offer up some excellent information,,, Thank you.



    Vicki sam

    My onocologist is wonderful
    My onocologist is wonderful and she is speaking with many different specialists, primarily Sloan Kettering. My original treatment plan was chemo then lumpectomy, but after all the different opinions they now highly recommend a masectomy. Not just the breast with cancer but BOTH and then 14 months of chemo after. Scary thought and I definately would prefer a lumpectomy, but even when we were discussing just doing the lumpectomy I didn't feel like it was the right answer. Grade 3 high activity levels - i had a feeling they would change their minds. Still my choice but deep down i know the mas. is the way to go. And yes to Jworkman and her info, the thought never occured to me that the chemo might not work knowing that just that makes the mas. decision a bit easier.

    Lisa <3
  • Kristin N
    Kristin N Member Posts: 1,968 Member
    #24
    Just_Lisa said:

    My onocologist is wonderful
    My onocologist is wonderful and she is speaking with many different specialists, primarily Sloan Kettering. My original treatment plan was chemo then lumpectomy, but after all the different opinions they now highly recommend a masectomy. Not just the breast with cancer but BOTH and then 14 months of chemo after. Scary thought and I definately would prefer a lumpectomy, but even when we were discussing just doing the lumpectomy I didn't feel like it was the right answer. Grade 3 high activity levels - i had a feeling they would change their minds. Still my choice but deep down i know the mas. is the way to go. And yes to Jworkman and her info, the thought never occured to me that the chemo might not work knowing that just that makes the mas. decision a bit easier.

    Lisa <3</p>

    Yes, it is your choice and I
    Yes, it is your choice and I know you will make the right choice for you Lisa. It is wonderful that your doctor went above and beyond in seeking the opinions of other specialists. I wish you the best!

    ♥ Kristin ♥
  • shelbyhome
    shelbyhome Member Posts: 145
    #25
    Lisa first I have to say
    Lisa first I have to say that I am so sorry that you have to be on here and second at such a very young age but age doesn't stop this horrible thing that has attacked our bodies.
    I haven't heard of your cancer, I hope that you get all your answers.
    Be tough and fight like a girl and always remember that we are all here when you need anything!
    Hugs :)
    Robbin
  • Alexis F
    Alexis F Member Posts: 3,598
    #26
    Just_Lisa said:

    My onocologist is wonderful
    My onocologist is wonderful and she is speaking with many different specialists, primarily Sloan Kettering. My original treatment plan was chemo then lumpectomy, but after all the different opinions they now highly recommend a masectomy. Not just the breast with cancer but BOTH and then 14 months of chemo after. Scary thought and I definately would prefer a lumpectomy, but even when we were discussing just doing the lumpectomy I didn't feel like it was the right answer. Grade 3 high activity levels - i had a feeling they would change their minds. Still my choice but deep down i know the mas. is the way to go. And yes to Jworkman and her info, the thought never occured to me that the chemo might not work knowing that just that makes the mas. decision a bit easier.

    Lisa <3</p>

    Lisa, is your surgery
    Lisa, is your surgery scheduled or are you doing chemo first? Sending hugs and prayers to you!


    Lex
  • LoveBabyJesus
    LoveBabyJesus Member Posts: 1,679 Member
    #27
    Hi Lisa -- I'm sorry you are
    Hi Lisa -- I'm sorry you are here too. UGH! I wish this can go away for all of us. I never heard of your type of c, but trust your Doctors recommendation- which you are- and walk into it believing this will work for you and you will recover fine. I was dx at 32 so not too far from your age, but I think this is difficult and overwhelming at all ages. Where do you live? You mentioned Sloan so I thought you were in the NY area. If you are, you can pm me - maybe we can meet one day. I wish you nothing but the very best. And my prayers are with you.

    Please keep us posted.

    Hugs
  • SNEADS999
    SNEADS999 Member Posts: 1
    #28
    Adenosquamous Invasive Breast Cancer

    I just joined this website.  I saw that you had this rare cancer.  I also have it and I was told I'm the 36th in the world to have it.  If you still read this website I have some questions for you about possible causes.   There isn't much reasarch on this type of cancer.     I was treated at a major medical center and I'm the first they've seen of this type of cancer.  

    Do you have any history of possibly drinking contaminated drinking water?   I have a 3 year history drinking water that had TCE, PCE, and Benzene in the water a long time ago.  

    I see that you entered this comment back in Nov 2011.  I had a biopsy back in 2010 but the Pathologist missed it and said it was benign.  I had a second biopsy in 2012 and they missed it a second time.  It wasn't until the surgeon asked for a second opinion that it was propery diagnosed.     Now after two surgeries and 32 radiation treatments I'm looking for answers.

    I would like to know what part of the country you live in.   

     

     

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