Good and Bad news
We recieved the CT on Jim's brain results yesterday. Good news is there is no tumors or lesions. Thsnk you God! Bad news, Jim has hydrocephalus (water on the brain). We have been refered to a neuro surgen to see if Jim qualifies for a stint to drain the fluid. Apparently they hospitalize for three days to evaluate if the stint will make a difference before they do the surgery. I am praying he qualifies because left alone it will worsen the balance problem and his memory and mental function will deteriate (alzhimers). We are waiting for the neuro surgeons office to call for appointment.
Please pray for good outcome.
Debbie
Comments
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Debbie
Well, I am happy to read that the CT scan does not show any tumors or lesions. I am hoping that they can alleviate the water with a shunt or other proceedure. Keeping you both in prayers.0 -
NPH
Dear Debbie,
I've followed your thread throughout the dark days you've been through over the last few months and always wanted to tell you that you were going to pull through this. But as I couldn't back that up with anything other than a strong belief, I sat that one out. I am so happy to hear that Jim is okay on the CA front.
Now as to Normal Pressure Hydrocephalus. I've got some experience in this ailment since my dad received the same diagnosis. He was unable to pursue the shunt for a variety of reasons, but we were in discussion with Dr. Marmarou at Virginia Commonwealth Medical Center in Richmond. Dr M., sadly, the late Dr. M., was the expert in the adult manifestation of hydrocephalus--as you probably know, this is more generally a pediatric diagnosis. This is the place where all the early spade work was done and, depending on where you live, a place you might consider for further evaluation.
The good news is that if Jim gets a shunt his symptoms will reverse just about immediately. It is incredible. And there will be no echoes, no little reminders. Very unlike the legacy of treatment for base of tongue and its relatives.
Here's a link that might be of interest. http://tinyurl.com/VirginiaCU
Hoping that you will continue to be surprised by good news and better results.
Nancy0 -
What you saidRedbanker said:NPH
Dear Debbie,
I've followed your thread throughout the dark days you've been through over the last few months and always wanted to tell you that you were going to pull through this. But as I couldn't back that up with anything other than a strong belief, I sat that one out. I am so happy to hear that Jim is okay on the CA front.
Now as to Normal Pressure Hydrocephalus. I've got some experience in this ailment since my dad received the same diagnosis. He was unable to pursue the shunt for a variety of reasons, but we were in discussion with Dr. Marmarou at Virginia Commonwealth Medical Center in Richmond. Dr M., sadly, the late Dr. M., was the expert in the adult manifestation of hydrocephalus--as you probably know, this is more generally a pediatric diagnosis. This is the place where all the early spade work was done and, depending on where you live, a place you might consider for further evaluation.
The good news is that if Jim gets a shunt his symptoms will reverse just about immediately. It is incredible. And there will be no echoes, no little reminders. Very unlike the legacy of treatment for base of tongue and its relatives.
Here's a link that might be of interest. http://tinyurl.com/VirginiaCU
Hoping that you will continue to be surprised by good news and better results.
Nancy
+1
This treatment, for aquired hydrocephalus, is a miracle.0 -
Debbie
Hold off on getting the stint, if you read some of my post about 8 months ago I was losing my eye sight and having all kinds of problems in the head. The doctors at MD Anderson did a spinal tap, MRI and about 2 different CT scans and found I had excess fluid on the brain causing all these problems. They say they don’t know why I have this problem but at that time I also had a very bad Mastoid infection in the left ear. This was because I went swimming and salt water got into my inner ear through the ear tubes and none of my doctors detected it or said anything even thoe the MRI was telling them what the problem was.
They did however put me on a medicine called Acetazolamide I took 750MG of it a day for 3 months and it cleared up the problem with fluid on the brain. I have now been off of it for 5 months and so far doing ok. Please ask them to let you give it a try before putting a stint in.
Congratulations on the no cancer, thank you Lord
Acetazolamide
http://en.wikipedia.org/wiki/Acetazolamide
Keeping you both in prayer
Hondo0 -
You got 'em
Debbie:
Glad to hear no tumors or lesions! Praise the Lord! Will be praying he'll qualify for the stint. God Bless!
Jan (Basketcase)0 -
best of luck to youJan Trinks said:You got 'em
Debbie:
Glad to hear no tumors or lesions! Praise the Lord! Will be praying he'll qualify for the stint. God Bless!
Jan (Basketcase)
hurrah for no brain lesions -- that is a big relief ! Sending prayers that the new issue will resolve itself (with meds like Hondo) or with a stent, if required. Hope you breeze thru any needed surgery, so you can get back to just worrying about the cancer.0 -
Thank you NancyRedbanker said:NPH
Dear Debbie,
I've followed your thread throughout the dark days you've been through over the last few months and always wanted to tell you that you were going to pull through this. But as I couldn't back that up with anything other than a strong belief, I sat that one out. I am so happy to hear that Jim is okay on the CA front.
Now as to Normal Pressure Hydrocephalus. I've got some experience in this ailment since my dad received the same diagnosis. He was unable to pursue the shunt for a variety of reasons, but we were in discussion with Dr. Marmarou at Virginia Commonwealth Medical Center in Richmond. Dr M., sadly, the late Dr. M., was the expert in the adult manifestation of hydrocephalus--as you probably know, this is more generally a pediatric diagnosis. This is the place where all the early spade work was done and, depending on where you live, a place you might consider for further evaluation.
The good news is that if Jim gets a shunt his symptoms will reverse just about immediately. It is incredible. And there will be no echoes, no little reminders. Very unlike the legacy of treatment for base of tongue and its relatives.
Here's a link that might be of interest. http://tinyurl.com/VirginiaCU
Hoping that you will continue to be surprised by good news and better results.
Nancy
I will look at that link. I am in Florida. There is a specialty group here in Orlando that specializes in this area of adult hydrocephalus I am going to contact them on Monday. I am so happy to hear about the complete reversal of your dad's side effects, it gives me a better feeling of hope. Jim's memory and balance has gotten really bad and we are looking forward to getting back to a symblance of normal. Thank you again for posting.
Blessings
Debbie0
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