Update on Rickie Prayers please

cher76
cher76 Member Posts: 292
in Esophageal Cancer #1
Dear EC friends,
I haven't posted lately as we had been busy with going to radiation for 10 days. We finished that a week ago Wednesday, and Rickie was regaining the use of his right leg. He has been getting stronger and was actually able to eat a little better than usual. we were also running the feeding tube during the night which helped to give him some energy. We were going in for hydration almost every day last week, which also seemed to help. On Monday of this week when I disconnected him from the feeding pump, bright red blood started coming out of the tube. He dido not want to go to the ER for fear he would never come home, so we waited for the doctor's office to open and went in there. The doctor basically said that we should just keep in eye on it for signs of internal bleeding. He also asked us when we were going back to Houston, and w e told him we were waiting for results of the brain radiation to see how things were going. He told us he did not feel Rickie was strong enough to undergo anymore treatments. He suggested we increase the dilaudid and administer it around the clock to help with his back pain. Rickie's ankles have also been swelling and his blood pressure was low. We saw no other signs of bleeding, however all day yesterday his pressure was very low and his pulse was high. Last night he became incoherent, mixing up syllable when he was trying to tell me things. About one thirty in the morning he got up to got to the restroom and his legs buckled under him. He asked me to call an ambulance and we ended up in the ER. During that time he started having a GI hemorrhage. He was started on blood transfusions and when he became more incoherent and they gave him ativan. Our son is here with me and our daughters are on their way. We spoke to the doctor about hospice and hopefully if they can stabilize him, we will go home to hospice care soon. Rickie is a fighter and has not wanted to give up but perhaps the time has come. Please keep us in your prayers as we start the final road of this journey.
Cheryl
Wife of Rickie, dx stage IV EC, Oct. 2010
Mets to bones and brain
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Comments

  • MissusB
    MissusB Member Posts: 111
    #2
    Cheryl - I am praying!
    I know you must be very fearful, and I'll pray not only for Rickie to stabilize but for you to be able to maintain your tremendous strength. Kim
  • sangora
    sangora Member Posts: 213
    #3
    MissusB said:

    Cheryl - I am praying!
    I know you must be very fearful, and I'll pray not only for Rickie to stabilize but for you to be able to maintain your tremendous strength. Kim

    Cheryl this is so disheartening
    This is certainly a set back and I know you are very down right now. Rickie has put up the good fight and he has to be getting tired. Know that you, Rickie and your families will be in my thoughts and prayers as you complete the journey EC started you on. All of us with this disease are on the same journey and thru this site, we travel it together. Love and prayers, Sam
  • mruble
    mruble Member Posts: 174
    #4
    Praying here, too
    Oh Cheryl, I'm so sorry to hear of this turn of events. My prayers are with you.

    Mary
  • ritawaite13
    ritawaite13 Member Posts: 236
    #5
    So sorry
    Hi Cheryl,
    I am so sorry. I posted earlier that I was concerned because we hadn't heard from you in awhile and now our worst fears have been realized. As someone who's recently been through exactly what you're dealing with, I have one piece of advice; Have a wonderful albeit tearful heart to heart conversation with Ricky and with your kids. Then give him all the drugs allowed to keep him comfortable and peaceful until the end. I thought it was best that we not drug Greg up too much so we could still communicate. That was a mistake. He became so combative and had such terrible hallucinations that I couldn't handle him alone at home. I needed help day and night for the duration but after we got him on a strict and regular regimin of atavan, halidrol and oxycodone, he passed away very peacefully. Please know that you are all in my prayers - I know that's probably not the most comforting words to hear right now, but it's all I have.
    Hugs to you
    Rita
  • chrissiebass
    chrissiebass Member Posts: 56
    #6
    ritawaite13 said:

    So sorry
    Hi Cheryl,
    I am so sorry. I posted earlier that I was concerned because we hadn't heard from you in awhile and now our worst fears have been realized. As someone who's recently been through exactly what you're dealing with, I have one piece of advice; Have a wonderful albeit tearful heart to heart conversation with Ricky and with your kids. Then give him all the drugs allowed to keep him comfortable and peaceful until the end. I thought it was best that we not drug Greg up too much so we could still communicate. That was a mistake. He became so combative and had such terrible hallucinations that I couldn't handle him alone at home. I needed help day and night for the duration but after we got him on a strict and regular regimin of atavan, halidrol and oxycodone, he passed away very peacefully. Please know that you are all in my prayers - I know that's probably not the most comforting words to hear right now, but it's all I have.
    Hugs to you
    Rita

    so sorry
    Cheryl,

    I am so sorry to hear this. Know that all of you are in my prayers!!!
  • paul61
    paul61 Member Posts: 1,392 Member
    #7
    Very Sorry to hear this news
    Cheryl,

    I am so very sorry to hear that things are not going well with Rickie. He is certainly a fighter and this summer and fall has been a fight for both of you. I will be praying that they can get Rickie stabilized so he can return home with hospice care. You will both be in my prayers.

    Best Regards,

    Paul Adams
    McCormick, South Carolina

    DX 10/22/2009 T2N1M0 Stage IIB
    12/03/2009 Ivor Lewis
    2/8 through 6/14/2010 Adjuvant Chemo Cisplatin, Epirubicin, 5 FU
    Two year survivor
  • Ginny_B
    Ginny_B Member Posts: 532
    #8
    Cheryl,
    God be with you and
    Cheryl,

    God be with you and your family at this time.
  • annalan
    annalan Member Posts: 138
    #9
    Cheryl
    Just wanted to say
    Cheryl
    Just wanted to say how very sorry I am to hear that Rickie is not doing well. I'm thinking of you and your family at this very trying time.

    Ann (2)
  • Wife of patient 50378
    Wife of patient 50378 Member Posts: 124
    #10
    Cheryl
    My thoughts are with you! It sounds like you guys have been through hell this week. Glad to hear your son and daughters will be there by your side to provide help & comfort. You’re in my thoughts.I pray that he finds comfort from pain;they are able to stabilize him for home. Take care of yourself too!
    Sal
  • Daisylin
    Daisylin Member Posts: 365
    #11
    Wife of patient 50378 said:

    Cheryl
    My thoughts are with you! It sounds like you guys have been through hell this week. Glad to hear your son and daughters will be there by your side to provide help & comfort. You’re in my thoughts.I pray that he finds comfort from pain;they are able to stabilize him for home. Take care of yourself too!
    Sal

    Dear, dear Cheryl
    I am so sorry for what you are going through. Sadly, it sounds almost like a mirror image of what Lee went through, only a few weeks ago. You must be so terrified. I am so glad your children are going to come visit. They will be a great help and comfort to you, and Rickie. You cannot do this on your own, allow all of your friends and loved ones to help you and support you.

    I hope and pray that the transfusions work for Rickie. I have no words, I am so sorry and praying for you Cheryl.
    Chantal
  • fredswilma
    fredswilma Member Posts: 185
    #12
    Cheryl & Rickie
    Just to let you know that I am thinking of you both, so very glad your son and daughters are on their way home, Cheryl you will need the comfort of having your family close, prayers coming your way.
    Ann
  • mrsbotch
    mrsbotch Member Posts: 349
    #13
    Ricky
    Dear Cheryl

    I am so very sorry about Ricky. Altho Hospice sound so final you will get all the help you need from them.

    Unfortunately there comes a time when enough is enough.Vince and I never wanted to believe that, no one does. It just hurts so bad but suffering hurts so bad too.

    You are in my prayers


    Barbara
  • Ericalynn
    Ericalynn Member Posts: 200
    #14
    Praying for Rickie
    O Cheryl I am so sorry, I wish I could say something that would make you feel better but I have no words.
    Please know that I am praying for you and Rickie.
    Love to You & your family
    Erica
  • Heeran
    Heeran Member Posts: 171
    #15
    My prayers are with you
    I'm so absolutely sorry to hear of your husbands struggles. I can only imagine how hard this must be on you and your family. I will keep you in my prayers.
  • birdiequeen
    birdiequeen Member Posts: 319
    #16
    So sad to hear Rickie has
    So sad to hear Rickie has taken this turn after such a hard fight. He has been so strong and through so much. Please know we are praying for Rickie, you and your family during this difficult (unimaginable) time.
  • TerryV
    TerryV Member Posts: 887
    #17
    So Sorry, Cheryl.....
    There aren't words enough to express my sorrow at your words.

    I pray for peace and strength for you and your family. Peace and no pain for Rickie.

    I'm sure you will find much comfort in hospice. I pray the transfusions help and Rickie is able to return to the comfort and love of HOME.

    Please know that we are here for you - when you need us.

    Love and hugs,

    Terry
  • unclaw2002
    unclaw2002 Member Posts: 599
    #18
    Cheryl,
    My thoughts and
    Cheryl,

    My thoughts and prayers and with you and Rickie as you face this new step in the EC battle. It was such a blessing when we called in hospice for my dad. And it helped him and made a world of difference to my mom --- the comfort and support they gave us was amazing. We called them our angels here on earth.

    I know the love you both share and the love of your family. Lean on each other and treasure these days.

    Hugs and love,
    Cindy
  • AngieD
    AngieD Member Posts: 493
    #19
    unclaw2002 said:

    Cheryl,
    My thoughts and
    Cheryl,

    My thoughts and prayers and with you and Rickie as you face this new step in the EC battle. It was such a blessing when we called in hospice for my dad. And it helped him and made a world of difference to my mom --- the comfort and support they gave us was amazing. We called them our angels here on earth.

    I know the love you both share and the love of your family. Lean on each other and treasure these days.

    Hugs and love,
    Cindy

    Oh, Cheryl,
    I'm so sorry to hear this news! I'm praying for Rickie to be quickly stabilized and the right drug combination found to give him peace. And for you and your children, I pray for strength and lots of support.
    Angie
  • oriontj
    oriontj Member Posts: 375
    #20
    Your family is in our prayers
    We lift you up in prayer. This is heartbreaking news.
  • jss2011
    jss2011 Member Posts: 132
    #21
    oriontj said:

    Your family is in our prayers
    We lift you up in prayer. This is heartbreaking news.

    Cheryl
    I am so sad for what you are all going through.
    Prayers on the way for your family.

    Julie

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