Multiple Myeloma

MarkWalz
MarkWalz Member Posts: 58
edited March 2014 in Multiple Myeloma #1
A friend of mine's mother has just been dz with Multiple Myeloma. I know very little about this cancer. Can you help me help her mother? I am on this site becasue I have stage iv colon cancer. Sometimes people think because you become a survior you are an expert on all cancers. I know very little. If you can direct me to where to ask for help. I would appreciate it very much.
Mark

Comments

  • AuthorUnknown
    AuthorUnknown Member Posts: 1,537 Member
    #2
    Hello Mark,

    You may want to contact the American Cancer Society's National Cancer Information Cencer. Cancer Information Specialists are available 24 hours a day with diagnosis and treatment information as well as access to local resources.

    Take care,

    Dana
    CSN Dana
  • Faith_149
    Faith_149 Member Posts: 3
    #3
    Hi Mark,
    I am a 36 year old mother of 3. I was dx with MM over 4 years ago. I have undergone 2 Autologous Bone Marrow Transplants, and 1 Mini-Allogeneic Bone Marrow Transplant. The last transplant was in January of 2005 and so far so good. Things are going well. I am having a few minor issues with Graft Vs. Host Disease but am living a full and HAPPY life. If I can be of any help please feel free to contact me. (Please be aware I am not on my computer very often but do check in from time to time).
    Faith
  • vj50
    vj50 Member Posts: 10
    #4
    I haven't been on here for awhile but i thought i'd add to the replies. The best place to get information is from the International Myeloma Foundation (myeloma.org). They send out packets of information and have a hotline as well as having lots of information at the site.
  • mm40irish
    mm40irish Member Posts: 3
    #5
    Faith_149 said:

    Hi Mark,
    I am a 36 year old mother of 3. I was dx with MM over 4 years ago. I have undergone 2 Autologous Bone Marrow Transplants, and 1 Mini-Allogeneic Bone Marrow Transplant. The last transplant was in January of 2005 and so far so good. Things are going well. I am having a few minor issues with Graft Vs. Host Disease but am living a full and HAPPY life. If I can be of any help please feel free to contact me. (Please be aware I am not on my computer very often but do check in from time to time).
    Faith

    new to this site
    Hi I am 40 years old woman diagnosed in 05 I am married with a beautiful 5 year old boy. I am about to undergo auto transplant again but followed by an allo in about 5 months of the mini kind. Am naturally worried about g v host. would love your side of story and how you getting on.I also not the best of checking computer but hope to here from you and hope that you are doing well.
  • Gramma
    Gramma Member Posts: 1
    #6
    vj50 said:

    I haven't been on here for awhile but i thought i'd add to the replies. The best place to get information is from the International Myeloma Foundation (myeloma.org). They send out packets of information and have a hotline as well as having lots of information at the site.

    Multiple Myeloma
    New to site with questions. My Mother has been dz with MM and has been on chemo since June 2011.She has had over 10 blood tranfusions and now they want to do a PET Scan as she continues to get worse. She is unable to eat anything...and this breaks my heart. They are concerned that the cancer has spread. I feel that the chemo has wiped her out and wonder if we are putting her through unneccessary pain and sickness.Help....
  • arky70
    arky70 Member Posts: 3
    #7
    Gramma said:

    Multiple Myeloma
    New to site with questions. My Mother has been dz with MM and has been on chemo since June 2011.She has had over 10 blood tranfusions and now they want to do a PET Scan as she continues to get worse. She is unable to eat anything...and this breaks my heart. They are concerned that the cancer has spread. I feel that the chemo has wiped her out and wonder if we are putting her through unneccessary pain and sickness.Help....

    MM
    Every case is different and you do not give many details about your mother such as age, stage of cancer, type of treatment etc. I can tell you a bit about my experience. I was dx in October of 2004 at the age of 56 with stage 2 near stage 3 including 5 bone tumors. I am now in complete remission. I had to go through some tough times but I sure feel it was worth the effort. Here I am 7 years later enjoying my grandchildren and life in general. I still have limitations and deal with some side effects but as I said before, the result is worth the effort. I am still taking 5mg revlimid daily as maitenance therapy. Wishing you and your family the very best.
  • eihtak
    eihtak Member Posts: 1,473 Member
    #8
    arky70 said:

    MM
    Every case is different and you do not give many details about your mother such as age, stage of cancer, type of treatment etc. I can tell you a bit about my experience. I was dx in October of 2004 at the age of 56 with stage 2 near stage 3 including 5 bone tumors. I am now in complete remission. I had to go through some tough times but I sure feel it was worth the effort. Here I am 7 years later enjoying my grandchildren and life in general. I still have limitations and deal with some side effects but as I said before, the result is worth the effort. I am still taking 5mg revlimid daily as maitenance therapy. Wishing you and your family the very best.

    Glad to meet you
    Hi,Glad to meet you. My husband was diagnosed with Aggressive Multiple Myeloma in June 2009.
    He is 55 yrs old now.When diagnosed they treated him with chemo and that fall he had a stem cell transplant. Unfortunately it did not help as much as hoped and this Dec. is having a bone marrow transplant. It has been a couple years of both ups and downs. He had been on a maintainence chemo program but is now doing prep stuff for the transplant. We all have positive thoughts that this will go well but will be a hard road getting there. He is not interested in support groups and just doesnt see the need to hear about others journeys, maybe that will change. I am also recently treated for Stage 3 Anal Cancer and so far recovering as planned,(praying every day). I find it helpful to have others to share with, and even as a caregiver for my husband appreciate input. I hope your health continues on an upward path and congrats on success so far.

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