Hope

barb55
barb55 Member Posts: 91
in Uterine/Endometrial Cancer #1
I was diagnosed in 2007 with UPSC stage 3C. I'm posting tonight for anyone who needs some hope. I saw my oncologist today and I am doing great. In fact, I don't need to see her for another year- kind of a graduation day for me. Four years and no recurrence. I know how enormously lucky I am and I know how much we all need to hear good news. Take care everyone. This discussion board has always been a real beacon of information and sharing and amazing women and I am so grateful. Barbara

Comments

  • Pat51
    Pat51 Member Posts: 130
    #2
    Barb
    Congratulations!! That is great news!! It is always great to hear good news like yours.

    Pat
  • barb55
    barb55 Member Posts: 91
    #3
    Pat51 said:

    Barb
    Congratulations!! That is great news!! It is always great to hear good news like yours.

    Pat

    oops
    so sorry for the multiple postings- not sure what happened. Barbara
  • Rewriter
    Rewriter Member Posts: 493 Member
    #4
    barb55 said:

    oops
    so sorry for the multiple postings- not sure what happened. Barbara

    Congratulations!
    I am so thrilled for you, Barb, and hope you are flying high!

    Thank you so much for sharing with us your excellent news. It certainly gives ME hope, and I expect others will feel the same.

    Jill
  • Ro10
    Ro10 Member Posts: 1,561 Member
    #5
    Congratulations Barbara
    What wonderful news. You joined this board about the same time I did. I am so happy to hear you are doing so well. A whole year with no appointments. How great for you. Enjoy dancing with NED for many more years. In peace and caring.
  • Kaleena
    Kaleena Member Posts: 2,088 Member
    #6
    Congratulations!
    Barbara,

    I am soooo happy for you! Great news indeed! Thanks for sharing.

    Kathy
  • HellieC
    HellieC Member Posts: 524 Member
    #7
    The news we all LOVE to hear....
    Congratulations on four years NED. That's the news we all love to hear.
    Wishing you continued good health
    Helen
  • daisy366
    daisy366 Member Posts: 1,458 Member
    #8
    Barb
    Thank you for the hope. We can use lots of that. What do you think is helping you stay NED??

    Mary Ann
  • jazzy1
    jazzy1 Member Posts: 1,379
    #9
    daisy366 said:

    Barb
    Thank you for the hope. We can use lots of that. What do you think is helping you stay NED??

    Mary Ann

    Barb
    Wow that's such great news!! Bet you're flying on "Cloud 9", and kicking up your heels.

    Have you changed anything in your life that you'd say might have helped you stay on side of NED? We're all trying to keep the beast away, so any pointers would be much appreciated.

    Best to you my friend~
    Jan
  • barb55
    barb55 Member Posts: 91
    #10
    jazzy1 said:

    Barb
    Wow that's such great news!! Bet you're flying on "Cloud 9", and kicking up your heels.

    Have you changed anything in your life that you'd say might have helped you stay on side of NED? We're all trying to keep the beast away, so any pointers would be much appreciated.

    Best to you my friend~
    Jan

    hope
    Thank you for your well wishes. I can't say I have any true pointers to keep the beast away. If I did, I would be following them. I've posted my treatment before and it was much like others here- I think my surgeon and radiologist were maybe more aggressive in the treatment from the get go- I know there was much discussion about how much radiation I could take. I also had the luxury of time to recuperate. I didn't have to rush back to my work or a young family and for that I'm grateful. I have a saying on my refrigerator that says, "Things to do today: Breathe In Breathe Out Breathe In Breathe Out. It brings me to the moment and calms me until my next Yoga class. I hope I don't sound trite- I know we are all living with real pain and real fear and if you have specific questions about lifestyle or my choices or anything I'm very happy to share, Maybe there is a key in one of my answers that may help you but I don't want to assume I have any special insight into fighting the disease. Best to all. Barbara
  • daisy366
    daisy366 Member Posts: 1,458 Member
    #11
    barb55 said:

    hope
    Thank you for your well wishes. I can't say I have any true pointers to keep the beast away. If I did, I would be following them. I've posted my treatment before and it was much like others here- I think my surgeon and radiologist were maybe more aggressive in the treatment from the get go- I know there was much discussion about how much radiation I could take. I also had the luxury of time to recuperate. I didn't have to rush back to my work or a young family and for that I'm grateful. I have a saying on my refrigerator that says, "Things to do today: Breathe In Breathe Out Breathe In Breathe Out. It brings me to the moment and calms me until my next Yoga class. I hope I don't sound trite- I know we are all living with real pain and real fear and if you have specific questions about lifestyle or my choices or anything I'm very happy to share, Maybe there is a key in one of my answers that may help you but I don't want to assume I have any special insight into fighting the disease. Best to all. Barbara

    stress
    Barb, I think you bring up very important points - not rushing, taking time, stay in the now.

    I wonder how much STRESS negatively impacts our total recovery. I think my working throughout treatment and taking little time to relax, trying to do everything, and not let cancer change my life eventually led to the recurrence.

    I am now semi-retired, exercising and doing yoga regularly, and generally taking life at a more leisurely pace.

    When we all get to the pearly gates, we can ask God what really help extend our lives. Until then, we can do the best we can.

    Thanks again for sharing, Mary Ann
  • RoseyR
    RoseyR Member Posts: 471 Member
    #12
    ANYONE WITH MMMT NED AFTER THREE TO FOUR YEARS?

    Thanks so much for showing that some of us can gain really long remissions, perhaps even cures, from even aggressive tumors.

    Along those lines am wondering if anyone has been NED for three or more years after a diagnosis of uterine carcinosarcoma (formerly called MMMT), and if so, do you have any tips on your diet, supplements, or exercise?

    Appreciatively,
    Rosey
  • cleo
    cleo Member Posts: 144
    #13
    RoseyR said:

    ANYONE WITH MMMT NED AFTER THREE TO FOUR YEARS?

    Thanks so much for showing that some of us can gain really long remissions, perhaps even cures, from even aggressive tumors.

    Along those lines am wondering if anyone has been NED for three or more years after a diagnosis of uterine carcinosarcoma (formerly called MMMT), and if so, do you have any tips on your diet, supplements, or exercise?

    Appreciatively,
    Rosey

    Rosey - MMMT NED
    Yes Rosey. I received the results of my now yearly scan today....no change so I celebrate, with gratitude, 4 years. There is much hope for us as I was stage 3/4 as penetration was through to lymph glands and bladder.
    I basically try to eat and live sensibly. Nervous of supplements as I don't like to add 'extras' to the body.
    I didn't research. Googled, saw the 5 year prognosis and as I am no fan of data looked no further. This site gives me information that I may need. I think positivity and sheer B-mindedness can also pay a large part.
    Interestingly enough I also think that...as Barb55, I also had a more aggressive surgeon and radiotherapy.
    Take care
  • cleo
    cleo Member Posts: 144
    #14
    RoseyR said:

    ANYONE WITH MMMT NED AFTER THREE TO FOUR YEARS?

    Thanks so much for showing that some of us can gain really long remissions, perhaps even cures, from even aggressive tumors.

    Along those lines am wondering if anyone has been NED for three or more years after a diagnosis of uterine carcinosarcoma (formerly called MMMT), and if so, do you have any tips on your diet, supplements, or exercise?

    Appreciatively,
    Rosey

    Rosey - MMMT NED
    Delete
  • cleo
    cleo Member Posts: 144
    #15
    RoseyR said:

    ANYONE WITH MMMT NED AFTER THREE TO FOUR YEARS?

    Thanks so much for showing that some of us can gain really long remissions, perhaps even cures, from even aggressive tumors.

    Along those lines am wondering if anyone has been NED for three or more years after a diagnosis of uterine carcinosarcoma (formerly called MMMT), and if so, do you have any tips on your diet, supplements, or exercise?

    Appreciatively,
    Rosey

    Rosey - MMMT NED
    Delete
  • cleo
    cleo Member Posts: 144
    #16
    cleo said:

    Rosey - MMMT NED
    Yes Rosey. I received the results of my now yearly scan today....no change so I celebrate, with gratitude, 4 years. There is much hope for us as I was stage 3/4 as penetration was through to lymph glands and bladder.
    I basically try to eat and live sensibly. Nervous of supplements as I don't like to add 'extras' to the body.
    I didn't research. Googled, saw the 5 year prognosis and as I am no fan of data looked no further. This site gives me information that I may need. I think positivity and sheer B-mindedness can also pay a large part.
    Interestingly enough I also think that...as Barb55, I also had a more aggressive surgeon and radiotherapy.
    Take care

    Oh well!!
    Sorry...have no idea how I managed 3!!! If there's a way to delete I haven't found it.
  • snowbird_11
    snowbird_11 Member Posts: 160
    #17
    Thank you for sharing your
    Thank you for sharing your good news - the hope, indeed, that such results can and do happen is such a wonderful gift.
    Here's to your continuing good health!
    Annie
  • Heather H
    Heather H Member Posts: 11
    #18
    Thanks for sharing Barb
    My sister just found out that she has UPSC from an endometrial biopsy and sees the gyn-oncologist today. We are all extremely anxious as we have heard the cancer is aggressive. It is wonderful to have the gift of hope from you! You Mary Ann and Annie are in my prayers.
  • Rewriter
    Rewriter Member Posts: 493 Member
    #19
    Heather H said:

    Thanks for sharing Barb
    My sister just found out that she has UPSC from an endometrial biopsy and sees the gyn-oncologist today. We are all extremely anxious as we have heard the cancer is aggressive. It is wonderful to have the gift of hope from you! You Mary Ann and Annie are in my prayers.

    Wanted to add to the HOPE
    I had surgery in May 2008 for UPSC, had six rounds of carbo/taxol and five brachytherapy treatments, and have been NED ever since. I'm not sure whether we count from date of surgery or end of treatment, but I am a good three years NED in any case.


    Hope and love,

    Jill
  • jazzy1
    jazzy1 Member Posts: 1,379
    #20
    RoseyR said:

    ANYONE WITH MMMT NED AFTER THREE TO FOUR YEARS?

    Thanks so much for showing that some of us can gain really long remissions, perhaps even cures, from even aggressive tumors.

    Along those lines am wondering if anyone has been NED for three or more years after a diagnosis of uterine carcinosarcoma (formerly called MMMT), and if so, do you have any tips on your diet, supplements, or exercise?

    Appreciatively,
    Rosey

    Rosey & Cleo
    I'm MMMT as well. Now I'm counting time from post treatments which would be little over 2 years NED or 3 years from diagnosis (Feb '09) start of treatments. Not sure what the proper timing is for NED...ideas?

    My doc as well was very aggressive with treatments, in fact, a few times I told him didn't have much side affects from treatments, told me "that's great, as I'm giving you some really potent drugs which are very strong".

    I've learned most all of my new ways of eating from many here -- anti cancer foods, alkaline/acidic 80-20 ratio, nothing with sugars or processed, lots of organic foods, no red meat,chicken; small amounts of fish (ones with less mercury), green tea, many antioxidant foods; very limited on supplements as try to get most of vits from daily food intake; lots of deep breathing exercise, yoga and destressing. Just learning to enjoy life and take each day as it comes.

    How about you Rosey...any thoughts???

    Jan
  • sunflash
    sunflash Member Posts: 197 Member
    #21
    Rewriter said:

    Wanted to add to the HOPE
    I had surgery in May 2008 for UPSC, had six rounds of carbo/taxol and five brachytherapy treatments, and have been NED ever since. I'm not sure whether we count from date of surgery or end of treatment, but I am a good three years NED in any case.


    Hope and love,

    Jill

    Thanks all
    Barb and others,
    Thanks for sharing and offering hope to us newbies to this type of cancer. It really helps to read how others are doing well after treatment!

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