gleason score of 9

rede2fite said:

My score I
I have a score of 9 and a PSA of 4.38 and my Dr. Says all hell is going to break loose. We're talking pre-radiation, surgery, and hormone shots. DOES THAT SEEM RIGHT?

mrspjd said:

obtain multiple opinions from many PCa specialists
rede,

You seem to understand the seriousness of your diagnosis but, IMHO, any doctor who advises "AHIGBL" is unprofessional and doing you a dis-service. In a timely manner, please seek many (2nd, 3rd) opinions from OTHER PCa specialists BEFORE you agree to any PCa treatment. If at all possible, try to locate & consult with experienced and skilled radiation oncologists, urologic surgeons, and especially, an oncologist who specializes in treating PCa patients (and whose speciality is not surgery, urology, or radiation). Be prepared for your appts by bringing along any and all copies of your test reports such as your biopsy report, bone scan, CT scan, MRI or E-MRI, etc.

I like your attitude...ready to fight! Fight on! Good luck.

hunter49 said:

Sorry to hear about your
Sorry to hear about your diagnosis. You have an aggressive disease by your numbers and I would guess there is a good chance it broke throught the wall of the prostate. That being said I would feel surgery is not the best options. Johns Hopkins has a diagnostic clinic they do every other week. You can go there they examine you and your pathology report. Then some of the top doctors discuss your stage and best course of treatment. They are excellent.This program will give you a great amount of good information. I would absolutely go there and probably get treated there as well. If your interested let me know I will send you contact information. Good luck you will do fine with the proper treatment. Stay calm and focus on today as tomorrow is waiting already.

hunter49 said:

Hopkins
The number to call is the scheduling center 410 502 8000. It was great for me. i was on the fence about what treatment to proceed with. I met with 3 of the top people in the world including Alan Partin who developed the Partin table for the disease spreading reoccurring etc. My slides were reviewed by one of the top pathaologists in the country and they all met to advise me on the course of treatment. Good luck let me know how it goes.
Doug R.

hunter49 said:

Hopkins
Hey VG.
Thank you for the support of my post. You actually made me feel good about my outcome at JH as all the doctors said surgery for me. However, there were 5 others in the MDC and 2 were recomended a watch and wait and 3 radiation. They were very analytical about wht they did.One of the men who they suggested radiation was 58 and had a 4+4. It was really a great experience especially if you were not well informed about the disease. Hope you are doing well. Keep fighting and kick its ****. Good luck.
Doug
ps no idea why this came out red

hunter49 said:

when I typed a thank u to u
when I typed a thank u to u it was showing up red thought you would see it that way when posted no biggie. Scheduled surgery fro next Thursday. Every doctor recomended it including 3 radiologists. oh well here goes

VascodaGama said:

Hunter; Happy for the News
Doug

I am sorry but could not interpret well your “telepathic wireless” communication. I am from a non English speaking country so that my vocabulary is limited. With the help of Mrs PJD, I am taking it as your decision for surgery. You shouldn’t be apprehended with what others in this boat think on your choice for a treatment. We all work hard to get to that decisiveness and once satisfied; SURELY our decision is the best. Be confident.

I want to congratulate you and hope it will “terminate” this harsh passage in you and your family’s life.

You can count on our support in your journey ahead. Please let us know more about happenings.

Wishing you the best.
VGama

BERTB said:

Congratulations!
Yes tspoon, this is a great site. I'm 61 and also G-9 with a PSA of 5.2 when dx'ed in April of this year. I'm just starting this journey and hoping for results like yours. Another great site I found is HealingWell.com. There are many men with high G's there also.
Good luck and I hope you continued success.

tonahawk899 said:

To the Rake
I'm 63, robotic prostatectomy on May 21,2010, similar symptoms and treatments, I'm 20 months out with still less than 0.08 Psa, although climbing a little over the last 3 months, will have another Psa test and testosterone around February 19, hoping for the best, I also had Adjuvant therapy, Casodex and Lupron for 4 months, followed by 34 sessions on IMRT. The **** got one of my SV. I'm still pretty active, hunt, fish, walk, shovel a hell of a lot of snow(Park City, Utah), life is great with every day a blessing from God, take some supplements, eat a lot of wild game, red wine, green tea, etc, write me at tonahawk@msn.com for further information, God Bless all of you on this forum, sincerely, my prayers and thoughts are with everyone of you everyday, the only ones who understand how this really affects your life are you guys, Tony

2ndBase said:

Same Gleason
Mine was 9, had already spread and was told surgery was not an option. Had one Lupron shot and 40 radiation treatments. I was 52 then and am 59 today after being given maybe 2 years to live. I go the stress out of my life and know that is a major reason for my long survival. My psa was 24 when dx and is now well over 100 but I do not worry about it and see no long term benefit from further treatment as I choose a better quality of life over the side effects of treatment at this point. If your cancer has already spread then you need to think about quality of life alot because there are many side effects to any treatment. Do not stress about it and all the best to you.