Newly diagnosed

ybrlabs
ybrlabs Member Posts: 11
in Uterine/Endometrial Cancer #1
Hi all,

I'm happy to have found these boards even though I wish I didn't need them. I'm Sandy and I live near Frederick, MD. I had abnormal cells of unknown origin on my pap so my family physician referred me to a gyn. Based on ultrasound and the pap results, the gyn performed a D&C with hysteroscopy on 10/20. She asked my husband and I to come in her office the following Monday and gave me the diagnosis of uterine cancer. She first said the results indicated it was papillary seorus adenocarcinoma of the uterus but further testing was being performed. She called me that evening to let me know that they could not confirm the initial type of cancer. It's still cancer but the "good" news is that it may be normal cancer. It feels weird to say that is good news. My samples have been sent to either Mayo or Hopkins to determine type and I should have results in a few days. The waiting is killing me! I'm 44 years old with no symptoms. I'm taking it one day at a time and scheduling all of my testing and other doctor consults. My job is being accommodating and letting me leave for appointments with short notice. I have supportive family and friends.

Thanks for letting me share

Sandy
«13

Comments

  • kkstef
    kkstef Member Posts: 688 Member
    #2
    Hi Sandy
    Sandy, I am sorry that you have a need to use this site, but you came to a good place. Lots of good info and supportive women here!

    I can understand your anxiety ....the waiting is always the worst! Please keep us posted on what you find out. And feel free to ask any questions that pop into you mind. There are lots of good threads here for those newly diagnosed so read those as that should answer many of your questions.

    In the meantime, try to relax and do things that you enjoy doing!

    Karen
  • daisy366
    daisy366 Member Posts: 1,458 Member
    #3
    Sandy
    Hi there, Sandy. Great pix!!! I'm glad you found this support group. Hopefully you don't have uterine papillary serous carcinoma (UPSC). And when cancer is involved, the good cancer is better than the bad cancer. Sick humor, isn't it!!!!

    Hang in there. It's good that your husband is in the loop from beginning. Nice that your doc thought to ask him to come.

    I'm a UPSC sister. There are many here. Just some basics FYI - get a good gynecologic oncologist to do surgery, get tissue assay, take someone with you to appointments, and get copies of your records and 2nd opinion if you want. Keep the faith and take one step at a time - trying not to get too far ahead. This journey has lots of bumps in the road.

    We are here for you. Mary Ann
  • Songflower
    Songflower Member Posts: 608
    #4
    daisy366 said:

    Sandy
    Hi there, Sandy. Great pix!!! I'm glad you found this support group. Hopefully you don't have uterine papillary serous carcinoma (UPSC). And when cancer is involved, the good cancer is better than the bad cancer. Sick humor, isn't it!!!!

    Hang in there. It's good that your husband is in the loop from beginning. Nice that your doc thought to ask him to come.

    I'm a UPSC sister. There are many here. Just some basics FYI - get a good gynecologic oncologist to do surgery, get tissue assay, take someone with you to appointments, and get copies of your records and 2nd opinion if you want. Keep the faith and take one step at a time - trying not to get too far ahead. This journey has lots of bumps in the road.

    We are here for you. Mary Ann

    Uterine Cancer
    You probably have uterine cancer of the endometroid; ask medical records of a copy of your records or ask your Doctor. I agree with Daisy, (I have known her a long time!) take it slower and be sure to get tissue assays for possible chemo. Also remember the internet is behind on statistics and information; so women are actually living longer with this.

    A magazine called oncology stats can give you up to date infor and will email you about news.

    We are here for you; I've learned to live with the stress now. Amazing but I really have. My hubby and I actually have fun!

    Love,
    Diane
  • CindyGSD
    CindyGSD Member Posts: 190
    #5
    daisy366 said:

    Sandy
    Hi there, Sandy. Great pix!!! I'm glad you found this support group. Hopefully you don't have uterine papillary serous carcinoma (UPSC). And when cancer is involved, the good cancer is better than the bad cancer. Sick humor, isn't it!!!!

    Hang in there. It's good that your husband is in the loop from beginning. Nice that your doc thought to ask him to come.

    I'm a UPSC sister. There are many here. Just some basics FYI - get a good gynecologic oncologist to do surgery, get tissue assay, take someone with you to appointments, and get copies of your records and 2nd opinion if you want. Keep the faith and take one step at a time - trying not to get too far ahead. This journey has lots of bumps in the road.

    We are here for you. Mary Ann

    Funny...
    Whenever anyone asks what kind of cancer I have, I say..."not the good kind". I think it's funny, but I'm not sure everyone does.

    Cindy
    MMMT (carcinosarcoma) Stage 2 high grade.
  • CindyGSD
    CindyGSD Member Posts: 190
    #6
    Sandy
    I read somewhere that most unterine cancers have up to an 80% cure rate so there really could be some good news even if you do have cancer.

    My sister also read this information without understanding that mine was not "normal" uterine cancer. I didn't correct her when she told me.

    Take care,
    Cindy
  • JoAnnDK
    JoAnnDK Member Posts: 275
    #7
    CindyGSD said:

    Sandy
    I read somewhere that most unterine cancers have up to an 80% cure rate so there really could be some good news even if you do have cancer.

    My sister also read this information without understanding that mine was not "normal" uterine cancer. I didn't correct her when she told me.

    Take care,
    Cindy

    Hopkins
    Sandy, if you want the name of a gynecological oncologist at Hopkins, let me know. That is where I went for my surgery and treatment, etc. You are not that far away.....

    50 percent of my doctor's patients are from out of state and she does the initial surgery and then they get chemo near home. She has patients from really far away.....she shares surveillance with their local doctors.

    JoAnn
  • txtrisha55
    txtrisha55 Member Posts: 693 Member
    #8
    CindyGSD said:

    Funny...
    Whenever anyone asks what kind of cancer I have, I say..."not the good kind". I think it's funny, but I'm not sure everyone does.

    Cindy
    MMMT (carcinosarcoma) Stage 2 high grade.

    I tell people I have the rare kind which means I'm special
    They tell me they already knew I was special in the sacrastic way.

    Sandy, Sorry to hear that you have been told you have cancer. There is a lot of information of this site. Wish I had found it before I started my journey back in March this year. Read as much as you can but remember that each person's journey is different and each case and treatment is different. That is what my doctor told me and try not to read the general internet information try to stay with true cancer related internet sites like National Cancer Institute, Amercian Cancer Society, Cancer Journals as they will have the more up to date information.

    I really got freaked out when told I had cancer on April 1st, and typed in the type and read I had a 50/50 shot of living past 3-5 years. Shut my office door and cried like a baby. Then had to get back in to the mode of What God brings to you, He will help you through it. This to shall pass. Good Attitude will get you through it.

    Good Luck on your journey.trish
  • ybrlabs
    ybrlabs Member Posts: 11
    #9
    JoAnnDK said:

    Hopkins
    Sandy, if you want the name of a gynecological oncologist at Hopkins, let me know. That is where I went for my surgery and treatment, etc. You are not that far away.....

    50 percent of my doctor's patients are from out of state and she does the initial surgery and then they get chemo near home. She has patients from really far away.....she shares surveillance with their local doctors.

    JoAnn

    Thanks
    Thanks for the advice and support! I'm going to see a doctor at Sinai in Baltimore, MD. I've been trying to learn all I can from "legit" websites. Luckily, I work in science and have access to the medical journals. I'd appreciate any doctor recommendations in the Baltimore/DC area!

    Thanks

    Sandy
  • JoAnnDK
    JoAnnDK Member Posts: 275
    #10
    ybrlabs said:

    Thanks
    Thanks for the advice and support! I'm going to see a doctor at Sinai in Baltimore, MD. I've been trying to learn all I can from "legit" websites. Luckily, I work in science and have access to the medical journals. I'd appreciate any doctor recommendations in the Baltimore/DC area!

    Thanks

    Sandy

    CSN e-mail
    Sandy, I am sending the doctor info via CSN e-mail, which you can find in the pinkish box on the left side of this page.

    Are you going to Dr Abbas at Mt. Sinai?....he did all his training at Hopkins - internship, fellowship, residency. And he has a practice in Frederick, I see.

    Best wishes on this journey that none of us wants to be on....

    JoAnn
  • ybrlabs
    ybrlabs Member Posts: 11
    #11
    The second opinion on my biopsy results are in and they confirmed that I do have UPSC. I'm still in shock and denial. The gyn/oncologist, Dr Abbas at Sinai in Baltimore, MD, said I'm not a good candidate for the DaVinci surgery I will have the traditional surgery since he wants to look and feel around. I haven't met him yet but will on 11/9. The good news is that my CT scan and chest x-ray came back clear. My blood work is ok. Today I'm having a colonoscopy. I told my 12 yr old daughter yesterday about my diagnosis. I'm preparing her for battle. Can anyone recommend a good resource for reading about my future journey?

    Thanks,

    Sandy
  • JoAnnDK
    JoAnnDK Member Posts: 275
    #12
    ybrlabs said:

    The second opinion on my biopsy results are in and they confirmed that I do have UPSC. I'm still in shock and denial. The gyn/oncologist, Dr Abbas at Sinai in Baltimore, MD, said I'm not a good candidate for the DaVinci surgery I will have the traditional surgery since he wants to look and feel around. I haven't met him yet but will on 11/9. The good news is that my CT scan and chest x-ray came back clear. My blood work is ok. Today I'm having a colonoscopy. I told my 12 yr old daughter yesterday about my diagnosis. I'm preparing her for battle. Can anyone recommend a good resource for reading about my future journey?

    Thanks,

    Sandy

    Dr. Abbas/Hopkins
    Sandy, I am not surprised that your doctor is not using daVinci. Hopkins-trained doctors seem to like to get in there and feel around. My doctor told me that she never would have found my enlarged lymph node with daVinci because I have such a deep pelvis (that is my best recall of her reason).

    UPSC is so rare that I am not sure any books have been written about it....but lots out there about going through cancer treatments.
  • JoAnnDK
    JoAnnDK Member Posts: 275
    #13
    JoAnnDK said:

    Dr. Abbas/Hopkins
    Sandy, I am not surprised that your doctor is not using daVinci. Hopkins-trained doctors seem to like to get in there and feel around. My doctor told me that she never would have found my enlarged lymph node with daVinci because I have such a deep pelvis (that is my best recall of her reason).

    UPSC is so rare that I am not sure any books have been written about it....but lots out there about going through cancer treatments.

    thoughts
    My niece, who is a nurse, wrote to me just after my diagnosis:

    "You need to cry. How does life change so suddenly? You are crying for yesterday when everything was fine and now for tomorrow when faced with the unknown. It is a lot to take in and process. In a blink of an eye, it's "what the hell just happened?" Again, I am also at a loss for words on how to imagine how you feel. I am scared also, yet relieved you are being treated at a great place with up to the minute knowledge of treatments and clinical trials. I really don't know much about the type of cancer you have, but don't linger over stats and numbers. YOU are up against your cancer and need to be positive and optimistic for your fight. Visualization can help so much. Picture it as an entity that you can see and destroy with all your treatments. We can win this, one small step at a time. Just get through today."
  • snowbird_11
    snowbird_11 Member Posts: 160
    #14
    ybrlabs said:

    The second opinion on my biopsy results are in and they confirmed that I do have UPSC. I'm still in shock and denial. The gyn/oncologist, Dr Abbas at Sinai in Baltimore, MD, said I'm not a good candidate for the DaVinci surgery I will have the traditional surgery since he wants to look and feel around. I haven't met him yet but will on 11/9. The good news is that my CT scan and chest x-ray came back clear. My blood work is ok. Today I'm having a colonoscopy. I told my 12 yr old daughter yesterday about my diagnosis. I'm preparing her for battle. Can anyone recommend a good resource for reading about my future journey?

    Thanks,

    Sandy

    Sandy I am sorry to hear
    Sandy I am sorry to hear your UPSC was confirmed however you will not know the Stage 'til after surgery and it may very well have been caught early. I know I was in shock when I heard the UPSC diagnosis. That was 4 years ago and I was Stage IVB but I'm still here, perhaps a little the worse for wear but I am also older than you. I also was diagnosed at age 41 with Stage 2B breast cancer, which recurred 6 years later. In all, its been 18.5 years I've been battling cancer - surgeries, chemos, radiation treatments - the body is truly an amazing thing! My kids were 11 and 15 at first cancer diagnosis and I was filled with such fear, presented with such gloomy statistics - would I even see them thru high school? But today they are both college educated, happily married, and I'm now a grandma! We have such amazing resilience!

    As far as books, my husband at the time of my breast cancer gave me a book Getting Well Again by the Simontons, husband and wife team. I never did really engage with it but revisited it in the last year and so wish I had way back then. It is an excellent book for mind and spirit. Also, Anti-Cancer, A New Way of Life by David Servan-Schreiber, MD, is an excellent book for all aspects of body, mind, and spirit. And, this site with the shared information and experiences, the support, is wonderful. UPSC tends to behave and is treated like ovarian cancer and you may well find it helpful to visit that board as well.

    You are in my thoughts for an early Stage and great prognosis!
    Annie
  • Ro10
    Ro10 Member Posts: 1,561 Member
    #15
    ybrlabs said:

    The second opinion on my biopsy results are in and they confirmed that I do have UPSC. I'm still in shock and denial. The gyn/oncologist, Dr Abbas at Sinai in Baltimore, MD, said I'm not a good candidate for the DaVinci surgery I will have the traditional surgery since he wants to look and feel around. I haven't met him yet but will on 11/9. The good news is that my CT scan and chest x-ray came back clear. My blood work is ok. Today I'm having a colonoscopy. I told my 12 yr old daughter yesterday about my diagnosis. I'm preparing her for battle. Can anyone recommend a good resource for reading about my future journey?

    Thanks,

    Sandy

    Sandy, so sorry for your diagnosis of UPSC
    I am sorry you have to join the "sisterhood of UPSC". It is very shocking to hear. We can all relate to how you are feeling. I pray that your surgery will reveal an early stage. After the surgery you will know what the plan is. Glad that your CAT scan and chest x-ray were clear. Feel free to come back with any questions you may have. There are many on this site that have completed their treatments, some are new, and some (like me) have had recurrences. The unknown is very scary, but try to take one day at a time. Get through the surgery first. Then see what the plan is. In peace and caring.
  • ybrlabs
    ybrlabs Member Posts: 11
    #16
    Ro10 said:

    Sandy, so sorry for your diagnosis of UPSC
    I am sorry you have to join the "sisterhood of UPSC". It is very shocking to hear. We can all relate to how you are feeling. I pray that your surgery will reveal an early stage. After the surgery you will know what the plan is. Glad that your CAT scan and chest x-ray were clear. Feel free to come back with any questions you may have. There are many on this site that have completed their treatments, some are new, and some (like me) have had recurrences. The unknown is very scary, but try to take one day at a time. Get through the surgery first. Then see what the plan is. In peace and caring.

    Doctors now not sure
    I met with my gyn oncologist on 11/9 and he went over the pathology report with me in detail. The concern now is they can't identify if the cells are from the uterus or ovary. I'm scheduled to have an abdominal hysterectomy/exploratory laparotomy on 11/22. I'm really nervous but have faith in my doctor. To top it off, one of my miniature horses managed to kick me in my groin the other day and I now have a nice hoof shaped bruise. Guess he wanted the doctors to know I belonged to him. At least it wasn't one of my big horses.

    Any advice for me regarding the surgery and recovery? I don't do well in hospitals and will be fighting to get out ASAP! Not the best way to spend Thanksgiving but at least I know it will be done.

    Thanks

    Sandy
  • daisy366
    daisy366 Member Posts: 1,458 Member
    #17
    ybrlabs said:

    Doctors now not sure
    I met with my gyn oncologist on 11/9 and he went over the pathology report with me in detail. The concern now is they can't identify if the cells are from the uterus or ovary. I'm scheduled to have an abdominal hysterectomy/exploratory laparotomy on 11/22. I'm really nervous but have faith in my doctor. To top it off, one of my miniature horses managed to kick me in my groin the other day and I now have a nice hoof shaped bruise. Guess he wanted the doctors to know I belonged to him. At least it wasn't one of my big horses.

    Any advice for me regarding the surgery and recovery? I don't do well in hospitals and will be fighting to get out ASAP! Not the best way to spend Thanksgiving but at least I know it will be done.

    Thanks

    Sandy

    Sandy
    I'm sure when they do the surgery they will find out more. Please request a functional profile (assay) of your tissue.

    Re: surgery and recovery. No real words of wisdom besides staying hydrated. They will get you up and walking soom after surgery.

    Try to not worry and enjoy your horses. They are beautiful!!!

    Mary Ann
  • Kaleena
    Kaleena Member Posts: 2,088 Member
    #18
    ybrlabs said:

    Doctors now not sure
    I met with my gyn oncologist on 11/9 and he went over the pathology report with me in detail. The concern now is they can't identify if the cells are from the uterus or ovary. I'm scheduled to have an abdominal hysterectomy/exploratory laparotomy on 11/22. I'm really nervous but have faith in my doctor. To top it off, one of my miniature horses managed to kick me in my groin the other day and I now have a nice hoof shaped bruise. Guess he wanted the doctors to know I belonged to him. At least it wasn't one of my big horses.

    Any advice for me regarding the surgery and recovery? I don't do well in hospitals and will be fighting to get out ASAP! Not the best way to spend Thanksgiving but at least I know it will be done.

    Thanks

    Sandy

    Hi Sandy:
    Sorry you have to
    Hi Sandy:

    Sorry you have to go through this. When I had my hysterectomy (they didn't know I had cancer at that time), the path came back and found it both in my uteris and one ovary. After another surgery for staging, it was determined I had endometrial adenocarcinoma (I was 45 years old). However, they treated me as ovarian. (You can get more tests approved this way). By the way, I am now 51 years old.

    Some advice, see what else they are going to remove during your hysterectomy. I had a complete hysterctomy (uteris, tubes, ovaries). Once they found the cancer, and during the staging, they removed my appendex, omentum, and some lymph nodes. The apendix and omentum were removed because my doctor at the time said it was a place for recurrence because it got more blood flow???

    Other advice for after surgery? Move as much as possible. In order to be released from hospital, you have to have good bowel movements. Try to get off pain medication as soon as possible, becuase it can cause constipation. It usually is only a 3 day stay. (and I had the traditional surgeries).

    My best to you for a speedy recovery.

    Kathy
  • txtrisha55
    txtrisha55 Member Posts: 693 Member
    #19
    ybrlabs said:

    Doctors now not sure
    I met with my gyn oncologist on 11/9 and he went over the pathology report with me in detail. The concern now is they can't identify if the cells are from the uterus or ovary. I'm scheduled to have an abdominal hysterectomy/exploratory laparotomy on 11/22. I'm really nervous but have faith in my doctor. To top it off, one of my miniature horses managed to kick me in my groin the other day and I now have a nice hoof shaped bruise. Guess he wanted the doctors to know I belonged to him. At least it wasn't one of my big horses.

    Any advice for me regarding the surgery and recovery? I don't do well in hospitals and will be fighting to get out ASAP! Not the best way to spend Thanksgiving but at least I know it will be done.

    Thanks

    Sandy

    Surgery & recovery
    I can talk a little bit on this even though I did not have USPC, I was diagnosed with Malignant Mixed Mullerian Tumor (MMMT). The tumor itself was 5.5x5 cm and a 1A in the uterus but they found two microscopic cells in 1 lymph node and bumped it up to a stage 3c. I had the abdominal hysterectomy/exploratory 8 April 2011. The Gyn Onc Dr said surgery would last 5-6 hours but only lasted 3.5. The moving to regular room after recovery was hard as they wanted me to move from gurney to bed. I had 1 large man and 1 tiny nurse to help move me. Not fun, hurt really bad. But after I got settled Morphine push was nice. The next day the nurses told me I had to get up and set in a chair. Friends that had hysterectomies before told me to put a pillow on my stomach and push down as you tried to get up as it would help. They told me that the pillow would become my best friend during recovery. IT did work and I continued doing that for about 4 weeks after surgery, used it in the car too. The nurses had goals for me every day and would write them on a white board. Get up sit in chair, go to bathroom, walk the halls, take a shower (with nurse help), go for longer walk, etc. They also gave me a tubey thing to work on my breathing so my lungs did not get fluid build-up in them. You would put it in your mouth and breathe in and had to move the internal ball up to a certain number. I had to do this for 15 minutes times 3 times a day. They kept moving the number up too!
    I basically took myself off the morphine as I did like it but made me goofy. I kept till Sunday. Get ready to lose all sense of modesty as I was UT Southwestern Hospital were they also do teaching, so lots of Fellow Drs come in and out of room and check you out. They came in the AM and in the PM. I stayed the Hospital for 7 days Friday night till Friday morning. I went home with staples and a drain bag. I had tubes, ovaries, cervix, uterus, 14 lymph nodes and the omentum removed. I stayed off work for 8 weeks for surgery. Four weeks after surgery started Chemo (carbo/taxol combination) on 6 May. Every 21 days for 6 treatments ended 22 August. Hair fell out 25 May. I think the funniest was that my nasal hair fell out too! How can a person try to avoid getting sick when they have no protection against breathing in germs up their noses. I did not understand that. I chose not to do a wig, in Texas in the summer is HOT (we broke the record of hottest days in summer this year) so could not wear hats or scarves, I sweated too much. I just went bald back to work and out in public.
    I am NED as of 12 Sep when I had my first CT scan after all the chemo. My CA125 was 15 before surgery, went to 169 before chemo but it dropped each chemo treatment till now it is 19 as of Sep. I go back for another CT scan 22 Nov and blood work 2 Dec then see the GynOnc Dr on 5 Dec.
    Trying to change diet and exercise more, the change in diet is hard to break after 55 years of eating what I wanted. Maybe that is why I got the cancer, but there are healthy people on this site that got it too, so only God knows. Just remember that He is there to help carry you through this journey. There is a lot of information on this site and a lot of women to help answers questions and help with support if you need it.
    trish
  • ingridjee
    ingridjee Member Posts: 6
    #20
    txtrisha55 said:

    Surgery & recovery
    I can talk a little bit on this even though I did not have USPC, I was diagnosed with Malignant Mixed Mullerian Tumor (MMMT). The tumor itself was 5.5x5 cm and a 1A in the uterus but they found two microscopic cells in 1 lymph node and bumped it up to a stage 3c. I had the abdominal hysterectomy/exploratory 8 April 2011. The Gyn Onc Dr said surgery would last 5-6 hours but only lasted 3.5. The moving to regular room after recovery was hard as they wanted me to move from gurney to bed. I had 1 large man and 1 tiny nurse to help move me. Not fun, hurt really bad. But after I got settled Morphine push was nice. The next day the nurses told me I had to get up and set in a chair. Friends that had hysterectomies before told me to put a pillow on my stomach and push down as you tried to get up as it would help. They told me that the pillow would become my best friend during recovery. IT did work and I continued doing that for about 4 weeks after surgery, used it in the car too. The nurses had goals for me every day and would write them on a white board. Get up sit in chair, go to bathroom, walk the halls, take a shower (with nurse help), go for longer walk, etc. They also gave me a tubey thing to work on my breathing so my lungs did not get fluid build-up in them. You would put it in your mouth and breathe in and had to move the internal ball up to a certain number. I had to do this for 15 minutes times 3 times a day. They kept moving the number up too!
    I basically took myself off the morphine as I did like it but made me goofy. I kept till Sunday. Get ready to lose all sense of modesty as I was UT Southwestern Hospital were they also do teaching, so lots of Fellow Drs come in and out of room and check you out. They came in the AM and in the PM. I stayed the Hospital for 7 days Friday night till Friday morning. I went home with staples and a drain bag. I had tubes, ovaries, cervix, uterus, 14 lymph nodes and the omentum removed. I stayed off work for 8 weeks for surgery. Four weeks after surgery started Chemo (carbo/taxol combination) on 6 May. Every 21 days for 6 treatments ended 22 August. Hair fell out 25 May. I think the funniest was that my nasal hair fell out too! How can a person try to avoid getting sick when they have no protection against breathing in germs up their noses. I did not understand that. I chose not to do a wig, in Texas in the summer is HOT (we broke the record of hottest days in summer this year) so could not wear hats or scarves, I sweated too much. I just went bald back to work and out in public.
    I am NED as of 12 Sep when I had my first CT scan after all the chemo. My CA125 was 15 before surgery, went to 169 before chemo but it dropped each chemo treatment till now it is 19 as of Sep. I go back for another CT scan 22 Nov and blood work 2 Dec then see the GynOnc Dr on 5 Dec.
    Trying to change diet and exercise more, the change in diet is hard to break after 55 years of eating what I wanted. Maybe that is why I got the cancer, but there are healthy people on this site that got it too, so only God knows. Just remember that He is there to help carry you through this journey. There is a lot of information on this site and a lot of women to help answers questions and help with support if you need it.
    trish

    MMMT stage three same treatment
    Thank you Trish for sharing.
    I am going through the same treatment, same stage, same operation, from 7 lymph glands 1 was cancerous but had it also on the right tube and ovary, and the cervix.
    They said it is aggressive and thus I need aggressive treatment.
    Now one more round of chemo - I did not get a break on tiredness, bad mouth taste, bone pain. I also had allergic reaction to chemo and take it with steroids. In one month I have chemo and then maybe one good week after chemo of feeling well .
    I wonder how is radiation, some people say side effects are less than chemo . Well, I guess I will know.

    I am taking a day at the time, afterall it is almost impossible to plan anything but I do feel lots of uncertainty, specially because even though I work at home, I feel too tired to work, an I have sore throats and cannot speak on the phone. The STD pays dirt and I wonder if I could go back to work after radiation or even with radiation! ;)

    Thanks for sharing!
  • ingridjee
    ingridjee Member Posts: 6
    #21
    CindyGSD said:

    Sandy
    I read somewhere that most unterine cancers have up to an 80% cure rate so there really could be some good news even if you do have cancer.

    My sister also read this information without understanding that mine was not "normal" uterine cancer. I didn't correct her when she told me.

    Take care,
    Cindy

    MMMT stage three in treatment


    Cindy


    I am taking a day at the time, after all it is almost impossible to plan anything but as I said, I do feel lots of uncertainty, specially because cancer is expensive, I pay 20% on my health insurance, and my savings d willed.
    Even though I work from home, I feel too tired to work, an I have sore throats and cannot speak on the phone for a regular schedule. The STD- short term disability pays only 50% of my salary, and I live in NY! I wonder if I could go back to work after radiation or even with the radiation! ;)

    You are not alone.

    Thanks for sharing!

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