Just Diagnosed this Month
Comments
-
Karenbuzz99 said:Just diagnosed
I well remember that "deer in the headlights" feeling we had a year ago when Buzz was diagnosed and know how you must be feeling. This forum can be a real blessing as you endure the treatment. The PEG tube literally saved Buzz's life. Stay ahead of the nausea from the chemo by giving the anti-nausea meds before the symptoms appear. Call the doctor if you have any concerns. I made the mistake of trying to manage on my own then Buzz ended up in the hospital a week after his first chemo. There are a multitude of challenges which you will encounter and this forum can be invaluable. Karen
Thank you and God Bless You for your information. We will sure do that! Hope Buzz is doing well and take care of you~
Donna0 -
sweetblood22sweetblood22 said:PEG Tube
I had one as well, and it saved my life for sure.
Good recommendation on the calorie intake, as Marine said. Keep in mind that you may need even more calories than that, depending on how your body is doing. I was only 120 lbs, and I was taking in 2,000 to 2,400 calories a day, and I basically only maintained my weight through radiation. (it was after radiation, that I had problems and dropped all the weight) Always check with your nutritionist and monitor weight, and keep in mind that you may need to bump up the calories when your body is under the extreme and stressful conditions. I kept a journal of all calories, water, and fibre and potassium I put in every day, so I made sure I was getting what I needed.
Thanks and that is good to know. How are you doing now?0 -
Donnadonnahamblin said:sweetblood22
Thanks and that is good to know. How are you doing now?
Alive & Kickin'! Lot's of side effects that I deal with, but I'm hanging in there. Last weekend, was three years ago that I found my swollen lymph node, and started on this wild ride. Happy to be here three years later, doing as well as I am.0 -
Hi Donna
Welcome to the board/family. As always; really do wish our family would stop growing but glad you found us. Glad your husband is getting a PEG prior to treatment so we don't have to touch that topic. As mentioned; Sweet's Superthread is a great resource. I'd also recommend a couple books: Life Over Cancer, Anti-Cancer, Foods That Fight Cancer, China Study, Beating Cancer With Nutrition and Cancer on $5/day. Exercise is a strong ally in the fight; all he can tolerate daily without becoming exhausted. Proper nutrition is huge as well. Contrary to what you might hear now is not the time to abandon nutrition and eat whatever you can. Stay away from the canned PEG food that has high fructose corn syrup and maltodextrin as the main ingredients. There's some great recipes for making your own on the Superthread. Surround yourself with people that love you. Pray constantly. Watch funny shows. Listen to great music. Put a bird feeder up where your husband can see it when he's lying down and feeling crappy. Ask as many questions as you want of us and your docs and try to spend time in nature each day. Let us know how it goes as it goes. Stay strong,
AB0 -
Donna (and John)donnahamblin said:Karen
Thank you and God Bless You for your information. We will sure do that! Hope Buzz is doing well and take care of you~
Donna
Yes to John about the joking, and he and I are in total agreement about who best to advise on whether or not to get one- one's C team Drs, who know the specifics of the individual C and treatment they're gonna put the Patient thru.
Donna- as for the "blessing," what do you call something which allows you to eat when your mouth can no longer handle that function? A blessing, Donna. The specifics of my C and treatment took me south kinda fast, and I was so glad that I had it in place ahead of time. Not everyone goes there, but there's a number of us who consider the PEG like I do.
Again- everyone is different, though there is one major similarity we all share- WE SURVIVE, as your husband will.
believe
kcass0 -
PEGadventurebob said:Hi Donna
Welcome to the board/family. As always; really do wish our family would stop growing but glad you found us. Glad your husband is getting a PEG prior to treatment so we don't have to touch that topic. As mentioned; Sweet's Superthread is a great resource. I'd also recommend a couple books: Life Over Cancer, Anti-Cancer, Foods That Fight Cancer, China Study, Beating Cancer With Nutrition and Cancer on $5/day. Exercise is a strong ally in the fight; all he can tolerate daily without becoming exhausted. Proper nutrition is huge as well. Contrary to what you might hear now is not the time to abandon nutrition and eat whatever you can. Stay away from the canned PEG food that has high fructose corn syrup and maltodextrin as the main ingredients. There's some great recipes for making your own on the Superthread. Surround yourself with people that love you. Pray constantly. Watch funny shows. Listen to great music. Put a bird feeder up where your husband can see it when he's lying down and feeling crappy. Ask as many questions as you want of us and your docs and try to spend time in nature each day. Let us know how it goes as it goes. Stay strong,
AB
I believe Denny is 12 years out of treatment and he gust got a PEG tube to help him with gaining weight. I am right at 9 years passed my first treatment and am now also looking at getting a PEG tube because I can’t eat enough through my mouth anymore.
So Cheers to all the PEG people
Hondo0 -
PEG and support
Donna,
My husband, Jim also has a PEG. He is 6'2" and weiged 210 when he was healthy. He was also all muscle and very active. He started losing weight January 2011 and by March he was down 40 lbs. with very little muscle. He was diagnosed Mid May with stage 4 base of tongue with mfood ets to 2 lymph nodes. Recieved PEG before treatment started as he was having a hard time with pain when eating and the taste of food being bad.The PEG has been a blessing. His lowest weight during treatment was 160. He is back to 171 since finishing treatment mid August but has no muscle. Food is still bad tasting.
As for help from family and friends, I too am independent and would not ask for help. Looking back I wish I had not been. Something as simple as company during the long hours he slept would have benn helpful for me. Also ironing. I just could not get the energy to do it. I hate ironing and I guess I could not think about doing something I hated during all the other stresses. The ironing is still setting there and has grown a little. Now I am embaraased to ask someone to do it. What I am saying is, ask for help, evveen in the little things because they can become a mountain.
Praying for you both.
Debbie0 -
HondoHondo said:PEG
I believe Denny is 12 years out of treatment and he gust got a PEG tube to help him with gaining weight. I am right at 9 years passed my first treatment and am now also looking at getting a PEG tube because I can’t eat enough through my mouth anymore.
So Cheers to all the PEG people
Hondo
CHEERS TO ALL THE PEG PEOPLE!
If your 9 years passed your first treatment, why can't you eat enough through your mouth? Did the radiation destroy your eating capabilities? I'm confused.
Donna0 -
Debbiejim and i said:PEG and support
Donna,
My husband, Jim also has a PEG. He is 6'2" and weiged 210 when he was healthy. He was also all muscle and very active. He started losing weight January 2011 and by March he was down 40 lbs. with very little muscle. He was diagnosed Mid May with stage 4 base of tongue with mfood ets to 2 lymph nodes. Recieved PEG before treatment started as he was having a hard time with pain when eating and the taste of food being bad.The PEG has been a blessing. His lowest weight during treatment was 160. He is back to 171 since finishing treatment mid August but has no muscle. Food is still bad tasting.
As for help from family and friends, I too am independent and would not ask for help. Looking back I wish I had not been. Something as simple as company during the long hours he slept would have benn helpful for me. Also ironing. I just could not get the energy to do it. I hate ironing and I guess I could not think about doing something I hated during all the other stresses. The ironing is still setting there and has grown a little. Now I am embaraased to ask someone to do it. What I am saying is, ask for help, evveen in the little things because they can become a mountain.
Praying for you both.
Debbie
Thank you for your comments. I will ask for help because I know I won't be able to do this alone. I don't want to worry my husband by getting overwhelmed. That's the last thing he needs is to worry about me. Thanks for your prayers:-)
Donna0 -
ABadventurebob said:Hi Donna
Welcome to the board/family. As always; really do wish our family would stop growing but glad you found us. Glad your husband is getting a PEG prior to treatment so we don't have to touch that topic. As mentioned; Sweet's Superthread is a great resource. I'd also recommend a couple books: Life Over Cancer, Anti-Cancer, Foods That Fight Cancer, China Study, Beating Cancer With Nutrition and Cancer on $5/day. Exercise is a strong ally in the fight; all he can tolerate daily without becoming exhausted. Proper nutrition is huge as well. Contrary to what you might hear now is not the time to abandon nutrition and eat whatever you can. Stay away from the canned PEG food that has high fructose corn syrup and maltodextrin as the main ingredients. There's some great recipes for making your own on the Superthread. Surround yourself with people that love you. Pray constantly. Watch funny shows. Listen to great music. Put a bird feeder up where your husband can see it when he's lying down and feeling crappy. Ask as many questions as you want of us and your docs and try to spend time in nature each day. Let us know how it goes as it goes. Stay strong,
AB
Thank you very much for your comments. We have many people surrounding us with love and are blessed to find this site giving us more support. Will keep you informed as we go on this journey. PET scan and Marking is tomorrow.
Donna0 -
HONDO PEGdonnahamblin said:Hondo
CHEERS TO ALL THE PEG PEOPLE!
If your 9 years passed your first treatment, why can't you eat enough through your mouth? Did the radiation destroy your eating capabilities? I'm confused.
Donna
Donna, in Tim's (HONDO) case, if I'm not mistaken, he has had pretty extensive damage to his jaw bone and teeth. To the point he can barely open his mouth actually.
I don't mean to steal his story, and I'm sure he will respond soon and give you the exacts....
Best,
John0 -
Donnadonnahamblin said:Hondo
CHEERS TO ALL THE PEG PEOPLE!
If your 9 years passed your first treatment, why can't you eat enough through your mouth? Did the radiation destroy your eating capabilities? I'm confused.
Donna
John is correct, in my case the NPC cancer came back for a rematch and I had to do radiation all over again a second time. The treatment was worse then the first and it damaged my jaw so that it will not open very far and makes it hard to eat. But with all of that I still enjoy life and still do the things I love to do except Scuba Diving.
John: you know me any time my brother, as long as you are talking good about me I know you not talking bad. Ha ha ha
Hondo0
Discussion Boards
- All Discussion Boards
- 6 CSN Information
- 6 Welcome to CSN
- 121.8K Cancer specific
- 2.8K Anal Cancer
- 446 Bladder Cancer
- 309 Bone Cancers
- 1.6K Brain Cancer
- 28.5K Breast Cancer
- 397 Childhood Cancers
- 27.9K Colorectal Cancer
- 4.6K Esophageal Cancer
- 1.2K Gynecological Cancers (other than ovarian and uterine)
- 13K Head and Neck Cancer
- 6.4K Kidney Cancer
- 671 Leukemia
- 792 Liver Cancer
- 4.1K Lung Cancer
- 5.1K Lymphoma (Hodgkin and Non-Hodgkin)
- 237 Multiple Myeloma
- 7.1K Ovarian Cancer
- 61 Pancreatic Cancer
- 487 Peritoneal Cancer
- 5.5K Prostate Cancer
- 1.2K Rare and Other Cancers
- 539 Sarcoma
- 730 Skin Cancer
- 653 Stomach Cancer
- 191 Testicular Cancer
- 1.5K Thyroid Cancer
- 5.8K Uterine/Endometrial Cancer
- 6.3K Lifestyle Discussion Boards