My update - good news
Also my cough and wheezing, which started in April, and was likely pneumonitis from the stereotactic radiation to the lungs this past January, is finally gone as of September.
Ah, the long released breath……and breathing in again…..and then out….the reassuring rhythm of breathing.
The watchful waiting continues, hopefully for a long, long time.
My oncologists are pleased too, at how healthy and strong I am right now, though being oncologists, and wanting to do their job completely, they remind me of "progressive disease" and "likely chemo will be needed in the future" but that "I am doing well without it now". My next CT (chest, abdomen and pelvis) is scheduled for early January.
I breathe in the fall air, taking in the reds of the oaks and yellows of the aspens in Parley's Canyon on the ride home. I breathe in the sweaty, horsey smell while riding my Morgan, on an unseasonably warm Sunday afternoon after getting back home to Wyoming.
I continue to focus on five areas to stay as healthy as I can:
1) functional (how supportive is my home and/or work front? are my basic needs taken care of? am I keeping my life simple and light?),
2) physical (how fit am I? how is my diet? how does my body move?),
3) psychological (how is my mental frame of mind? do I keep curiosity right in the forefront? do I check frequently to see if I'm believing my thoughts rather than seeing what is? )
4) emotional (how am I able to maintain a confident, resilient outlook? how do I ride the ups and downs of good news/bad news? what habits do I need to cultivate? to change?)
5) spiritual (ultimately the question is about life and death, and we all face it if we inhabit a body on the planet. who am I? where did I come from? where do I go? )
In addition to the above, I will continue with my weekly IV infusions (one of IV mistletoe, and two of IV Vitamin C). I also will travel to Ann Arbor, MI in November for a 2 week retreat to visit with my doctor there who oversees the IV Vitamin C and mistletoe (Iscador). He has trained in oncology in Germany and at the Lukas Klinik in Arlesheim, Switzerland.
My oncology nurse and I have reached the point in our relationship where we are exchanging home-made canned goods (apple butter from her and jalapeños en escabeche from my husband). She and my husband love to talk about how good the jalapeños are with steak sandwiches. I haven't figured out how to juice them :-)
Mostly I feel grateful– for all the support, love and care, from my extended medical team and coaches, my family and friends, near and far,, my four-leggeds, my cancer survivor buds, and for all the natural beauty all around me, and in all the places I've been fortunate enough to visit on this planet. I feel grateful for my resilient body.
I really, really wish there were a cure for cancer. I grieve for everyone that I know that has been lost to this disease, for their families who deal with the loss of loved ones.
I grieve for all the suffering we all go through no matter the cause of the loss or suffering.
The Buddha said, "Compassion reconciles us to our own destiny by showing us the life of others, often much harder than ours."
I struggled writing this update and then found an article "Living With Chronic Illness Builds Courage" which I'll post separately.
all the best, Leslie
Comments
-
Leslie
Leslie,
It is sooooo good to hear from you. I love your good news! Thank you for sharing with us. Thank you also for sharing your balanced, peaceful life plan with us. I love reading about the way you are living your life.
All my aloha to you my friend.
Aloha,
Kathleen0 -
LeslieJohn23 said:Leslie -
Re:
"Buddha said, "Compassion reconciles us to our own destiny
by showing us the life of others, often much harder than ours.""
He's a sharp observer! So are you!
I'm soooooo happy for you!
Keep on keepin' on!
John
So great to hear that you are doing well. Very nice new picture ,also. My JBG has horses, as you may know, and sends me updated pictures every once in a while. They are an integral part of her life and a great help in each of her healing processes. I was a rider about 50+ years ago. Not sure I could mount a pony now.
I envy the fact that you live in my favorite state, and have fond memories of the time I spent there as a child. Unfortunately, Jackson has turned way too commercial now and some of my memories of long ago have been blemished. Of course, everything changes with so called "progress" over the years.
Take care,
Wolfen0 -
great newsbuckeye2 said:Congratulations on your good
Congratulations on your good news. I am so happy to read good news. I think some are reluctant to share their good when others are not getting such good news but it is such a shot in the arm for all. Thanks for sharing. Lisa
leslie on your progress.i am so happy for you.keep up the good work and i know where you are coming from when you talk about horsey smell.only us horse people can know the meaning of that.i go out to my horses everyday and hug their necks and just take in all of the smell.you take care and congrats.....Godbless.....johnnybegood0 -
Dear Leslie
Hey Leslie:)
In my next lifetime, I wanna' grow up to be just like you:)
I couldn't be any happier for you and know you've worked hard for it. What I really appreciate about you is that you are 'in the now' moment, but are sharply aware of "progression" as your med team so succintly put it.
That's important, because that means that you are aware of how this thing operates, but still holding out hope, just like me, that this thing won't hop back on you.
I'll be collecting a big Texas bear hug in 2-weeks:)
Say hi to your friend that I spoke too that time.
Ride On!
-Craig0 -
lovelly post , well worth the struggle
thanks,
if it ain't broken don't fix it.
you sound like your routine is working so well.
i liked your discussion of simple breathing, its one of the simplest healthful things i do on my treadmill. good deep breathing.
its amazing comparing our strategies half way across the world. so many similarities
hugs,
pete0 -
Neighbors
Leslie, we are neighbors, as only one can be in the West! We live in Idaho.
Thank you so much for your wonderful post. It was so uplifting to read. I, too, hope for a cure for this nasty beast. Only wish it could be tomorrow. Too many people who need that cure today. Great strides are being made, it seems, so am praying for the cure every day.0 -
Enjoy LIfe and experience that wonderful place with nature.
Enjoy life and continue to experience that wonderful place riding your horse in Wyoming. When one experiences the beautiful scenery one feels so close to God. Feel his warmth and healing hand.
Prayers for continued good health.
NB0 -
wunerrrfulrelaxoutdoors08 said:Enjoy LIfe and experience that wonderful place with nature.
Enjoy life and continue to experience that wonderful place riding your horse in Wyoming. When one experiences the beautiful scenery one feels so close to God. Feel his warmth and healing hand.
Prayers for continued good health.
NB
what a wonderful post Leslie.....thank you....
could not be happier for you
mags0 -
Great
So good to hear from you again and with such wonderful news to share with us. You must be going to UofM that is an awesome hospital. So happy for you.
Kim0 -
Congratulations!!!Annabelle41415 said:Great
So good to hear from you again and with such wonderful news to share with us. You must be going to UofM that is an awesome hospital. So happy for you.
Kim
Congratulations!!! Wonderful news0 -
Leslie
What a wonderful post, so glad you are doing so well and enjoying life so much.
Winter Marie0
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