36 year old mother with no answers! just want to know!

jammison1998
jammison1998 Member Posts: 5
in Lymphoma (Hodgkin and Non-Hodgkin) #1
Can anyone explain what their eye tumor looked like? when i pull my right eye lid up and back i have a fatty/fleshy mass that pops out. there is no pain but i can feel it at times and it does seem to get bigger. My symptoms for the last 3 months have been,my eye,tired, 25 pound weight loss, skin lesions,itchy skin, hair loss and skin pigment change, swollen lymphoid in groin, lower back pain,soreness in arm pits, shortness of breath, cough, mucus build up in back of throat, horsey voice , always clearing my throat. and night sweats. been to my FD multiple time had blood test done, high sed, low RBC , anemic, low zinc, low vitamin d, etc.. went on my own and went to an GI doctor, had an colonoscopy and a endoscopy ,inflamed small intes. inflamed stomach musle, he also said he had to keep pulling the scope out of my throat to suction the mucus build up..he didnt like that. sending me for a ct of abdomen and pelvic. I been thinking lymphnoma since the beging of my symptoms. never shared my theroy, i was quit surprised when the gi doc said lyphnoma.

Comments

  • allmost60
    allmost60 Member Posts: 3,178 Member
    #2
    Wait for testing to be done....
    Hi,
    It sounds like you have multiple issues going on. The scan is very important to get done, and if possible, surgical removal of swollen groin node to be sent for pathology. Once they slice and dice a node and put it through chemical staining, they can pin point if it's lymphoma with greater accuracy. I would tell you to be patient and calm until the testing is done, but realistically thats damn near impossible to do. So instead, I will keep good positive thoughts and say prayers for you. Please share back what you find out, and know we are here to help you through this scary process. Love and best wishes...Sue (age 60 Follicular NHL stage3-typeA-Grade2-diagnosed June 2010
  • bluerose
    bluerose Member Posts: 1,104
    #3
    allmost60 said:

    Wait for testing to be done....
    Hi,
    It sounds like you have multiple issues going on. The scan is very important to get done, and if possible, surgical removal of swollen groin node to be sent for pathology. Once they slice and dice a node and put it through chemical staining, they can pin point if it's lymphoma with greater accuracy. I would tell you to be patient and calm until the testing is done, but realistically thats damn near impossible to do. So instead, I will keep good positive thoughts and say prayers for you. Please share back what you find out, and know we are here to help you through this scary process. Love and best wishes...Sue (age 60 Follicular NHL stage3-typeA-Grade2-diagnosed June 2010

    Hello
    I agree with Allmost60 here totally. The symptoms I am focusing on in your list are the swollen lymph node in your groin mostly combined with night sweats and a couple of the other symptoms round it out for me. I agree that that groin lymph node should be biopsied as that is the best indication for lymphoma or not as far as I am concerned. I am not a doctor though but have experienced enough personally and in talking to others that this advice is probably not misleading.

    Like Allmost said though you have to try not to panic til you have had the testing done. Lymph nodes also swell all the time from infections but just the positioning of yours plus the other symptoms you show shouldn't be ignored. As far as the eye issue you are speaking about I have no experience with that but it should be investigated as well and maybe even biopsied too, an opthamologist/surgeon should be seen.

    If you aren't getting the tests and results you need then my suggestion is to get a second opinion from another doctor. It's your right. It's your life. Why worry needlessly? You have enough symptoms, in my opinion, to be taken seriously. Hopefully all the tests will be okay.

    I would suggest you get this done as soon as you can and hopefully you will get a positive result and all will be well. Lots of things show symptoms that you describe and aren't cancer I'm sure.

    All the best.

    Blessings,

    Bluerose
  • jammison1998
    jammison1998 Member Posts: 5
    #4
    bluerose said:

    Hello
    I agree with Allmost60 here totally. The symptoms I am focusing on in your list are the swollen lymph node in your groin mostly combined with night sweats and a couple of the other symptoms round it out for me. I agree that that groin lymph node should be biopsied as that is the best indication for lymphoma or not as far as I am concerned. I am not a doctor though but have experienced enough personally and in talking to others that this advice is probably not misleading.

    Like Allmost said though you have to try not to panic til you have had the testing done. Lymph nodes also swell all the time from infections but just the positioning of yours plus the other symptoms you show shouldn't be ignored. As far as the eye issue you are speaking about I have no experience with that but it should be investigated as well and maybe even biopsied too, an opthamologist/surgeon should be seen.

    If you aren't getting the tests and results you need then my suggestion is to get a second opinion from another doctor. It's your right. It's your life. Why worry needlessly? You have enough symptoms, in my opinion, to be taken seriously. Hopefully all the tests will be okay.

    I would suggest you get this done as soon as you can and hopefully you will get a positive result and all will be well. Lots of things show symptoms that you describe and aren't cancer I'm sure.

    All the best.

    Blessings,

    Bluerose

    thanks for your replies, im
    thanks for your replies, im going on 3 months of my doc pushing me aside. i did take action and went to the gi doc on my own, he agrees to rule in or out lymphoma. waiting to get my appointment for my cat scan this week...and got a new round of blood test done... saw a dermatologist a month go and left his office baling with no answers, he looked at me like i was crazy when i told him about lumps on my scalp, skin lesions and i could feel pea sizes lumps up and down my arms. any support helps! thanks! i also dont understand why my doc keeps telling me my blood work is normal when it is clearly not. i have highs and lows all around. I;m just upset about of ive been treated and ignored, going to look for a new family doc.
  • bluerose
    bluerose Member Posts: 1,104
    #5
    jammison1998 said:

    thanks for your replies, im
    thanks for your replies, im going on 3 months of my doc pushing me aside. i did take action and went to the gi doc on my own, he agrees to rule in or out lymphoma. waiting to get my appointment for my cat scan this week...and got a new round of blood test done... saw a dermatologist a month go and left his office baling with no answers, he looked at me like i was crazy when i told him about lumps on my scalp, skin lesions and i could feel pea sizes lumps up and down my arms. any support helps! thanks! i also dont understand why my doc keeps telling me my blood work is normal when it is clearly not. i have highs and lows all around. I;m just upset about of ive been treated and ignored, going to look for a new family doc.

    Way to go
    Sounds, from what you told us, that you should be searching out a new family because these sound like manny symptoms you can see like the lump in your groin and the lump when you pull up your eyelid so I don't know how they can blow you off. Unless I am missing some information here but sounds bananas to me.

    Hope you find a good family doctor who will believe in you and work with you. All the best.

    Bluerose
  • catwink22
    catwink22 Member Posts: 281
    #6
    jammison1998 said:

    thanks for your replies, im
    thanks for your replies, im going on 3 months of my doc pushing me aside. i did take action and went to the gi doc on my own, he agrees to rule in or out lymphoma. waiting to get my appointment for my cat scan this week...and got a new round of blood test done... saw a dermatologist a month go and left his office baling with no answers, he looked at me like i was crazy when i told him about lumps on my scalp, skin lesions and i could feel pea sizes lumps up and down my arms. any support helps! thanks! i also dont understand why my doc keeps telling me my blood work is normal when it is clearly not. i have highs and lows all around. I;m just upset about of ive been treated and ignored, going to look for a new family doc.

    Blood ok
    Hi Jammison,
    Good for you to go on your own! I did the same thing when my armpit swelled and I had a lump on my collar bone. I thought you would like to know that through my whole diagnosis and treatment my blood tests were always normal. Go figure? I think that's probably a good thing because I don't have it in my bone marrow. I was diagnosed by a lymph node that was removed from under my arm with Follicular Non-Hodgkin Lymphoma. *IF* you were to be diagnosed with Lymphoma I just want to give you a heads up that they may tell you to "Watch and Wait". This is a VERY common thing and no need to panic as long as you are being monitored. When I was first told we were going to "Watch & Wait" I thought they were crazy! Best of Luck to you and I hope your diagnosis is something minor and easy to take care of.
    Cat
  • jammison1998
    jammison1998 Member Posts: 5
    #7
    catwink22 said:

    Blood ok
    Hi Jammison,
    Good for you to go on your own! I did the same thing when my armpit swelled and I had a lump on my collar bone. I thought you would like to know that through my whole diagnosis and treatment my blood tests were always normal. Go figure? I think that's probably a good thing because I don't have it in my bone marrow. I was diagnosed by a lymph node that was removed from under my arm with Follicular Non-Hodgkin Lymphoma. *IF* you were to be diagnosed with Lymphoma I just want to give you a heads up that they may tell you to "Watch and Wait". This is a VERY common thing and no need to panic as long as you are being monitored. When I was first told we were going to "Watch & Wait" I thought they were crazy! Best of Luck to you and I hope your diagnosis is something minor and easy to take care of.
    Cat

    new blood work
    got my cat scan done yesterday, still do not know anything. my new blood test shows my rbc even lower now my hbg is low and my sed rate is getting higher, but doc still hasent said anything. o i also have h bylori bacteria in my stomach. want to put me on amoxicillin (2000 mg a day) last time i took that high of a dose got really sick and my symptoms got worse, waiting to hear if i should start that as well. just feel empty, really tired!!! could sleep all day if i could! and frustrated! dont know were to go from here... i feel like my health is going down the tube... sorry for being a downer just nice to get it out..

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