esophageal cancer recurrence

Lynn_Paul said:

2nd surgery scheduled
All ~

This site is amazing and filled with such caring people. I have not been on the site for a while as we have been consumed with appointments and decisions. Cyberknife was initially suggested. The doctor agreed to do it although it was very risky because of the location of the tumor if no one else had a better option. Our surgeon said he could not operate. The oncologist did not feel chemo was the answer. We met with another surgeon last week (Dr. Luketich, who is often mentioned on this site. He wants to re-do the surgery and remove the tumor at the end of next month. Hopefully Paul will handle the surgery as well the second time as he did the first.

Lynn

Lynn_Paul said:

Gut Feelings - go with them!
We feel so lucky Dr. Luketich will operate. I read all about him and all of your comments seem to confirm he is the best possible surgeon for this ugly cancer.

Prior to meeting with Dr. Luketich, we were told cyberknife was the only possible way to remove the cancer. We made an appointment with a radio surgeon. I had a bad feeling the entire week leading up to the appointment that Paul would not be a candidate. It sounded too easy and too good to be true that 3 sessions could get rid of the tumor. When the Dr. reviewed the pet scan and came in to the office I knew it wasn't the answer. He said he would do the procedure if no one else could do anything but that it was extremely risky. Instead of the panic I expected to feel, I felt a strange sense of calm. My thoughts were, "Ok ~ now they will operate and get it out of there". Our surgeon said it was not an option. I wish he would have said it was not an option for him. Imagine if we had listened. Luckily our oncologist helped to arrange an appointment with Dr. Luketich. He will operate in late October. In the mean time we are planning a short 30th anniversary get-away. We started dating when we were teenagers. We have 3 children (23, 20, 15).

Terry ~ Thank you for the kind words. I hope Nick is recovering well from the surgery.

David ~ You and your family (as well as all on the site) are in my prayers. We have been amazed reading the posts on this site how many young healthy people get this cancer. We were told last year at diagnosis that they are not making a lot of progress in new treatments because it is extremely rare to have an EC patient that is otherwise healthy. I think they should visit this site and do more research. We were also told this strikes older people. Paul is 54 and there are so many of you in your 30s and 40s. It's heartbreaking.

Cindy ~ I have my notes to ask the dr. about HER2 and KRAS mutation at our next appt. Thanks for the information.

Barbara ~ Sherry , your support means a lot.

Lynn

jim2011 said:

fears about recurring
Its my biggest personal health fear. EC is such an aggressive cancer. I had an all clear on my first post-treatment PET/CT Scans and my 2nd is in mid December. I am cancer free until then at least! None of my 3 grown children drink but all 3 have admitted texting while driving. Something happening to one of them is my biggest fear right now.
Getting scans and blood tests every 3-4 months means that even if something does show up it will be caught early or maybe even just scar tissue...maybe??

omer mukhtar said:

miracles can be fond everywhere without westren treatment
Thanks for your long comment sir but i did not say that morgina treated my mother. I said that what one of thing we did instead of chemo and radiation and i said also we did something i will not mentioned maybe because of site's policy. We had access to the treatment you speak about and your country is not so far i was there last may. The surgerey of my mother was in the low part of her esophagus and they poll her stomach up. We tested the tumer after surgerey and it was squamous cells. You may miss understand me now in this moment i'm in Jordan because they said to me your mother has poorly differentiated squamous cells in the esophagus so i went here seeking same drugs you mentioned but the hospital confirmed that she is free of cancer. I repeat again, i said you will not trust what i'm saying because it has no scientific basic. And i repeat again, we only used herpals from 2006 till know. You focused on Moringa and mentioned lots of what i do not khiw before. And remember sir that my mother is very very weak because we discovered the cancer too late and after she lost her weight. The last test dated 08/05/2012 and not 2011 5 or 4 days ago. I believe that scientifically there is no alternative for ( chemotherapy and radiation). We have it and we don't have any scientific evidence for it. I don't know how comes that we don't have any tretment (chemo or radiation) and my mother still alive. That why i wrote ( cancer recurrence) and l fond this site.I would like to be your friend too i'm glad you are survivor for 9 years that gives me lots of hope and fear in the same time because you had chemo or radition and my mother has never tryed it.I believe that i will learn lot here, you know since 2006 i have read more than 14 pages per day about cancer on the net. I read about it in frensh english and my tonglanguage Arabic. I translated from traditional chinese to one of this language. I know lot but as i said maybe the language is my barrier. I could not explain my experience as good as you sir.If you have an access to arabic or frensh translation i will send you all by e.mail and i'm sure it will be new for you because it's not just repeated knowldege from the net.Thanks and sorry for mistakes or missculture.

unknown said:

This comment has been removed by the Moderator

omer mukhtar said:

miracles can be fond everywhere without westren treatment
Thanks for your long comment sir but i did not say that morgina treated my mother. I said that what one of thing we did instead of chemo and radiation and i said also we did something i will not mentioned maybe because of site's policy. We had access to the treatment you speak about and your country is not so far i was there last may. The surgerey of my mother was in the low part of her esophagus and they poll her stomach up. We tested the tumer after surgerey and it was squamous cells. You may miss understand me now in this moment i'm in Jordan because they said to me your mother has poorly differentiated squamous cells in the esophagus so i went here seeking same drugs you mentioned but the hospital confirmed that she is free of cancer. I repeat again, i said you will not trust what i'm saying because it has no scientific basic. And i repeat again, we only used herpals from 2006 till know. You focused on Moringa and mentioned lots of what i do not khiw before. And remember sir that my mother is very very weak because we discovered the cancer too late and after she lost her weight. The last test dated 08/05/2012 and not 2011 5 or 4 days ago. I believe that scientifically there is no alternative for ( chemotherapy and radiation). We have it and we don't have any scientific evidence for it. I don't know how comes that we don't have any tretment (chemo or radiation) and my mother still alive. That why i wrote ( cancer recurrence) and l fond this site.I would like to be your friend too i'm glad you are survivor for 9 years that gives me lots of hope and fear in the same time because you had chemo or radition and my mother has never tryed it.I believe that i will learn lot here, you know since 2006 i have read more than 14 pages per day about cancer on the net. I read about it in frensh english and my tonglanguage Arabic. I translated from traditional chinese to one of this language. I know lot but as i said maybe the language is my barrier. I could not explain my experience as good as you sir.If you have an access to arabic or frensh translation i will send you all by e.mail and i'm sure it will be new for you because it's not just repeated knowldege from the net.Thanks and sorry for mistakes or missculture.