oxaliplatin-leucovorin-fluorouracil--6 months having jaw pains and first bite pain BAD!! my Onc. sai

RB101 said:

Jaw Pain and Oxaliplatin
It's almost a year and a half since this thread ended but I was very happy to find it. Am receiving Leucovorin-Oxaliplatin-5FU every 2 weeks for Stage III colon cancer (left hemicolectomy 6 weeks ago). Today was my second treatment session. This evening - jaw pain on eating (first few bites) just as described. It is extremely painful but goes away after a few chews. Worse with hard food and chocolate. I am really worried it will get worse but encouraged by replies to Mark that it is only for a few days after each treatment and then gets better. Jaw pain after Oxaliplatin is definitely REAL!

Oxaliplatin
Hi: There is lots of information on this discussion board about the side effects of oxaliplatin. I even downloaded the entire document provided by the drug company and about 40 pages of it are devoted to neuropathy and its various forms. I agree - let your oncologist try it!!!!! I suffered with these symptoms (cold intolerance, first bite pain, shaking, sore feet and hands) at first but had my dosage and infusion rate reduced. I also take Vit B6, calcium/magnesium, alpha liloic acid, L-Glutamine (5 grams/day), and haven't had many problems and I'm on my 9th treatment of oxaliplatin-irenotecan-5FU. I can even eat ice cream right after treatment. Doesn't work for everyone but it sure works for me - I got the information on this discussion board.
Cheryl