What's up with family in all of this?

Barneygirl
Barneygirl Member Posts: 90
edited September 2011 in Ovarian Cancer #1
I'm going to whine tonight. I have been doing the cancer thing for 7 years. I'm experiencing my 2nd recurrence after 5 years, and my family seems so distant about all this. Have they had enough? My sister said she'd call saturday, and didn't, and seems to keep up the facebook connections that interest her. They all know what is going on with me and I guess they think I'll pull through to another remission like I have the past 2 times.
I'm feeling so alone. I have had to go to practically every appointment this month as well as radiation by myself. Where is family when you need them the most?

Comments

  • mom2greatkids
    mom2greatkids Member Posts: 528
    How sad! Do you live alone?
    How sad! Do you live alone? I think that cancer is just too hard for some people to deal with. I think they're afraid they will be next. If you are close enough to your family, perhaps you should discuss your feelings with them. I really feel for you.
  • dreamer007
    dreamer007 Member Posts: 61
    family
    you are not alone... i have heard the same thing over and over, and my
    counselor said she hears the same thing....the mystery of why family is not
    there when you absofuckinlutely need them

    i have a sister who says she "has cancer vicariously thru me"
    uh huh
    if i have to get more chemo, which is looking very likely, i wonder if she
    will have it for me, then go thru all the aftershocks of it, so i dont have to

    no wonder we get PTSD
  • poopergirl14052
    poopergirl14052 Member Posts: 1,183 Member

    family
    you are not alone... i have heard the same thing over and over, and my
    counselor said she hears the same thing....the mystery of why family is not
    there when you absofuckinlutely need them

    i have a sister who says she "has cancer vicariously thru me"
    uh huh
    if i have to get more chemo, which is looking very likely, i wonder if she
    will have it for me, then go thru all the aftershocks of it, so i dont have to

    no wonder we get PTSD

    family members
    sometimes they just don't get it. They are in denial and don't realize how very much they are needed. Give your sis another call and let her know again. Life is too short and sometimes people need a kick in the backside. I am sure you were there for your family and it is sad to feel alone. Hope your tx bring you to another long remission..val
  • AnneBehymer
    AnneBehymer Member Posts: 738 Member
    I am so sorry you are
    I am so sorry you are feeling alone I understand what you are feeling I spent most of my life feeling all alone. I will be praying for you and I think if you can call your family and tell them how you feel.

    Anne
  • mopar
    mopar Member Posts: 1,972 Member
    This is certainly not the
    This is certainly not the time to feel so alone. But as everyone said, it's not uncommon for some people to suddenly become 'detached' so-to-speak. I also think you've hit on something else - they may feel that you'll kick this just like you did before. My family, thankfully, was very supportive and helpful. But there were times I realized they may have viewed my stoic/positive attitude as a sign that 'she's got this under control'. Since I don't complain as a rule, and I just 'grin and bear it', they didn't always know just how much trouble I had or how awful I felt. First time around was a shocker. Second time around, 'Mom did this once, she can do it again!' It's not really their fault to have felt that way, I suppose.

    Maybe start asking for help more often. At that point they may realize that you're still fighting and battle, and it would help to rally the troops for support.

    HUGS and PRAYERS to you.
    Monika
  • Barneygirl
    Barneygirl Member Posts: 90
    mopar said:

    This is certainly not the
    This is certainly not the time to feel so alone. But as everyone said, it's not uncommon for some people to suddenly become 'detached' so-to-speak. I also think you've hit on something else - they may feel that you'll kick this just like you did before. My family, thankfully, was very supportive and helpful. But there were times I realized they may have viewed my stoic/positive attitude as a sign that 'she's got this under control'. Since I don't complain as a rule, and I just 'grin and bear it', they didn't always know just how much trouble I had or how awful I felt. First time around was a shocker. Second time around, 'Mom did this once, she can do it again!' It's not really their fault to have felt that way, I suppose.

    Maybe start asking for help more often. At that point they may realize that you're still fighting and battle, and it would help to rally the troops for support.

    HUGS and PRAYERS to you.
    Monika

    Thanks
    I am so glad I found this site. I don't feel so alone here and you all are so warm and supportive.
    I guess it still surprises me how close friends and family react. When I was first diagnosed, my family dropped everything and came to be with me through surgery, etc. They did rally around me. I also had close friends drop me like a hot potato!
    I generally don't complain and have been told "You are the strongest person I know". I get tired of hearing that. I'm sure they feel I'm tough and can pull through again. Perhaps your right and I need to ask for help when I need it.
    Well off for another rad treatment today!

    HUGS
    Laura
  • Mwee
    Mwee Member Posts: 1,338

    Thanks
    I am so glad I found this site. I don't feel so alone here and you all are so warm and supportive.
    I guess it still surprises me how close friends and family react. When I was first diagnosed, my family dropped everything and came to be with me through surgery, etc. They did rally around me. I also had close friends drop me like a hot potato!
    I generally don't complain and have been told "You are the strongest person I know". I get tired of hearing that. I'm sure they feel I'm tough and can pull through again. Perhaps your right and I need to ask for help when I need it.
    Well off for another rad treatment today!

    HUGS
    Laura

    good luck with your rad treatment
    may it kick butt! I read your post and I could have written it myself! After 20 months of chemo, my family seems to think that it's "old hat" and that I'm so tough. They live in the land of Denial. I would probably think I was crazy without all my wonderful sisters here a couple of dear friends who phone me every day after infusions to keep checking up on me.
    (((HUGS))) Maria
  • carolyn45
    carolyn45 Member Posts: 100
    Ask for what you need--loud and clear
    My family and friends always joked that I'd smile and say, "I'm fine" no matter what was going on in my life. I had to learn to whine--not plaintively, but politely. You might want to call those who mean the most to you and say, "I'm in trouble with this second recurrence, and I really need your support and help. Could you come with me to an appointment or two? It would mean the world to me." It's part of their own denial system when family and friends tune out and tell themselves this isn't a big deal. It is. Tell them so.
  • SarahWiles
    SarahWiles Member Posts: 3
    carolyn45 said:

    Ask for what you need--loud and clear
    My family and friends always joked that I'd smile and say, "I'm fine" no matter what was going on in my life. I had to learn to whine--not plaintively, but politely. You might want to call those who mean the most to you and say, "I'm in trouble with this second recurrence, and I really need your support and help. Could you come with me to an appointment or two? It would mean the world to me." It's part of their own denial system when family and friends tune out and tell themselves this isn't a big deal. It is. Tell them so.

    Spouse
    I have the best friends and family I could ask for but my husband is the most unsupportive person. I don't really like when people go with me to appts/procedures. It is easier for me to go alone. But I struggle with the fact that he doesn't ask or even seem to care. I have three young kids and it seems like he is ok with me trying to do it all. I am at the point where it is too painful to have him around. It seems like he doesn't care about me or my well being

    Help losing my fight!
  • Tethys41
    Tethys41 Member Posts: 1,382 Member

    Thanks
    I am so glad I found this site. I don't feel so alone here and you all are so warm and supportive.
    I guess it still surprises me how close friends and family react. When I was first diagnosed, my family dropped everything and came to be with me through surgery, etc. They did rally around me. I also had close friends drop me like a hot potato!
    I generally don't complain and have been told "You are the strongest person I know". I get tired of hearing that. I'm sure they feel I'm tough and can pull through again. Perhaps your right and I need to ask for help when I need it.
    Well off for another rad treatment today!

    HUGS
    Laura

    Support
    Laura,
    I can totally relate to what you are going through. The first few months of my treatment, my husband and I were staying with my brother and sister-in-law, who were very supportive. But later, we returned home and my husband was in no shape to support me. I worked with a woman who teaches that focusing on what you want brings more of it. If you focus on what you don't want, you will get more of that. So she gave me an exercise to acknowledge everything that gave me support, starting with the floor supporting my feet, the chair supporting my body, the food I ate supporting my system. These were tiny little baby steps, but as I focused more and more on the support I did have, people came out of the woodwork to help me in my journey. I count my blessing everyday, even if they seem miniscule.
  • clamryn
    clamryn Member Posts: 508
    So sorry
    I am so sorry you are going through all of this. I don't have any answers on why family or friends do what they do. One of my dearest friends (which was a neighbor for many years) when she found out I had cancer the first time in 1991, she never came to the hospital, never stopped by my house and she never called. She just cut me out. We had been so close and that was really hard on me. Let alone dealing with the cancer. To this day, I don't hear from her at all.

    The past 10 days I have been really sick but I am coming out of it now. I sat here in my house over the holiday weekend and two of my children, never called. I had a meltdown. Don't get me wrong, I know they probably had plans, but I was not in good shape and wanted to feel their love.

    I do have several friends that are my guardian angels. They are so good. You have to come to the point to surround yourself with those that you know will help you and do care. We are all here for you.

    Linda
  • clamryn
    clamryn Member Posts: 508
    So sorry
    I am so sorry you are going through all of this. I don't have any answers on why family or friends do what they do. One of my dearest friends (which was a neighbor for many years) when she found out I had cancer the first time in 1991, she never came to the hospital, never stopped by my house and she never called. She just cut me out. We had been so close and that was really hard on me. Let alone dealing with the cancer. To this day, I don't hear from her at all.

    The past 10 days I have been really sick but I am coming out of it now. I sat here in my house over the holiday weekend and two of my children, never called. I had a meltdown. Don't get me wrong, I know they probably had plans, but I was not in good shape and wanted to feel their love.

    I do have several friends that are my guardian angels. They are so good. You have to come to the point to surround yourself with those that you know will help you and do care. We are all here for you.

    Linda
  • sarahb74
    sarahb74 Member Posts: 81 Member
    I thought it was just me.
    My son and husband are very supportive but now the novelty of my illness seems to have worn off the rest of my family appear far less caring than they used to be. I assumed that I was just expecting too much or there was something wrong with me. It's not good to know that others have the same problem but in a way it is a relief to know I'm not the only one.
  • Hissy_Fitz
    Hissy_Fitz Member Posts: 1,834
    It's human nature, I think.
    It's human nature, I think. This is their new normal, too. It's like being married for 7 years. The first month, you kiss him goodbye when he goes out to set the garbage on the curb. The first anniversary is a huge deal. By year 7, you're willing to settle for dinner and a movie without the kids.

    No one can keep up that heightened state of helpfulness/shock/support for years on end. Time softens all those things. If it didn't, we could not cope emotionally.

    Try not to take it personally. And remember that we are always here for you, even when others "forget" that you are still dealing with Cancer.

    Carlene
  • Barneygirl
    Barneygirl Member Posts: 90

    It's human nature, I think.
    It's human nature, I think. This is their new normal, too. It's like being married for 7 years. The first month, you kiss him goodbye when he goes out to set the garbage on the curb. The first anniversary is a huge deal. By year 7, you're willing to settle for dinner and a movie without the kids.

    No one can keep up that heightened state of helpfulness/shock/support for years on end. Time softens all those things. If it didn't, we could not cope emotionally.

    Try not to take it personally. And remember that we are always here for you, even when others "forget" that you are still dealing with Cancer.

    Carlene

    Human Nature
    Perhaps it is human nature, and I won't take it personally. I suppose if they were always in that supportive/heightened state they'd be exhausted and not able to function in their own lives. So good point. Life goes on despite my diagnosis. I love the support I feel here!

    Laura
  • Barneygirl
    Barneygirl Member Posts: 90

    It's human nature, I think.
    It's human nature, I think. This is their new normal, too. It's like being married for 7 years. The first month, you kiss him goodbye when he goes out to set the garbage on the curb. The first anniversary is a huge deal. By year 7, you're willing to settle for dinner and a movie without the kids.

    No one can keep up that heightened state of helpfulness/shock/support for years on end. Time softens all those things. If it didn't, we could not cope emotionally.

    Try not to take it personally. And remember that we are always here for you, even when others "forget" that you are still dealing with Cancer.

    Carlene

    duplicate post

    duplicate post
  • lauripiper
    lauripiper Member Posts: 28

    duplicate post

    duplicate post

    family
    I agree with Carlene that it's human nature to start to take things lightly, even difficult things as they become familiar. That said, Let them know! Speak up and tell them that you still need them and that the 3rd time does not make it easier. Sometime we are guilty of sitting back and expecting help from others and not asking for it. Yes it would be nice if they would offer first but we're all human and selfish at times. Of course I don't know you or your family but never forget to ask for help when you need it.