has anyone's ca 125 lowered or remained stable with high dose iv vitamin c?

maggie_wilson
maggie_wilson Member Posts: 596
in Ovarian Cancer #1
sisters,

just finished chemo for first recurrence of upsc, and am going to start high dose iv vitamin c and wondered if anyone's ca 125 lowered after having this, or remained stable.

thanx, and sisterhood,
maggie

Comments

  • Tethys41
    Tethys41 Member Posts: 1,382 Member
    #2
    Stable CA-125
    Maggie,
    I do a lot of integrative treatments, so can't say for sure it is the IVC doing the trick. My CA-125 was <1 at the end of chemo in March of 2010 (was 4,600 at diagnosis). It has gone as high as 4, but is currently at 2. So, it appears something is keeping the number under control.
  • maggie_wilson
    maggie_wilson Member Posts: 596
    #3
    Tethys41 said:

    Stable CA-125
    Maggie,
    I do a lot of integrative treatments, so can't say for sure it is the IVC doing the trick. My CA-125 was <1 at the end of chemo in March of 2010 (was 4,600 at diagnosis). It has gone as high as 4, but is currently at 2. So, it appears something is keeping the number under control.</p>

    tethys41
    i do follow your posts and know you are doing alot of integrative treatments, but something sure is working for you. may it continue. hope i get some good results from ivc, too.

    thanx, tethys,
    sisterhood, maggie
  • Tethys41
    Tethys41 Member Posts: 1,382 Member
    #4
    maggie_wilson said:

    tethys41
    i do follow your posts and know you are doing alot of integrative treatments, but something sure is working for you. may it continue. hope i get some good results from ivc, too.

    thanx, tethys,
    sisterhood, maggie

    IVC
    Maggie,
    Good luck with your IV's. I think they do remarkable things. Don't go on an empty stomach; take someting to snack on; and be prepared to drink lots of water. It will probably make you thristy.
    Take care!
  • maggie_wilson
    maggie_wilson Member Posts: 596
    #5
    Tethys41 said:

    IVC
    Maggie,
    Good luck with your IV's. I think they do remarkable things. Don't go on an empty stomach; take someting to snack on; and be prepared to drink lots of water. It will probably make you thristy.
    Take care!

    thanx, tethys
    i will definitely follow your suggestions. did you go to mexico for treatment when you were in treatment here, or when you finished here, and were in remission?

    sisterhood,
    maggie
  • Tethys41
    Tethys41 Member Posts: 1,382 Member
    #6
    maggie_wilson said:

    thanx, tethys
    i will definitely follow your suggestions. did you go to mexico for treatment when you were in treatment here, or when you finished here, and were in remission?

    sisterhood,
    maggie

    Mexico
    I went to Mexico between chemos 1 and 2 of 8 rounds that I was receiving in the U.S. But I am considering a return trip for stem cell therapy aimed at repairing the damage done by the chemo. I currently have some lingering issues, like Hashimoto's, insulin resistance, borderline pernicious anemia, that the doctor down there believes are a result of the chemo and he isayd they can be resolved with the stem cell treatment. My bags aren't packed yet. I'm still looking into it.
  • maggie_wilson
    maggie_wilson Member Posts: 596
    #7
    Tethys41 said:

    Mexico
    I went to Mexico between chemos 1 and 2 of 8 rounds that I was receiving in the U.S. But I am considering a return trip for stem cell therapy aimed at repairing the damage done by the chemo. I currently have some lingering issues, like Hashimoto's, insulin resistance, borderline pernicious anemia, that the doctor down there believes are a result of the chemo and he isayd they can be resolved with the stem cell treatment. My bags aren't packed yet. I'm still looking into it.

    tethys
    i'm sorry to hear you have lingering effects from chemo, though not surprised. please keep me posted on what you decide to do. i don't know much re: stem cell treatment, but will check it out. i'm assuming this is all out-of-pocket.

    we have a friend newly diagnosed with 4th stage lung cancer

    ( of course she never smoked) and in adrenal glands. too big too operate. they are testing her for a drug that works with certain people with lung cancer. if she's not a candidate, do you think it makes sense for her or her partner to phone oasis of hope or bautista, md?

    thanx,
    maggie
  • Tethys41
    Tethys41 Member Posts: 1,382 Member
    #8
    maggie_wilson said:

    tethys
    i'm sorry to hear you have lingering effects from chemo, though not surprised. please keep me posted on what you decide to do. i don't know much re: stem cell treatment, but will check it out. i'm assuming this is all out-of-pocket.

    we have a friend newly diagnosed with 4th stage lung cancer

    ( of course she never smoked) and in adrenal glands. too big too operate. they are testing her for a drug that works with certain people with lung cancer. if she's not a candidate, do you think it makes sense for her or her partner to phone oasis of hope or bautista, md?

    thanx,
    maggie

    Oasis of Hope
    Maggie,
    I'm so sorry to hear about your friend. I think Oasis of Hope would be a great place for her to start. They will do a phone consult with one of their doctors and honestly tell her whether they think they can help her. If she wants to talk to the one with the least accent, tell her to request Dr. Cecena (there's a tilde over the n). Most of their patients are stage IV, yet a lot of amazing stories walk through their doors. I wish her the best.
  • maggie_wilson
    maggie_wilson Member Posts: 596
    #9
    Tethys41 said:

    Oasis of Hope
    Maggie,
    I'm so sorry to hear about your friend. I think Oasis of Hope would be a great place for her to start. They will do a phone consult with one of their doctors and honestly tell her whether they think they can help her. If she wants to talk to the one with the least accent, tell her to request Dr. Cecena (there's a tilde over the n). Most of their patients are stage IV, yet a lot of amazing stories walk through their doors. I wish her the best.

    thanx again so much, tethys
    we'll wait til we hear the results of her tests to see if she's a candidate for this particular drug for lung cancer. if not, i think, too, it makes sense for her to call oasis of hope; it certainly can't hurt. i doubt they can afford to go, really, but i say, put it on the damn credit card if there's a chance oasis can help. btw, where do you live, tethys? i'm in berkeley, california.
    sisterhood,
    maggie
  • Tethys41
    Tethys41 Member Posts: 1,382 Member
    #10
    maggie_wilson said:

    thanx again so much, tethys
    we'll wait til we hear the results of her tests to see if she's a candidate for this particular drug for lung cancer. if not, i think, too, it makes sense for her to call oasis of hope; it certainly can't hurt. i doubt they can afford to go, really, but i say, put it on the damn credit card if there's a chance oasis can help. btw, where do you live, tethys? i'm in berkeley, california.
    sisterhood,
    maggie

    Money
    Yes, it's a darn shame that insurance companies won't pay for alternative treatment. I know of a woman who went down to a hospital in Mexico and received very comprehensive treatment for active cancer, including ipt chemo. She paid less for her treatment than my oncologist charged my insurance company for one dose of Avastin. The whole system is insane, if you ask me. I was pretty tight with money when I was deciding whether to go to Mexico. Then it occurred to me that if I didn't spend it there, I might just never spend it...if you know what I mean. I agree, take out a second mortgage, put it on a credit card, but do it.
    I live in Durango, CO. I went to UC-Irvine, however, for my surgery and start of treatment because there is no gyn/onc near Durango. I stayed with my brother near Palm Springs during that time. Now I see a gyn/onc for follow ups in Albuquerque, 4 hours away. It's essentially an all day drive just to be poked and prodded in undesireable places, but it beats flying each time I have to be checked out.

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