Pet/Scan ...Not so good
I know it sure zapped me back then but I think I am ready to go again. I am in a better place than in 2008 because I was coming off the surgery and I also had a lung collapse at the end of 2007. I wasn't in too good of shape. But now I am stronger.I thought about putting on my big girl pants....but you know they just keep falling down (I guess I better start eating more)
Linda
Comments
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Lots of love and hugs
You will do it again! More teal hugs coming your way!0 -
yes,,,yes,,yesJoanC said:You can do it
Put a belt on your Big Girl Panties and hang in there. Everyone is here for you We will beat this beast. Sending you tons of((teal hugs))
Joan
you can do it you are a true fighter and have been through so much. If carbo/taxol worked before it will work again. Put on your big teal panties on and start kicking some cancer cells butt....val0 -
Hi Linda
I am sorry to hear this but I can tell from your posts that you are a strong, brave lady... ready to do battle again. If those big girl pants won't stay up on their own, we'll just buy you some big girl suspenders... HA HA
Big Hugs coming your way,
Cindy0 -
Linda, you are so strong! I
Linda, you are so strong! I always enjoy your posts! You can do this. You are an inspiration to all of us!!
Carla0 -
So sorry
Linda,
So sorry to hear about your scan results. I know what you mean about Taxol/Carbo being rough on you. It was rough on me too. I've learned since then that my detox pathway for Taxol is genetically compromised. I got a lot of support from accupuncture and vitamin C IVs during my initial treatment. I'm not sure how I would have made it through 8 rounds of the stuff without the outside help.
Best of luck0 -
Dear Linda
Bummer news... I don't know where you are being treated but they are doing amazing things with radio-ablation...on liver tumors...you might want to look it up..I wanted my mother to do it, but.....I have heard fantastic things about the effectiveness and the fact that it's non invasive.....if the taxol worked for you earlier and it's been at least a year off it, you will probably get good results from it...0 -
radio ablationLisa13Q said:Dear Linda
Bummer news... I don't know where you are being treated but they are doing amazing things with radio-ablation...on liver tumors...you might want to look it up..I wanted my mother to do it, but.....I have heard fantastic things about the effectiveness and the fact that it's non invasive.....if the taxol worked for you earlier and it's been at least a year off it, you will probably get good results from it...
Lisa I am going to have a talk with my doctor about that. I hope the taxol kicks in gear but I need to be ready to have something else in place.
FYI..I live on the outskirts of St. Louis, MO and I go to St. John's Mercy Hospital
Lisa, just wanted to let you know that I think about your mom and Nancy all the time. I am doing the teal toes and having Joan put on one foot and Nancy on the other foot in their honor.
Linda0 -
Hike them pants Up!
THis is terrible news but you will fight it and the carbo/taxol combo should work it's magic for you . Good Luck !
Colleen0 -
You can do it Linda
Hi Linda, I'm sorry that you have to go thru more chemo, I know what that's like. You seem like a very strong person and that's going to be half of the battle. After trying many chemo drugs since October last year, I'm now on Taxotere, which is what I had when I was originally diagnosesd 5 years ago. Only at that time I had it with Carboplatin, now I can't take Carboplatin because I had it 3 times and got an allergic reaction to it. Alot of people where I'm going to get chemo seem to be on Taxol and some other drug. The Taxotere is in the same family as Taxol except the side effects are supposed to be less. So far, the only side effects I've experienced have been fatigue (but I attribute that to being on constant chemo for a year) and nose bleeds, which usually start after the 2nd week (I'm on a 3 week course) and then stop a few days before the cycle starts all over again.
But, anyway, please keep us posted on how you're doing and good luck with this new treatment.0 -
Optionsantcat said:You can do it Linda
Hi Linda, I'm sorry that you have to go thru more chemo, I know what that's like. You seem like a very strong person and that's going to be half of the battle. After trying many chemo drugs since October last year, I'm now on Taxotere, which is what I had when I was originally diagnosesd 5 years ago. Only at that time I had it with Carboplatin, now I can't take Carboplatin because I had it 3 times and got an allergic reaction to it. Alot of people where I'm going to get chemo seem to be on Taxol and some other drug. The Taxotere is in the same family as Taxol except the side effects are supposed to be less. So far, the only side effects I've experienced have been fatigue (but I attribute that to being on constant chemo for a year) and nose bleeds, which usually start after the 2nd week (I'm on a 3 week course) and then stop a few days before the cycle starts all over again.
But, anyway, please keep us posted on how you're doing and good luck with this new treatment.
Dear Linda (clamryn)
Sorry to hear you are going back on chemo. I just read that Doxil (adriamycin) is in limited availablity (only available to people who are currently taking it) due to a supply shortage. The drug is "off patent" so there isn't a big profit incentive for the drug company to produce it. Shouldn't the government step in here?
See if your doctor will go with the "dose-dense taxol" regimen where you receive taxol weekly. Some research hinted that giving taxol that way had an additional anti-angiogenic benefit (what you were hoping to get from the Avastin). Taxol or taxotere would do. Anti-angiogenic means that the therapy stops the cancer from creating new blood vessels to feed itself.
Cancer has an intelligence & an amazing ability to outsmart so many of our attempts to eradicate it. I believe it is necessary to use the most comprehensive program possible to heal yourself. That includes the lifestyle recommendations in David Servan-Schreiber's book (Anti-cancer: A New Way of Life). Even though Dr. Servan-Schreiber eventually succumbed to brain cancer, he far outlived his prognosis.
Stay strong. You can do this!
(((hugs)))
Carolen0 -
(((Linda))) Not the news you wanted, but you can deal with it.carolenk said:Options
Dear Linda (clamryn)
Sorry to hear you are going back on chemo. I just read that Doxil (adriamycin) is in limited availablity (only available to people who are currently taking it) due to a supply shortage. The drug is "off patent" so there isn't a big profit incentive for the drug company to produce it. Shouldn't the government step in here?
See if your doctor will go with the "dose-dense taxol" regimen where you receive taxol weekly. Some research hinted that giving taxol that way had an additional anti-angiogenic benefit (what you were hoping to get from the Avastin). Taxol or taxotere would do. Anti-angiogenic means that the therapy stops the cancer from creating new blood vessels to feed itself.
Cancer has an intelligence & an amazing ability to outsmart so many of our attempts to eradicate it. I believe it is necessary to use the most comprehensive program possible to heal yourself. That includes the lifestyle recommendations in David Servan-Schreiber's book (Anti-cancer: A New Way of Life). Even though Dr. Servan-Schreiber eventually succumbed to brain cancer, he far outlived his prognosis.
Stay strong. You can do this!
(((hugs)))
Carolen
The good news is that taxol is still a viable option for you, as I think of taxol as 'the good stuff' since it is the drug that got me to both of the brief remissions I enjoyed. The second time around I did taxol in the weekly dense dose schedule, with chemo every Monday & a Nuepogen shot every Tuesday, Wednesday, & Thursday. I did that for 17 weeks and it was SO much easier on my blood counts and bone marrow. My only side affects were baldness and fatigue. Taxol stopped working for me, or I would go back on it in a heartbeat. It sucks to have disease progression when you are actively in treatment; I know too well. Deep breath. & we move on!
I encourage anyone experiencing chemo resistance to explore radiation-related options. I'm have my second SIR-Spheres radioembolism tomorrow for my liver mets. & when I recover, I'm going back to my radiation oncologist and interventional radiologist and see what other tricks they may have up their sleeve to zap my malignanct lymph nodes. There's lots so ways to buy time. But taxol always sounds so promising to me! ((((Hugs)))).0 -
hugssssclamryn said:Thank you everyone
Thanks everyone for you input. This board helps me so much. It just makes me feel so much better to talk it out with all of you.
Linda
hugggssss and more huggssss I am never sure what I want to hear when I get bad news, but hugs help.0
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