Just diagnosed - MMMT Uterine Cancer

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Comments

  • Fayard
    Fayard Member Posts: 438 Member
    #22
    madcoast said:

    MMMT
    i am now 2+ years out from a post hysterectomy diagnosis of 'endometrial carcinomasarcoma stage IIIb. I am now 61 and live in Charleston SC.
    My onc surgeon tried to 'frighten' me into his preferred treatment while i was still in the recovery room. I choose instead to visit an 'environmental doctor' while recovering...and then as soon as I could travel, I travelled to Boston for a 2d opinion at Dana Farber and a group consult at Mass General.As a result of those consultations, I returned to Charleston and did Avastin (an angiogenesis inhibitor) for 6 treatments. One year out, I was diagnosed with a local recurrance at top of vaginal cuff and did 6 IMRT and 6 Brachytherapy radiation treatments. One year after that (feb '11), i have been diagnosed with possible 'local' recurrence' at entrance to vaginal canal. I just finished 4 weeks in an intensive bio detox program in an effort to eliminate those agents which stimulate good cells to behave badly. I will do a local outpatient surgery next week to remove those atypical cells.

    My pathway is all about wellness....because at the end of the day, the docs dont really know much at all about MMMTs....nor is there really good data about the efficacy of traditional chemotheraphy on 'poorly behaved' cells...

    i encourage to pay heed to the nuitritional and other 'wellness' advice that you have received from folks on this post....because the oncology community doesnt even pay attention to those things. Like i had severe anemia after radiation and my gyn onc didnt even comment on it but my envirnomental doctor has helped me to rebuild my RBC and my WBC as well as my lymphocyte count.

    Would love to know if anyone on this post also has 'endometrial carcinomasarcoma'

    Which one is it?
    For what I have read in my surgery biopsy report the following terms mean the same:
    Papillary Serous or
    Clear Cell Carcinoma of the Endometrium or
    Carcinosarcoma

    This is what I was diagnosed back in November, state 3, grade 3 (IIB, II)
    My doctor only recommended 6 cycles of chemo . he said I did not need radiation, because the stage was low (It went to 2 because it invaded the myometrium more than 50%, invasion of cervical stromal connective tissue.

    I hear meny of you have had radiation, and I do not understand why. Apparently, if the tumor is taking out completely, along with the organs around and lymph nodes, you do not need radiation according to the NCCN protocol.

    Can some of you elaborate and tell me what were your doctors rational to do radiation?

    Thank you!
  • cheerful
    cheerful Member Posts: 261 Member
    #23
    Fayard said:

    Hi
    I just read your posting, and I am happy to hear your prognosis. However, I am curious about you getting radiation. I was diagnosed with uterine cancer, clear cell, stage 2, grade 3. Stage 2 because it invaded the myometrium wall 9mm of 14 mm.
    I am only getting chemo, taxol/carbo, but not radiation. My doctor said I do not needed, because the tumor was taken out during surgery.

    Can toy explain the reason gave you, please?

    Hi Fayard:

    Thanks for responding. The reason I am getting radiation is my oncologist recommended it that I have it done. I will need 3 radiation treatments. I already met with the radiologist back in June. I understand that the radiology treatments will be a lot shorter time and you will not have to spend the whole day there like with the chemo treatments. I only have 1 more chemo treatment to go through and then I will be all done with the chemo treatments. I definitely will go out and celebrate once all of my chemo treatments are done and over with. After the chemo treatments are over with, I most probably will start the radiation treatments. I will need to have the radiation treatments done once a week for 3 weeks and then that will be it. A friend of mine whom I recently met through the hospital cancer support group (she also had UPSC) and ended her treatments 3 years ago also had a few radiation treatments as well. Her cancer was Stage 2.

    That's great that your cancer was caught at Stage 2. It is still an early enough stage. I know you have a different type of cancer than I was diagnosed with - I was diagnosed with uterine papillary serous carcinoma or (UPSC) - it is a Stage 1, grade 3 cancer. I have heard of clear cell uterine cancer. I wish you all the best. Please do keep in touch via e-mail on this site. I want to hear how you are doing.

    Warm Regards,
    Cheerful
  • Fayard
    Fayard Member Posts: 438 Member
    #24
    cheerful said:

    Hi Fayard:

    Thanks for responding. The reason I am getting radiation is my oncologist recommended it that I have it done. I will need 3 radiation treatments. I already met with the radiologist back in June. I understand that the radiology treatments will be a lot shorter time and you will not have to spend the whole day there like with the chemo treatments. I only have 1 more chemo treatment to go through and then I will be all done with the chemo treatments. I definitely will go out and celebrate once all of my chemo treatments are done and over with. After the chemo treatments are over with, I most probably will start the radiation treatments. I will need to have the radiation treatments done once a week for 3 weeks and then that will be it. A friend of mine whom I recently met through the hospital cancer support group (she also had UPSC) and ended her treatments 3 years ago also had a few radiation treatments as well. Her cancer was Stage 2.

    That's great that your cancer was caught at Stage 2. It is still an early enough stage. I know you have a different type of cancer than I was diagnosed with - I was diagnosed with uterine papillary serous carcinoma or (UPSC) - it is a Stage 1, grade 3 cancer. I have heard of clear cell uterine cancer. I wish you all the best. Please do keep in touch via e-mail on this site. I want to hear how you are doing.

    Warm Regards,
    Cheerful

    I am done!
    Hi Cheerful,

    I just finished chemo on July 22 and had an appointment yesterday.
    Again, my onco told me I do not need radiation, and that I am fine.
    He said that the chances of recurrence were less than 10%.

    He also want to order a scan in a year.
    I have a mild abdominal pain, so we are going to wait a week and if pain persist my doctor will order a scan.

    I hope you are feeling well and positive.
    You said you have one more treatment to go. When is it?
    I know you are going to be just fine.
    Please keep me posted.

    PS: I do not know how to send emails from here. If you do, please let me know.
  • cheerful
    cheerful Member Posts: 261 Member
    #25
    Fayard said:

    I am done!
    Hi Cheerful,

    I just finished chemo on July 22 and had an appointment yesterday.
    Again, my onco told me I do not need radiation, and that I am fine.
    He said that the chances of recurrence were less than 10%.

    He also want to order a scan in a year.
    I have a mild abdominal pain, so we are going to wait a week and if pain persist my doctor will order a scan.

    I hope you are feeling well and positive.
    You said you have one more treatment to go. When is it?
    I know you are going to be just fine.
    Please keep me posted.

    PS: I do not know how to send emails from here. If you do, please let me know.

    Hi Fayard:

    Thanks for your e-mail. As far as responding via an e-mail, just hit the reply button and you should be able to e-mail a response. I am happy to hear that you are all done with your treatments and you must be so happy and relieved! I hope you are going to go out and celebrate now that everything is over with. I do plan to go out and celebrate when I am done with all of my treatments.

    My last chemo treatment was supposed to be next Friday, August 26th. However, last week, I received a phone call from my oncologist's office. Apparently, my platelets are very low so I needed to have a blood transfusion. I understand this sometimes does happen during chemo that your platelets become low so I had a blood transfusion (2 pints of blood) last Thursday, plus a Neulasta shot for white blood cells. I felt a lot stronger and better when I left the center after being there just about all day.

    I received another phone call today (Tuesday, Aug. 16th). My platelets are still low and my oncologist's office is postponing my last chemo treatment for next Friday, Aug. 26th until my platelets come back up to near normal I believe. This can be a couple of weeks. They want me to have a blood test done weekly to see where my platelets are. I also scheduled a radiologist appt. for next Wed., the 24th to consult again with the radiologist as I need 3 treatments. My oncologist and radiologist are going to confer with one another. So now I am thinking I won't be done all of my treatments until probably in October. It is a setback, but I want to get better and feel better and go back to my "normal" life and enjoy life each and every day. I have my husband, son and mother that I want to live for plus a lot of friends that genuinely care about me as well and family as well. They are all pulling for me and wishing me well in my recovery and are keeping me in their prayers as well for which I am very grateful.

    Please keep in touch via e-mail and let me know how you are doing and am really happy that you are all done with your chemo treatments and Congratulations! You must have left the treatment center elated and I know I will feel that way once I leave the center as well for my last chemo treatment.

    Warm Regards,
    Cheerful
  • cheerful
    cheerful Member Posts: 261 Member
    #26
    Fayard said:

    Hi
    I just read your posting, and I am happy to hear your prognosis. However, I am curious about you getting radiation. I was diagnosed with uterine cancer, clear cell, stage 2, grade 3. Stage 2 because it invaded the myometrium wall 9mm of 14 mm.
    I am only getting chemo, taxol/carbo, but not radiation. My doctor said I do not needed, because the tumor was taken out during surgery.

    Can toy explain the reason gave you, please?

    Hi Fayard:

    Just wanted to update you to mention that my platelets are now up and my oncologist's office scheduled my Last and final chemo treatment for Wed., August 31st. I will then be DONE ALL of my 6 chemo treatments! Yeah! I do plan to go out and celebrate from this experience. It has been a long and grueling journey, but to me it has all been well worth it as it will save my life and hopefully prevent the cancer from returning.

    Also, I have met with my radiologist and my first radiation treatment is scheduled for Thurs., Sept. 15th and I have 2 more after that and it will be once a week. Then, I will be done ALL of my treatments for good hopefully!

    I know I will have to have scans done and probably other tests done down the road to check regarding the cancer. Hopefully, my cancer will never return and that I will remain cancer free! My CA 125 level was No. 8 which is really very good from the blood test I had done this past Monday, Aug. 22nd.

    I hope you are resting now and enjoying life and enjoy each and every day that you have.

    Keep in touch and I wish you all the best for the future and hopefully you will remain cancer free down the road as well.

    Warm Regards,
    Cheerful
  • Fayard
    Fayard Member Posts: 438 Member
    #27
    cheerful said:

    Hi Fayard:

    Just wanted to update you to mention that my platelets are now up and my oncologist's office scheduled my Last and final chemo treatment for Wed., August 31st. I will then be DONE ALL of my 6 chemo treatments! Yeah! I do plan to go out and celebrate from this experience. It has been a long and grueling journey, but to me it has all been well worth it as it will save my life and hopefully prevent the cancer from returning.

    Also, I have met with my radiologist and my first radiation treatment is scheduled for Thurs., Sept. 15th and I have 2 more after that and it will be once a week. Then, I will be done ALL of my treatments for good hopefully!

    I know I will have to have scans done and probably other tests done down the road to check regarding the cancer. Hopefully, my cancer will never return and that I will remain cancer free! My CA 125 level was No. 8 which is really very good from the blood test I had done this past Monday, Aug. 22nd.

    I hope you are resting now and enjoying life and enjoy each and every day that you have.

    Keep in touch and I wish you all the best for the future and hopefully you will remain cancer free down the road as well.

    Warm Regards,
    Cheerful

    Cheerful
    Hola Cheeerful,

    I am so happy everything turned out well about the plateles, so you can finish your chemo treatments next Wednesday! Just a little more to go, and radiation will be out of the way
    also.

    I had my port removed yesterday. I feel like everything is officially behind me. My doctor ended up ordering an MRI of my abdomen and pelvis upon my request. It came back clean, thank God.
    We will continue praying and be vigilant, so this monster will never come back!

    To celebrate, my husband and I drove to South Lake Tahoe, from home San Diego, on August 15 and returned on the 19th. We visited Benton Hot Springs, Mammoth and Yosemite Park. We had a great time.

    You will be cancer free very soon, if you are not already.
    Please keep me posted.

    Big hugs! (((((HUGS)))))

    PS: Now I now how to email you.
  • cheerful
    cheerful Member Posts: 261 Member
    #28
    Fayard said:

    Cheerful
    Hola Cheeerful,

    I am so happy everything turned out well about the plateles, so you can finish your chemo treatments next Wednesday! Just a little more to go, and radiation will be out of the way
    also.

    I had my port removed yesterday. I feel like everything is officially behind me. My doctor ended up ordering an MRI of my abdomen and pelvis upon my request. It came back clean, thank God.
    We will continue praying and be vigilant, so this monster will never come back!

    To celebrate, my husband and I drove to South Lake Tahoe, from home San Diego, on August 15 and returned on the 19th. We visited Benton Hot Springs, Mammoth and Yosemite Park. We had a great time.

    You will be cancer free very soon, if you are not already.
    Please keep me posted.

    Big hugs! (((((HUGS)))))

    PS: Now I now how to email you.

    Finished with ALL 6 Chemo Treatments as of Wed., Aug. 31st

    Hi Fayard:

    Thanks for getting back to me so quickly. I found out Wed. that my platelets were normal so I had my last and final chemo treatment.

    I was so happy and relieved that I am now done with "ALL" of my chemo treatments. I have been resting the last 2 days and taking it easy. The 2 chemo nurses sang a song to me "Happy Last Chemo Treatment to You" with Tambourines, cymbals and bells that they gave out to a few people to shake and they also laid out a small red carpet that I walked on before I left the chemo center. I thought that was very cute and thoughtful of the chemo nurses.

    The chemo nurses want me to come back and visit with them soon and I will do so probably in a few weeks. I am very grateful to the chemo nurses for all they did for me while undergoing treatment and also to my oncologist and his staff for "saving my life".

    My son who is 17 came with me for my final three chemo treatments and was there with me for the entire time of my last three treatments. I so appreciate him being there for me. He is a wonderful son. He starts his senior year of high school this Tuesday and it should be a fun and exciting year for him.

    Your right, we hope this Monster is finally gone from our bodies for good and it will never come back. It is so important to go for your follow up appts probably every 3 months once your treatments are completed or whenever your oncologist wants to see you again.

    I start my radiation treatments on Sept. 15 and my next one is the 22nd and the last one is Sept. 29. The first radiation treatment will be the longest and then the other two not as long.

    I am happy to hear that you got away for a short trip to celebrate your chemo treatments ending. In fact, I went to Yosemite back in 1976 (when I was in my mid 20s) and I was on a 2 week tour throughout California, Arizona and Las Vegas. The trip was phenomenal and I will never forget it. I flew to California and took a bus throughout California and travelled about 2,000 miles and then flew back leaving from Arizona. I do remember San Diego and it was really beautiful with the ocean and the ships sailing.

    I actually live in the suburbs of Philadelphia, Pennsylvania so I am probably about 3,000 miles from you.

    Anyway, Keep in touch via e-mail and I will do the same.

    Big Hugs to you,
    Cheerful
  • RoseyR
    RoseyR Member Posts: 471 Member
    #29
    cheerful said:

    Finished with ALL 6 Chemo Treatments as of Wed., Aug. 31st

    Hi Fayard:

    Thanks for getting back to me so quickly. I found out Wed. that my platelets were normal so I had my last and final chemo treatment.

    I was so happy and relieved that I am now done with "ALL" of my chemo treatments. I have been resting the last 2 days and taking it easy. The 2 chemo nurses sang a song to me "Happy Last Chemo Treatment to You" with Tambourines, cymbals and bells that they gave out to a few people to shake and they also laid out a small red carpet that I walked on before I left the chemo center. I thought that was very cute and thoughtful of the chemo nurses.

    The chemo nurses want me to come back and visit with them soon and I will do so probably in a few weeks. I am very grateful to the chemo nurses for all they did for me while undergoing treatment and also to my oncologist and his staff for "saving my life".

    My son who is 17 came with me for my final three chemo treatments and was there with me for the entire time of my last three treatments. I so appreciate him being there for me. He is a wonderful son. He starts his senior year of high school this Tuesday and it should be a fun and exciting year for him.

    Your right, we hope this Monster is finally gone from our bodies for good and it will never come back. It is so important to go for your follow up appts probably every 3 months once your treatments are completed or whenever your oncologist wants to see you again.

    I start my radiation treatments on Sept. 15 and my next one is the 22nd and the last one is Sept. 29. The first radiation treatment will be the longest and then the other two not as long.

    I am happy to hear that you got away for a short trip to celebrate your chemo treatments ending. In fact, I went to Yosemite back in 1976 (when I was in my mid 20s) and I was on a 2 week tour throughout California, Arizona and Las Vegas. The trip was phenomenal and I will never forget it. I flew to California and took a bus throughout California and travelled about 2,000 miles and then flew back leaving from Arizona. I do remember San Diego and it was really beautiful with the ocean and the ships sailing.

    I actually live in the suburbs of Philadelphia, Pennsylvania so I am probably about 3,000 miles from you.

    Anyway, Keep in touch via e-mail and I will do the same.

    Big Hugs to you,
    Cheerful

    Congratulations!


    Dear Cheerful,

    Am so glad you've finished your chemo and will soon strt radiation. I too recently finished ALL treatment (six rounds of chemo and five weeks of daily external pelvic radiation) and am feeling just fine--though I DID need a blood transfusion when hemoglobin fell low after 4th round of chemo. As I live in Phila wonder if we're being treated at same center--and why your oncs chose to do all the chemo upfront and THEN the radiation as so many of us were given "sandwich" treatment (three chemos, radiaiton, then three more chemos.) Were you staged at more than IA or IB, I wonder?

    Whatever the case, congratulations. I am feeling just fine myself and know you'll pull through th rest of your treatment with flying colors.

    Best,
    Rosey
  • cheerful
    cheerful Member Posts: 261 Member
    #30
    RoseyR said:

    Congratulations!


    Dear Cheerful,

    Am so glad you've finished your chemo and will soon strt radiation. I too recently finished ALL treatment (six rounds of chemo and five weeks of daily external pelvic radiation) and am feeling just fine--though I DID need a blood transfusion when hemoglobin fell low after 4th round of chemo. As I live in Phila wonder if we're being treated at same center--and why your oncs chose to do all the chemo upfront and THEN the radiation as so many of us were given "sandwich" treatment (three chemos, radiaiton, then three more chemos.) Were you staged at more than IA or IB, I wonder?

    Whatever the case, congratulations. I am feeling just fine myself and know you'll pull through th rest of your treatment with flying colors.

    Best,
    Rosey

    Hi Rosey:

    Thanks for your e-mail. I live in the suburbs of Delaware County, PA and am going to Crozer Chester Medical Center (their Cancer Center) for my treatments as my oncologist is affiliated with that hospital and my gynecologist highly recommended my oncologist as they know one another very well. My oncologist has 35 years of experience and he is extremely knowledgeable about our type of cancer.

    I know you mentioned you live in Phila. I know Thomas Jefferson is one of the top hospitals there. Are you going to Jefferson's Cancer Center?

    I had my 6 chemo treatments already. My oncologist wanted me to wait to see if was going to have additional surgery done for my omentium and lymph nodes, but I have decided Not to have this additional surgery because after my hysterectomy in February, my incision broke open, I had to go back into the hospital for a couple of days, and then I had a home health nurse come to my house to treat and take care of the incision that broke open for about 5 weeks and it healed very nicely. Plus I found out that you can get lymphadema and you would have this on a permanent basis and there is No cure for lymphadema so I thought why risk this additional surgery for the lymph nodes and omentium, plus being cut open again and having this incision possibly break open again. I have been through so much witht his cancer already I feel since January/February and all of this year so far. I am meeting with my oncologist this coming Wednesday, Sept. 21 to mention to him that I have decided not to have the additional surgery. His staff mentioned to me that some women have the surgery done and some don't and he mentioned that there are other things he can do if I don't have the surgery so I will discuss this with him.

    I am still getting over my chemo treatments (the six of them) and will be starting radiation now at the end of this month and into mid October for a total of 3 radiation treatments. I found out today that my white blood cell count is a little low, but should be back to normal very soon, and my platelets are fine (thankfully).

    I hope to beat this cancer and hope that it never returns. My oncologist said hopefully it won't come back on me. I am eating healhier and doing what I can. I have lost over 30 lbs just from the chemo treatments alone. I want to lose even more weight on my own now that the chemo is over with. My cancer was Stage 1 clinically and my radiologist said to me that I have an 80 to 90% chance of survival so the odds are in my favor. I want to live a long and happy life as I have a lot to live for. I have a wonderful husband, son and Mom who is 88 and my Mom survived breast cancer as her cancer was caught at a very early stage back in the early 1970s. I also have a lot of great friends.

    Anyway, thanks for responding and keep in touch via e-mail.

    Regards,
    Cheerful
  • california_artist
    california_artist Member Posts: 816 Member
    #31
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  • california_artist
    california_artist Member Posts: 816 Member
    #32
    Good Grief!
    that didn't work.
  • cheerful
    cheerful Member Posts: 261 Member
    #33
    Ro10 said:

    Jane welcome to the site
    Sorry to have to join us in this journey. You are at a wonderful site though to get your questions and concerns answered. We have all been on the journey, or are currently traveling the journey.

    I hope you are right that they caught the UPSC at an early stage. They too thought I had adenocarcinoma before the surgery, but it turned out to be be stage 3-c UPSC, I had no symptoms before the surgery, but had an abnormal PAP.

    Good luck with you treatments. I hope you have a port scheduled to be inserted. I highly recommend the port.

    Good luck with your upcoming staging surgery, too. In peace and caring.

    Hi Ro:

    I wanted to send you a follow-up e-mail. I know I have not heard from you since I was first diagnosed and right after I joined the website in early April. I found out that I have Stage 1 UPSC (grade 3). I finished "ALL" my treatments by the middle of October including 3 radiation treatments. I finished with Chemo the end of August. I now am wondering what are my chances of a reoccurrence so I called the American Cancer Society and spoke to an oncology nurse and she said 20% or a little higher. I know I am a real "worry wart". I am very hopeful that this cancer (which is aggressive) does not return on me. My oncologist said to me back in March that hopefully this cancer will NOT return on me. He said I have my age and good medical history on my side. I asked him if it does reoccur, what would be done and he said More chemo, but I did read on the Internet that a lot of women with a Stage 1 or Stage 2 their cancer Never returned on them so I am very hopeful that my cancer won't return and that it is gone for good. All I can do is to continue to pray and hope for a great outcome for the future. I know I will be very nervous and concerned over the next 2 years as that is when this cancer can reoccur and especially when I have checkups through my oncologist. My next appt is in the end of January for a follow-up exam.

    I also scheduled an appt with a dietician for this coming Friday (the 18th of Nov.) to find out the foods I should and should not be eating. I have been eating healthier I feel over the last several months. I still do not have my taste buds back fully as the Amer. Cancer Society said it will take 3 to 6 months after your last chemo treatment for them to return so now it has been 2 1/2 months.

    I am enjoying life and I am living my life as normally as possible. I am really glad that my treatments are all over and done with. Also, I did not have the surgery on my omentium or lymph nodes as from my last cat scan I had done a month ago showed there was NO metasis to any of my other organs. I also had a cat scan done the end of March and also in mid June and they showed NO metasis either. I was very happy and relieved to hear these results and felt it was very good news.

    How are you doing and what is going on with you? How are you feeling? I wish you all the best. You can respond to me when you have a chance. Hope to hear from you soon.

    Cheerful
  • Ro10
    Ro10 Member Posts: 1,561 Member
    #34
    cheerful said:

    Hi Ro:

    I wanted to send you a follow-up e-mail. I know I have not heard from you since I was first diagnosed and right after I joined the website in early April. I found out that I have Stage 1 UPSC (grade 3). I finished "ALL" my treatments by the middle of October including 3 radiation treatments. I finished with Chemo the end of August. I now am wondering what are my chances of a reoccurrence so I called the American Cancer Society and spoke to an oncology nurse and she said 20% or a little higher. I know I am a real "worry wart". I am very hopeful that this cancer (which is aggressive) does not return on me. My oncologist said to me back in March that hopefully this cancer will NOT return on me. He said I have my age and good medical history on my side. I asked him if it does reoccur, what would be done and he said More chemo, but I did read on the Internet that a lot of women with a Stage 1 or Stage 2 their cancer Never returned on them so I am very hopeful that my cancer won't return and that it is gone for good. All I can do is to continue to pray and hope for a great outcome for the future. I know I will be very nervous and concerned over the next 2 years as that is when this cancer can reoccur and especially when I have checkups through my oncologist. My next appt is in the end of January for a follow-up exam.

    I also scheduled an appt with a dietician for this coming Friday (the 18th of Nov.) to find out the foods I should and should not be eating. I have been eating healthier I feel over the last several months. I still do not have my taste buds back fully as the Amer. Cancer Society said it will take 3 to 6 months after your last chemo treatment for them to return so now it has been 2 1/2 months.

    I am enjoying life and I am living my life as normally as possible. I am really glad that my treatments are all over and done with. Also, I did not have the surgery on my omentium or lymph nodes as from my last cat scan I had done a month ago showed there was NO metasis to any of my other organs. I also had a cat scan done the end of March and also in mid June and they showed NO metasis either. I was very happy and relieved to hear these results and felt it was very good news.

    How are you doing and what is going on with you? How are you feeling? I wish you all the best. You can respond to me when you have a chance. Hope to hear from you soon.

    Cheerful

    Cheerful, congratulations on completing your treatments
    It sounds like you did well with your treatments. Hope your taste buds return to normal soon. It does take a while for the food to taste good again. Try not to worry about recurrence. You need to enjoy each day. I too hope you never have a recurrence.

    I did complete my second round of chemo treatments in June. I had to have seven treatments this time around. Unfortunately my CA 125 began to rise again after I stopped my chemo treatments. However my CAT scan is stable.

    I have a follow-up appointment on November 29 with my gyn/ono. I will see what his recommendations will be. I also have lab scheduled for that day. The second round of chemo treaments were harder than the first round. I was much more fatigued and had a metallic taste for about 2 weeks after each treatment. I am doing much better now. My hair has grown back now. Yours will be back soon, too.

    Continue to enjoy each day. And may you have a very long dance with NED. In peace and caring.
  • cheerful
    cheerful Member Posts: 261 Member
    #35
    Ro10 said:

    Cheerful, congratulations on completing your treatments
    It sounds like you did well with your treatments. Hope your taste buds return to normal soon. It does take a while for the food to taste good again. Try not to worry about recurrence. You need to enjoy each day. I too hope you never have a recurrence.

    I did complete my second round of chemo treatments in June. I had to have seven treatments this time around. Unfortunately my CA 125 began to rise again after I stopped my chemo treatments. However my CAT scan is stable.

    I have a follow-up appointment on November 29 with my gyn/ono. I will see what his recommendations will be. I also have lab scheduled for that day. The second round of chemo treaments were harder than the first round. I was much more fatigued and had a metallic taste for about 2 weeks after each treatment. I am doing much better now. My hair has grown back now. Yours will be back soon, too.

    Continue to enjoy each day. And may you have a very long dance with NED. In peace and caring.

    Hi Ro:

    I too, wish you all the best with your cancer. Thanks also for your wishes regarding the long dance with NED. I hope the very same for you. That's great that your CAT scan is stable. Hopefully, it will continue to remain that way. Please let me know what happens with your follow-up appt with your oncologist the end of this month.

    I know what you mean about fatigue - I still feel very tired and fatigued and am taking it easy. I know it will take a few more months to feel more back to normal. My hair is coming back now. I had a mid length Bob cut so it will take many months for it to return to that length. I have been wearing a wig since early May. I only wear the wig when I absolutely have to. Around the house I normally do not wear my wig at all only when I go out. A friend of mine that I met though a cancer support group gave me a cap.I have not gone to any of the meetings, but I got her e-mail and phone number. She lives about 20 minutes from me and is about a year younger than I am. She had Stage 2 of UPSC. So far, she is 3 years without it coming back on her so I do feel very encouraged and hopeful. I have met her 2 times over the past few months. I live in Delaware County, PA. In what area do you live?

    As far as going through chemo, I did have a couple of setbacks. My platelets were really low after the 5th treatment in mid August and I had to have a blood transfusion. I felt so much better as soon as I left the chemo center and I also had a shot of Neulasta. I also developed an infection and had a fever and had an intesttinal bug and had it for 6 days in July. But all in all, my oncologist's office said I did fairly well going through chemo. Also, my platelets were still low after I finished chemo and finally now they are back to normal. It took well over 2 months for them to get back to normal. I am seeing my dentist on Tuesday for a gentle cleaning and checkup as I have not been there for a year as I had started chemo in April and had a dentist appt and had to cancel it since I had just started with the chemo.

    I have been reading the posts about Linda P. I am so sorry and saddened to hear of all she has gone through over the past 3 years and now she has liver failure. I am praying for her. I have not e-mailed her since I joined in April and since I am fairly new to the site a lot of women don't know of me. I have heard from a couple of women though and it is good to hear from others that are experiencing what a person goes through with having this cancer. Linda seems to be so knowledgeable and knows so much about UPSC. I know now how truly sick she is. I will keep Linda in my thoughts and prayers.

    I had a really good friend I worked with back in the late 1970s that passed away from Ovarian Cancer back in 2000. She was only in her mid 40s when she passed away and much too young to die. I miss her and think of her from time to time. She left a husband and 2 small children at that time. Her cancer was a Stage 3. I know she went through chemo and surgery. She lived about 3 1/2 years with the cancer. I felt so bad for her husband and kids at that time. Her husband has since remarried. I know our cancers are compared to ovarian that is what my oncologist told me.

    Anyway, I hope you will continue to do well and that we both can beat this bad cancer.

    With Warm Regards and Caring,
    Cheerful
  • Hilajoan
    Hilajoan Member Posts: 21
    #36
    Fayard said:

    Which one is it?
    For what I have read in my surgery biopsy report the following terms mean the same:
    Papillary Serous or
    Clear Cell Carcinoma of the Endometrium or
    Carcinosarcoma

    This is what I was diagnosed back in November, state 3, grade 3 (IIB, II)
    My doctor only recommended 6 cycles of chemo . he said I did not need radiation, because the stage was low (It went to 2 because it invaded the myometrium more than 50%, invasion of cervical stromal connective tissue.

    I hear meny of you have had radiation, and I do not understand why. Apparently, if the tumor is taking out completely, along with the organs around and lymph nodes, you do not need radiation according to the NCCN protocol.

    Can some of you elaborate and tell me what were your doctors rational to do radiation?

    Thank you!

    No radiation?
    My onc. is recommending Chemo followed by radiation, explaining that radiation should help protect the pelvic area from a recurrence. Doesn't apparently extend survival, though, as if the cancer comes back it can come back somewhere else. I'm wondering if even the Chemo is necessary, if there is minimal lymphovascular invasion - however, what do I know? Joan (in London, UK)

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