any stage 4 signet ring cell survivors out there

mmikesell said:

good so far.
My name is Mitch, 48 and I was diagnosed last July with appendix cancer. Stage 3c. It has both Goblet Cell and Signet ring cell cancers, very rare I've since found out. The appendix hadn't exploded yet so they were able to take it out. Had 24 lymph nodes taken 5 had cancer growing. I've had folfox for the 6 months and then nothing detected. At my 6 months my CEA was at 15 (from 4) and after lots of scans a 3/4 inch tumor was found on my abdomen wall. Just completed surgery to have that removed. They found nothing else. The pathology said it was all signet ring cell adenocarcenoma. I go see my oncologist on Wednesday to find out what the next plan is.

My best thoughts and prayers for you!

laurettas said:

Good luck, Mitch! My
Good luck, Mitch! My husband, 58, was just diagnosed with stage 4 signet ring cell cancer of the colon. He had surgery and is now just past halfway on his first chemo treatment. He has cancer in his peritoneum, many lymph nodes and possibly lungs but has responded well to the chemo. Many of the spots are gone and the rest are smaller, CEA down to 13 from a high of 40 after surgery. He has had to leave Folfox after a severe reaction to Oxalyplatin and can't use Avastin because it gave him blood clots. He just had his first shot of Irinotecan last week and is waiting to see if he is a candidate for Erbitux. This is quite a roller coaster ride isn't it?!

mmikesell said:

yeah, quite a ride. On treatment 7 of 12, I went into the bathroom directly after they started the Oxy, locked the door and went into anaphylactic shock. The alarm on my chemo dispense went off and they rescued me from the bathroom. From there on, I was able to take the Oxy at half the speed with a double adult dose of benadryl and 4 times the "ants-in-the-pants". So the first day of the chemotherapy would take me a little over 8 hours to complete. But I was able to stay on it.

laurettas said:

Oh my goodness! How long
Oh my goodness! How long were you passed out in the bathroom? You were very fortunate to have survived that! Interesting that your onc kept you on oxy. My husband's said no more because his reaction was too severe--even though it was not a full-blown anaphylactic shock since he could still breathe.

A couple of questions--what is "ants in the pants"? And what is your chemo schedule? You said that your first day of chemo took 8 hours. My husband gets one chemo treatment every two weeks. He was on FOXFOX plus Avastin but has had to drop the oxy due to the reaction and the Avastin due to blood clots.

Sundanceh said:

You Might Want to Start Your Own Thread
Hey Guys

You guys want might want to open your own thread from scratch to discuss this topic.

This post is a couple of years old and Kapper48 is no longer with us, having lost his fight. He was a good friend, husband and father. Seeing his picture evokes alot of strong feelings.

lovegmf@verizon.net said:

SRC
I was diagnosed in april, 2011 at age 48 with signet ring cell cancer in sigmoid. they tried to operate but it spread in peritoneum. It is scarry at our age. I have chosen not to get chemo at this time. It is Stage IV. Also, my sister was just diagnosed with rectal cancer but not signet ring cell. She has started radiation with chemo pills. Then IV chemo.

Krebs said:

Please help...Thank you

Hello, how are you? Hope all is well. My father was diagnosed with signet ring cell cancer stage 4 in March and it has spread to the abdominal walls. They said surgery is not possible. Started chemo with Oxciliplatin in March. Will have the 5th cycle on Wednesday and a check up soon. He is in his late 60s.

His state of mind is scared. Naturally we all are. Can you please based on your own experience and fact finding tell me what is most effective to kill off this type of cancer? Is there any realistic chance at a cure? Anything particular helpful that you came across? Any additional advice would be greatly appreciated.

Thank you so much.

Michael

Please start a new thread regarding your question.

The thread you are answering to is originally from 2009, with the last post from 2011; Many of the individuals have passed on, making it very difficult for them to answer you.

Those of us that remain on Earth will be happy to offer suggestions, but on a new thread.

Thanks.

Best wishes,

John

just turned 38.  Diagnosed at 37 - 3 months out with chemo headed to Houston for follow up.  Yeah - it's scary but I've built quite a support group.  My work terminated me a week after diagnosis - they found out through transmission of records not authorized.  

You oy are not alone.  i feel I have yet to live

kapper48 said:

tnstudent please respond
You didn't leave your name so I dont know who I am talking to. I was also diagnosed with stage 4 signet ring cell in June of this year. It also spread to my small Intestines and my pelvic area. I started my chemo treatments on Monday of this week and got the pump off today I dont feel to bad other than a little headache, the meds they gave me seem to be working pretty good. If your husband would like to talk I would love to have someone to go through this journey with you can email me at patkapper@jbmarineco.com if you want we can exchange phone numbers and talk also. I am 49 years old with a loving wife and 5 daughters and 5 grand kids so as you can see I have alot to live for. I cant offer much but I know that being able to talk to someone else with the same cancer would be nice
Yours truley
Pat

Hi I see that you were diagnosed with stage 4 in June 2009.  I'm very interested to see how you are doing.  I was orignally stage 3b in 2014 but the cancer came back exactly one year later and is my retropertineal and subclivicular lymph node.  I completed six months of chemo for the recurrence.  Getting scans every three months.  Enjoying the break but have no idea when it's going to start growing again.  Right now all I know is that I am terminal and that I will probably be in and out of treatments for the rest of my life.  I'm being treated at Johns Hopkins in Baltimore.  Medical Oncologist says it's a mystery nobody knows how long it's going to take to come back.  I've had chemo three times and third of my stomach removed.  Diagnosed when I wa 45 years old I'm now 48.  So scary!!!  Would like to know how you are doing?  I realize everyone is different but we are close to the same age.