How far out were you when were you able to eat regular food again?
neilswife
Member Posts: 27
My husband completed chemo (taxol & carboplatin, 9 times, once a week) last week. Yay! He has 9 more rads (of 34) and he's finished! What a happy day that will be!
He has lived on 3 high calorie, high protein shakes a day & has been able to keep the weight on without a peg. He is wanting to eat regular food so bad. When were you able to finally start eating again?
Thanks in advance!
Tammy
He has lived on 3 high calorie, high protein shakes a day & has been able to keep the weight on without a peg. He is wanting to eat regular food so bad. When were you able to finally start eating again?
Thanks in advance!
Tammy
0
Comments
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Tammy
You can't judge by others and I would warn you not to become so anxious for normal that you force it and mess up. I know because I did that probably worse than anyone on the board. He is healing now and will know when he can eat again and if you have a deadline and don't make it then he will get frustrated and depressed. Everyone can and will tell you how long it took them but the fact is; IT ALL DEPENDS.
Only promise now is he is healing and will be to his new normal a bit each day. Be happy for that.
Denny
PS My first normal food was bread pudding. Burnt like hell but I at it and then three more.0 -
Welcome
Welcome to the forum Tammy....congrats on your husband's progress...
For me similarly, sixteen total weeks of chemo and concurrent chemo/rads, also no PEG. It was probably a good two months to start eating anything with much substance...mostly creamy soft types of foods...
Best,
John0 -
Every one is different.
Denny has a good point. Not to be a Debbie Downer, or I suppose a Dawnie Downer in my case, but It can take a while. Once you are done with radiation, you don't usually start feeling better right away, a lot of us got worse, because you continue to cook for a couple of weeks. It can be really frustrating and pretty depressing.
Could be a couple months or more for him to be eating mostly normal.
Being in severe pain with radiation with my mouth and tongue SUCKED, but not being able to eat, by far, sucked even more. It was frustrating not to be able to eat. I'm not a nice person when I'm cranky, and man, was I cranky. I am still here though, at almost three years out from when I found the lump in my neck, and I am eating good foods, albeit extremely slowly (I have a stricture) and I have had to learn how to prepare foods differently and change my diet, but I am thrilled to be eating and cooking again. I was always a girl who 'lived to eat', so I am counting my blessings and happy to be peg free.
If he has maintained his weight with out a peg tube, that is excellent. That could mean he may return to eating foods more quickly than some. I was completely reliant on my peg for food for 9 months and had it for a total of 18 months, which is a very long time, and not really the norm.
Taste and smell will slowly come back, and most people start with smoothies, soft foods, and things like puréed soups first. Sometimes there are foods you may have to avoid after having had radiation for a while or forever that can cause mouth sores and irritation. Like high acid foods, like tomatoes, vinegar, pineapple, papaya....
Wishing you both well. Hope your hubby finishes his treatment and his healing time is quick.
Sweet0 -
Yes, Welcome
Hi Tammy and welcome to the forum. That your husband has been able to keep the weight on without the peg is certainly encouraging news. As has been stated, everyone is different when it comes to recovery times and eating once again.
I didn't need the peg during treatment also. I noticed a very miniscule improvement in swallowing ability after about 2-3 weeks post treatment. It was a very gradual progression from there. In addition to the difficulty in swallowing certain foods, many things tasted like absolute crapola.
Experiment with different foods until he finds things that taste good. Fresh veggies were some of the first things that began to taste good to me, particularly radishes and onions. I've always liked onions, but now they taste really good to me. The taste may change from one week to the next, what doesn't taste so good today may suddenly be more tasteful next week.
I am 1 year out now and can eat most anything and it tastes good. I still have a bit of dry mouth, but its not bad enough that I can't eat a PB&J sammich. Cheers.
Jimbo0 -
Define "eat regular food"
The answer depends on what you mean by "eat regular food". I still depend on a lot of liquids, nutritional shakes and Carnation Instant Breakfast, and I'm over a year out from treatment. However, I never did completely quit eating regular foods. Hc can probably start to try, as soon as his mouth and throat heal up enough that it doesn't hurt to do so. Very soft cooked foods, in very tiny bites, very slowly, with lukewarm liquids nearby to assist the swallow. I found soft eggs and soft vegetables to be the best.
When I was in treatment, I wanted to eat their tri-tip and prime rib so bad, I'd put my face into my family members' plates and just inhale the wonderful smells. I'd actually put a bite into my mouth to test the flavor, and then spit it out. As I continued to heal, I was actually able to chew up tiny bits, and then even later, to swallow them. Kind of gross, but yummy. Taste does come back, so always keep trying the tasteless stuff. Eventually, you will be able to taste it again. I did find that I wasted a lot of food for a while. He will get there.
Deb0 -
Food Again
My husband had his last radiation treatment December 31, 2006 and he didn't feel like eating until January 15. I was moving my daughter back to school and he called me and said I feel like eating a steak !!!! Hallelujah, I stopped at a restaurant and got him one on my way home. His throat hurt a little but he got it down. It was the first time he was hungry since starting radiation (5 weeks). He also didn't get a peg. Good luck to you both !!0 -
Hi Tammy
Like everyone said we are all different so take it easy on putting a time frame on when taste and eating will come back.
My first taste was 2 ½ months after treatment stopped and it was Popeye chicken. It was just a small taste like taste in my mouth, but it was all that I needed to tell my brain it was coming back. Nothing is the same after treatment we call it our New Normal.
PS: Welcome to the family here on CSN
Hondo0 -
EVERYONE IS DIFFERENT
Hi, I think you will find out that everyone is different when it comes to how much time it takes, and what types of solid or "real" food one can eat. I had a feeding tube for 4-5 months and was glad I did. I got off to a real slow start with the eating. I had thrush 4 times and staph 3 times.
I am 10 months out this week, and with a lot of hard work on my part and just trying new foods every day, I am about 80% back to normal. To this day, I cannot tollerate anything even remotely spicey of my head will pour down sweat. I used to be able to eat a raw Habenero Pepper with no problem.
If I can offer any advice, always keep eating foods that you can swallow easily to keep the muscles working and insert something new into your diet evry day. When I go out to a resturant now, I insist on trying a new type of food, or the same food item, but prepared differently. Sometimes it works well, and sometimes I have to run to the bathroom and yak in the sink as I choked on something.
Keep pushing forward!!
Mike0
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