Chemo and Radiation at the same time...Has anyone experianced this?

Your friend is my twin ...
... diagnosis-wise, and Stayingcalm is my twin treatment-wise.

The stats say the double whammy does increase your odds of success somewhat, and I can tell you it is tolerable. I'm 13 months past the end of concurrent Cisplation, Etoposide, and radiation. I have to say, compared to what it could have been, it was pretty much a day at the beach. Other drugs they had me on (the effects of none of these are perceptible in a negative way):

At the center:
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Decadron (steroid): Anti-nausea
Kytril: Anti-nausea
Some mild anti-anxiety thing (can't remember what)
Some other little red pill: To make you pee like crazy when they're dumping in the Cisplatin.
Gallons of water: To go with the little red pill. Your kidneys need to see the Niagara River when you're on one of those platinum drugs.

Take home:
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Compazine: Anti-nausea. They give you a lot of them, and I think I have a full bottle left. I felt only the slightest hint of nausea maybe twice. No problem.
Orange Kool-Aid looking stuff (forgot the name) that you dab on any radiation "sunburn" Pretty much an inconvenience more than anything else.

The only real side effects I had were hair loss during the second Etoposide treatment, and roasted esophagus (painful swallowing) that started about two weeks from the end of radiation. Both of those are likely to happen whether or not you get the radio and chemo concurrently.

My only specific advice would be to get a lot of rest, and be a nazi about totally avoiding any people or activities that could expose you to any source of contagion or infection. When the white cells are low from chemo, it can be easy to pick stuff up, and I don't think you'd want to be sick along with having treatments. I was pretty much a hermit, and I didn't catch a thing. Also, if the radiation pattern is going to get anywhere near his esophagus, start eating as though you already had the swallowing problem (e.g. lots of near-liquid and bland stuff; nothing sharp or acid) right away. It may delay the onset of symptoms.

Your friend can get through this!

after treatment is over.
i have been waitig for my report too come back. i finished up everything about a month ago. any way my tumor had shrunk 40% more. i was so happy. of course they will watch what the rest of the tumor is doing. i have started having terrible joint and neck pain. had too go too the er sunday night. today the dr wants too put in a pain pump. this sort of frightened me because he does not seem too know if this is arthrhitis or not. i can not move my neck except down ward. this dr today was a specialist. why not keep me on the pain pills too take the edge off of it. has anyone had pain like this after rads and chemo was over? you all are so supportive and i wanted too share my news with you.

CSquaredaway said:

Chemo/Rad
It sounds like your friend could be me! Like a few others have posted, I too was on Cisplatin & Etoposide and did the radiation concurrently. My routine was chemo and radiation for 7 days, no chemo but radiation for another 7 days, then back to both for 7 days. I did that for a couple months. Everyone reacts differently but, thankfully, I held up rather well. No nausea, etc. I was 59 at the time. This routine seemed to be very effective as the tumor was reduced to next to nothing.

Chemo/Red
I did both at the samt time. I had 37 treatments of radiation and six rounds of Chemo Carbo/Taxol then a three week rest then a full does of chemo Carbo/taxol then another round three weeks after that. They did a pet scan two weeks after treatment on 8/14/11 which showed the tumor shrunk from 9.6cm to 4.2cm. I have a doc appointment Monday and the Oncologist wants to do more chemo same stuff carbo/taxol. The only real bad side effect so far from the treatments has been fatigue and numbness in my feet and hands.

Good luck with your tretments

aggressive radiation and chemotherepy
I have small cell lung cancer which is more systemic than large cell basically eliminating the posibility of surgery. The best treatment according to my Oncologist is aggressive Radiation and Chemotherapy. I've completed 6 weeks of radiation and started my 6th (3-day) chemotherapy today. The Radiaologist told me my Esophagus would start burning after 2 weeks and it did and I had 4 more weeks to go. After finally completing the 28 treatments my throat became extremely sore. I could not eat anything and had to be hospitalized for fluids and blood. It remained that way with only slight improvement after 9 weeks now. The Radiation was administered to me at 8 different angles circling my back, sides and major radiation straight on my chest. Do research on radiation. If he requires more than 2-3 weeks, he may want to reconsider his options. I would have if I had known the side-effects. I'm still wondering if I have permenant throat damage.

a-positive said:

aggressive radiation and chemotherepy
I have small cell lung cancer which is more systemic than large cell basically eliminating the posibility of surgery. The best treatment according to my Oncologist is aggressive Radiation and Chemotherapy. I've completed 6 weeks of radiation and started my 6th (3-day) chemotherapy today. The Radiaologist told me my Esophagus would start burning after 2 weeks and it did and I had 4 more weeks to go. After finally completing the 28 treatments my throat became extremely sore. I could not eat anything and had to be hospitalized for fluids and blood. It remained that way with only slight improvement after 9 weeks now. The Radiation was administered to me at 8 different angles circling my back, sides and major radiation straight on my chest. Do research on radiation. If he requires more than 2-3 weeks, he may want to reconsider his options. I would have if I had known the side-effects. I'm still wondering if I have permenant throat damage.

same as my boyfriend almost
My boyfriend is going through the same thing. 2 and a half weeks down and his throat hurts real bad it his chest and back burn. He is still eating because he doesn't want to be in the hospital. The doctors say he is doing good. But he still has 4 weeks and 2 days left. Just worry about this.

lovehim said:

would lots of sleep help
This sounds like what is happening to my boyfriend after almost 3 weeks of treatment. We have a little more then 4 weeks left. Its taking a toll on me. Do you think he should always stay inside? Should he basically just sleep? He quit work and the only thing is he wants it gone. Putting everything on hold including us and don't like that.

love him
I know you love him, as a spouse of a cancer patient, I know it's hard on you. You have to try to understand that he has to deal with this in his own way. Just be there to support him, hold a hand, listen to his complaints, and sometimes you have to walk away to give yourself some time to de-stress and allow him the space he needs. You have to keep your strength up to keep you positive, healthy, and able to care for him if he will allow it. He needs to know you are okay even if he isn't giving you as much attention as he once did because he has to focus on healing himself right now. My husband even made me promise not to cry so I have to do that in the car on the way to and from work so I don't do it around him. It hurts him to know it's hurting me.

Let him make the decisions that he feels are best for him. They may not be what you would choose for him but he has to live... or die ... how he feels most comfortable. You have to make decisions for yourself too. Unfortunately, it sometimes takes putting "us" on hold for the sake of one. You have to love him enough to let him go and remember love is still love where ever each of you are, whatever each of you are dealing with on your own or together.

I try to remind myself that he is an adult, he knows the consequences of his choices, and as long as it is not illegal, he can do whatever he wishes as long as he is ready to deal with what comes with it - pneumonia, set backs, etc.

Take care and hang in there!