Lymphoma Workshop in Minneapolis

allmost60 said:

Great!
Hi Janelle,
I think this is great! I told you in a prior post that I'm also going to a workshop in September. It's in Seattle...Steve and I are going over the day before and plan to make a mini trip out of it. I'm quite excited and have a nice list of questions I hope to get answered. Mine is only for one day..8 hours(Sat 24th).
Much love...Sue (FNHL-2-3A-6/10)

I wonder if it's the same
I wonder if it's the same workshop / specialists who are traveling the country. mine is also 8 hours.

we'll definitely have to compare notes! I have one question: Are there any men who have joint pain from ligaments/muscles that are tightening up to protect the joint? My oncologist insists my pain is from a drop in Estrogen, but my regular physian doesn't want to put me on estrogen as I've been through the worst of night sweats and hot flashes, why go thru that again and I will when I'm taken off estrogen. so I need to know is it estrogen drop or is it from the chemo treatments. If a man has the same issues after Treanda-Rituxan treatment, then I will know to continue seeking other help. Janelle

allmost60 said:

Same workshop??
Hi Janelle,
The workshop I'm going to is put on by the Lymphoma Research Center(LRF). I'm on their mailing and e-mail list and get cancer information on a regular basis. Go to lymphoma.org/workshops and it will give you a list of workshops taking place throughout the country. BTW...I was taken off all estrogen last summer before treatment. My onc said the premerin (HRT) I was taking, feeds cancer. If you don't mind me asking...what form of estrogen are you taking. Precribed, or all natural? Thanks...Sue (FNHL-2-3A-6/10)

not on any estrogen supplements
I'm not taking any estrogen. the chemo treatments through me into menapouse hard and fast. I hard a partial hysterectomy when I was 29 and I'm 53 now. so I'm the correct age to be going through the symptoms, but just didn't have any. all my friends said, I'm going to be one of the lucky ones. then a couple months after treatments, I got night sweats and hot flashes continuously for six months, plus the achy stiff muscles tendons that made it hard to walk, etc. So life around me was tough - my very understanding husband was still so good to me. he's a saint!

I no longer have the night sweats and once a month maybe I'll get a hot flash - but only if I'm in an uncomfortable situation and get anxious.

My oncologist still insists the achy stiffy muscles that make me feel 100 some days, is because of the drop of estrogen. my regular physican doesn't want me to take estrogen because when I go off it (someday) I will again go through the night sweats, hot flashes. so why do that she said? it doesn't make sense.

so does that mean, I have to live with these muscles that tighten up and make it difficult and painful to walk? I don't know. Flexeril does help, so I'm grateful to have something to take the sharp edge off the pain.
Janelle