Adult Wilms Tumor

Janabug
Janabug Member Posts: 2
in Kidney Cancer #1
Hi. I am a 29 yr old currently going thru treatment for Wilm's Tumor. Until my diagnosis six months ago I knew nothing about Wilms but have to come to know that this is primarily only found in young children. I was wondering if there was anyone else that has had Wilms as an adult?

Comments

  • JayeRad
    JayeRad Member Posts: 1
    #2
    Adult Wilms patient
    Hi. I had Wilms in 2002 at 26 and again last year at 34. Keen to talk or swap stories if you are. Jaye
  • Janabug
    Janabug Member Posts: 2
    #3
    JayeRad said:

    Adult Wilms patient
    Hi. I had Wilms in 2002 at 26 and again last year at 34. Keen to talk or swap stories if you are. Jaye

    I've only talked to two
    I've only talked to two other people with adult wilms. I am 29 and diagnosed with stage III this past Nov. To complicate matters I was 31 weeks pregnant. The decision was made that surgery to remove left kidney/ and the tumor was needed asap. They waited two weeks for the babies sake and then I had my son, then a week later surgery. A week and a half after surgery I started radiation and chemo. My son spent 6 weeks in the neo natal unit but is perfectly healthy now. My last chemo treatment was June 20 this year- so far everything looks good. For the first year I will have quarterly testing. I would love to hear more about your experience and how your doing now. Sorry to hear yours came back--hopefully all is well.
  • jona187
    jona187 Member Posts: 71
    #4
    Janabug said:

    I've only talked to two
    I've only talked to two other people with adult wilms. I am 29 and diagnosed with stage III this past Nov. To complicate matters I was 31 weeks pregnant. The decision was made that surgery to remove left kidney/ and the tumor was needed asap. They waited two weeks for the babies sake and then I had my son, then a week later surgery. A week and a half after surgery I started radiation and chemo. My son spent 6 weeks in the neo natal unit but is perfectly healthy now. My last chemo treatment was June 20 this year- so far everything looks good. For the first year I will have quarterly testing. I would love to hear more about your experience and how your doing now. Sorry to hear yours came back--hopefully all is well.

    I wish you three best of
    I wish you three best of luck and recovery with your journey :)
  • luckyone51
    luckyone51 Member Posts: 1
    #5
    wilm tumor adult
    Hi there I was dignosis with wilms tumor, that I knew nothing about when I was 33 years old, I was very lucky they said another month and it would of been different, had a bad back ache and went to a very special doc that just got out of mecical school he looked at me and said you you got something wrong with your kidney you are yellow I thought I had a good tan hahah, Doc ran some test that day and found my left kidney the size of a football, and they wanted to take it out the next day I said oh no its my brithday they said if we dont this would be your last, so I went thru the cemo and radition and came out fine , Now its been 27 years and I feel like th luckies person, years later I went to talk to doc after my "cancer walk" he said I was his mircale person cause five went in with kidney problems and I was they only that left, wow, he said I had it as a child, said no one ever cared about me growing up, wow , so you will get better and live a great life I.ve been marries for 40 years and loving my retirement every day it a blessing for me, Willow in tenneesee

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