23 Year Suvivor Here - ER visit - even more new symptoms and no answers

Sigh. Same old story. New symptoms, heavy duty symptoms, drive to the Emergency room, wait for hours, doctor looks at me like I'm nuts with symptoms, they take xrays and come back with new attitude after seeing them but NO ANSWERS.

Finding of these last xrays was NOTHING, as usual, but then why am I having a new horrific centralized pain on the side of my thigh? The pain is about a week old, comes and goes with hours of pain when it recurs. Pain is so bad I get nauseous and no pain med helps. I can't believe it's my fibromyalgia and the ER doctor said that it could be a bleed from blood thinners but he doesn't see signs of it or it could be even 'fat necrosis'. There is a word you don't like seeing in a diagnosis 'necrosis'. YIKES. Anywho he let me go with a prescription for a biggy pain killer and the usual 'if it gets worse' get your butt back in here advice. You guys are familiar with that. Well that was a waste of a day. Sigh.

I am in Canada and we don't have late effects clinics so I am trying to go through our big cancer hospital in Toronto to see if they can find someone to help me but I guess this is just the last straw of the whole 'eye rolling' looks of doctors when I present with symptoms which, over the years, have all come out to validation by the medical community but til they catch up with symptoms I report I have to put up with this invalidation and it's getting old. I came to this site section of long term survivors cause so many of you know exactly how it goes.

My family doctor who I have had for years seems kind of sick of me and that is really contributing to this feeling of abandonment of my health situation and invalidation. I can not have a mammogram, ever since my first cancer treatments, due to excrutiating pain even at the start of the test and since I have been radiated like crazy I am at higher risk of breast cancer. Anywho I had requested ultrasounds instead and in the past years I was successful in getting them. All of a sudden my doc sends in a request to women's breast screening and it's turned down. WHATTTTTTTTTTT???

So I spend 2 whole days calling everyone here where I live and in Toronto to try to get help in getting an ultrasound only to find out after talking to about a dozen or more people in breast cancer screening that they have decided to let me have the ultrasound (GEE THANKS, SHEEESH), AND I find out that the reason they wouldn't give it to me wasn't what looked like the system putting more restrictions on who could get an ultrasound over a mammogram, they tell me my own GP didn't send back their requests for more detailed reasons as to why I need one. WHATTTTTTTTTTTTTTTTTTT???? No time I guess to report all the reasons. I was crushed.

Anywho, as many of us long term survivors soon realize, we are on our own - advocating for our own health care til we get it. I did. But, I was totally stressed out and upset in so doing. Ridiculous. Sound familiar long term survivors out there?

When the screening program called to argue out why they weren't giving the ultrasound to me it was said that I had to understand that first priorities are given to women who already had lumps in their breasts and I told them I understood but at the same time I didn't like being told that so that it made me feel as if I wasn't a priority since I was damaged by treatments and harsh ones years ago and without breast screening methods that would help my situtation, not screened for years. I was told it might be months. Why should I be made to beg for help and then spoken to like that and then postponed as if they are doing me a favour? I told them that.

So the next day I get the call from them that yes I would have an ultrasound and it would be the second week of April, that was way earlier than first promised. I guess someone must have thought over what I said.

All could have been avoided by my doctor giving them a few more details. Unreal.

Anywho just one of those humps that many long term survivors must navigate. I'm tired, how about you? I probably sucked in the bubonic plague or something too yet waiting in the ER for as long as I did too. You know, just as a bonus. Sigh. lol.

Blessings,

Bluerose