Stem cell transplant

donette26
donette26 Member Posts: 3
in Lymphoma (Hodgkin and Non-Hodgkin) #1
Does anyone here had a Allogenic stem cell transplant and how was it after your 100days?

Comments

  • dixiegirl
    dixiegirl Member Posts: 1,043 Member
    #2
    Transplant
    Sorry, I had an Auto transplant the beginning of June. I'm doing ok, still trying to get some energy back but feeling great.

    I had to stay at Hope Lodge for 5 weeks due to distance from the hospital. That was hard staying away from home but doable.

    Good luck to you!
    Beth
  • jonthebay
    jonthebay Member Posts: 8
    #3
    dixiegirl said:

    Transplant
    Sorry, I had an Auto transplant the beginning of June. I'm doing ok, still trying to get some energy back but feeling great.

    I had to stay at Hope Lodge for 5 weeks due to distance from the hospital. That was hard staying away from home but doable.

    Good luck to you!
    Beth

    I was reading posts here and see you and I both started out with Non hodgins Lumphoma. Sounds like you have gone through so much though. Mine was also in the groin area. I'm now on the E-Poch treatment. Do you go to Moffitt in Tampa Florida? All my information is in my profile to catch you up to date. Though now I have just finished my 3rd 5 day treatment so I'm hoping this is the "true" halfway mark for me. I go for CT and PET this coming week so I'm hopeful this truely is the halfway mark and not just a stepping stone to yet another treatment. That has to be so very hard to hear that there is more treatment to come when you think you're closing in on the real ending?! How did you handle that? I'm hoping to perpare myself for whatever the outcome might be next week with my CT and PET. Just hope I can be as strong as you seem to be to handle it. So any tips would be grateful for here ! Thanks for your time and best always to you through this hard time in life.
    Julian
  • dixiegirl
    dixiegirl Member Posts: 1,043 Member
    #4
    jonthebay said:

    I was reading posts here and see you and I both started out with Non hodgins Lumphoma. Sounds like you have gone through so much though. Mine was also in the groin area. I'm now on the E-Poch treatment. Do you go to Moffitt in Tampa Florida? All my information is in my profile to catch you up to date. Though now I have just finished my 3rd 5 day treatment so I'm hoping this is the "true" halfway mark for me. I go for CT and PET this coming week so I'm hopeful this truely is the halfway mark and not just a stepping stone to yet another treatment. That has to be so very hard to hear that there is more treatment to come when you think you're closing in on the real ending?! How did you handle that? I'm hoping to perpare myself for whatever the outcome might be next week with my CT and PET. Just hope I can be as strong as you seem to be to handle it. So any tips would be grateful for here ! Thanks for your time and best always to you through this hard time in life.
    Julian

    Hi
    I live in Kansas. I wish you the best of luck with the EPoch chemo and hope the latter half goes smoothly for you. CT/PET scans always freak me out just keep your head high and positive thoughts!

    Relapse is definitely a part of NHL indolent, but there is always hope my friend! Just take it a day at a time.

    Don't worry too much (easier said than done) I know.

    Take Care,
    Beth
  • JoanieP
    JoanieP Member Posts: 573
    #5
    jonthebay said:

    I was reading posts here and see you and I both started out with Non hodgins Lumphoma. Sounds like you have gone through so much though. Mine was also in the groin area. I'm now on the E-Poch treatment. Do you go to Moffitt in Tampa Florida? All my information is in my profile to catch you up to date. Though now I have just finished my 3rd 5 day treatment so I'm hoping this is the "true" halfway mark for me. I go for CT and PET this coming week so I'm hopeful this truely is the halfway mark and not just a stepping stone to yet another treatment. That has to be so very hard to hear that there is more treatment to come when you think you're closing in on the real ending?! How did you handle that? I'm hoping to perpare myself for whatever the outcome might be next week with my CT and PET. Just hope I can be as strong as you seem to be to handle it. So any tips would be grateful for here ! Thanks for your time and best always to you through this hard time in life.
    Julian

    Julian
    I live in Indian Rocks Beach near Tampa and Moffit is the best. God bless you on your journey.

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