Chefdaddy Update

My dear friends,
Thank you all for your kind words and prayers.
A few days ago my sons team of doctors came into his room in the morning after another repeated night of severe pain. They asked me how the night went though the night nurse had already had told them that he maybe had two hours of sleep due to the pain. This was around day 26 of being in the hospital. My kids and I then braced ourselves to hear the bad news we were hoping not to hear, that his liver had started failing and the end was near. His ammonia levels had jumped exceedingly high a few nights before which is the bi-product of a failing liver. To our complete amazement they instead told us that the fast rise was an incorrect reading probably due to the blood that had been drawn for the test had most likely not been put on ice fast enough. But what really blew us away was that they went on to tell us that the other parts of the blood tests had showed that his liver had in fact survived the full treatment of chemo and that a bone marrow biopsy was scheduled for next Wednesday which will officially determine if he is once again back in remission! Praise God!!! This is a total miracle! A month ago they gave him absolutely no hope of surviving and that he had about two weeks. They told him that they might be able to give him a low dose of chemo and that it might give him a month, but the risk of causing his damaged liver to completely fail was great. He then asked if they could give him the full dosage of chemo to completely kill the leukemia and they said "no" that it would certainly put his damaged liver into complete failure and that it would be a very painful death. He then told them that he wasn't going to just sit around for two weeks waiting to die and that he wanted the full dosage. They finally agreed to grant his wishes and here we are now! Praise God! It was an extremely frightening month of one set back after another, but God is faithful. I am so very proud of my very brave 15 year old son who has been fighting this damned disease since 2006.

I bring him home tomorrow. I am very nervous as his white blood cells are still low and he is neutropenic and he can barely walk using a walker and with my daughter and I holding him up with his gate belt.

I need to jump off but I will try to get back soon to give you another update.

I love you all!
Mike

Comments

  • Greend
    Greend Member Posts: 678
    Great news
    Mike,

    This is fantastic news and will make a lot of your supportes very happy. I know you must be on cloud-nine.

    Hang in there.

    Denny
  • Hondo
    Hondo Member Posts: 6,636 Member
    Greend said:

    Great news
    Mike,

    This is fantastic news and will make a lot of your supportes very happy. I know you must be on cloud-nine.

    Hang in there.

    Denny

    Daddy Mike
    I am extremely happy to hear the good news and that his liver is holding up to the chemo. Like you said God is so good.

    Still in the Lords Workshop
    Hondo
  • fisrpotpe
    fisrpotpe Member Posts: 1,349 Member
    Our
    Our God is an amazing God!

    Loving the news. Enjoy the home time along with more down the road

    John
  • CLRRN
    CLRRN Member Posts: 127
    Something bigger than us....
    Hi Mike,

    Thanks for sharing the great news. Although his counts are low, I'm sure there is no other place he would rather be than in the comforts of his home w/family as he heals. Our prayers will continue and we'll be thinking of you on Wednesday.

    God Bless....

    Chris
  • Jason1111
    Jason1111 Member Posts: 64
    Oh that is such woderful
    Oh that is such woderful news! It sickens me to see a young child or young adult go through what your son has gone through. I hope for the best for your both!!
    Take care
    jason
  • staceya
    staceya Member Posts: 720
    Jason1111 said:

    Oh that is such woderful
    Oh that is such woderful news! It sickens me to see a young child or young adult go through what your son has gone through. I hope for the best for your both!!
    Take care
    jason

    Amen!
    So glad to hear!
    Stacey
  • pattyanny
    pattyanny Member Posts: 544
    How Great Is Our God!
    Truly the Power of Prayer & Faith!!! God Bless you and your family! Thank God for this news, and for your boy who is fighting so hard! Amen!
  • sweetblood22
    sweetblood22 Member Posts: 3,228
    pattyanny said:

    How Great Is Our God!
    Truly the Power of Prayer & Faith!!! God Bless you and your family! Thank God for this news, and for your boy who is fighting so hard! Amen!

    I woke up this morn wondering if I should text..
    ...or email you. I hate be a pain, but I had really been wondering the last few days.

    So happy to find this update waiting for me today, and even more joyous that it's a good update!

    Prayer of thanksgiving, for sure!!!

    Hugs and prayers for you and the kids.
  • Fire34
    Fire34 Member Posts: 365
    Great News
    Mike
    I am glad things are working out for you and your family have finally received some good news. Prayer is a powerful weapon agianst this beast. Again glad to hear the good news. More Wishes & Prayers
    Dave
  • Toni08
    Toni08 Member Posts: 39
    hope
    Your son's determination and fearlessness are truly commendable. The world needs more people like him and I am so glad to hear this news. God Bless
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    Awesome News
    Great news buddy....so happy for you and yours,

    Best,
    John
  • Pam M
    Pam M Member Posts: 2,196
    You Need To Jump Off??
    Amazed you were able to jump ON, what with all the jumpin up and down you must still be doing. I put in my "Thank You" = I can't tell you how happy I am to hear this news about a young man I've never met - but I'm sure you can guess. Maybe this is just part of your compensation for the troubles you all have had. Wonderful - wonderful. Have a magical Sunday.
  • jim and i
    jim and i Member Posts: 1,788 Member
    Praise God from whom all
    Praise God from whom all blessings flow! Miracles still happen. May your son continue to heal and gain strength. What a great witness to the power of prayer and a testament to God's continuing miracles.

    Blessings
    Debbie
  • Glenna M
    Glenna M Member Posts: 1,576
    Wonderful news!!!
    Wonderful news Mike. I will continue to keep you and your children in my prayers.

    My best,
    Glenna
  • kingcole42005
    kingcole42005 Member Posts: 178
    Wow your son is an inspiration.
    Wow your son is an inspiration. I have a 15 year old son as well, and my heart aches for all the suffering your son has been through. I will send many positive prayers your way. Your son is living proof miracles do happen! Your family has been truly blessed. Shelly
  • Jan Trinks
    Jan Trinks Member Posts: 477
    What a Wonderful Surprise
    Mike:

    It was so good to see your post and update. Praise the Lord your son has tolerated the treatment. Hope it goes well at home and wbc gets where they're supposed to be and I trust you're doing well. Prayers for you and your family will continue as always. God Bless!

    Jan (Basketcase)
  • luv4lacrosse
    luv4lacrosse Member Posts: 1,410 Member
    MIRACLE
    Mike, what great news to hear for you and your family. I am praying that more positive results will follow.

    God bless!!

    Mike
  • Daddisgrl
    Daddisgrl Member Posts: 116
    Please keep us posted. No 15
    Please keep us posted. No 15 year old should know what cancer is :(