Acute Promylotic Leukemia - AML

kavi2906
kavi2906 Member Posts: 12
in Young Cancer Survivors #1
Hi,
I was diagnoised with AML -M3 in May 2011 . Any person suffering from the same disease please respond as i need to talk about it.

Kavita

Comments

  • Boner Donor
    Boner Donor Member Posts: 1
    #2
    Your In For A lot
    Hi, I don't have AML leukemia but I have ALL Leukemia which is the better of the two. I though relapsed meaning it came back so I was almost in the same boat as you. My road map is very similar to AML treatment protocol. I got many of the same chemo's as you. I have just finished intensive treatment and I'm now into maintenance. Still relapsed ALL is a little easier to beat then AML even though my treatment took 15 months to complete.

    What is it you'd like to talk about. All I know is that AML is a real pain to beat and you need to be prepared. If you are an adult that will be even harder. I went through my treatments as a childhood cancer which usually sees better results in getting cured and less casualties. The older you are usually the harder.

    The biggest pain for me were the in patient stays. You will have to stay in the hospital for 2-3 weeks at a time for MANY times. There different levels of cancer difficulty. Some are much easier then others. AML is not one of those easier ones. Even though I suffered a lot, I don't how AML patients can deal with what they are thrown and I've been through a **** lot.

    All I can say is get someone to stay with you at those in patient stays. My Mom took care of me and made the time and pain go through faster. Doing those stays alone really sucks.

    There is a chance you might get a bone marrow transplant, I've never done one but they are really intense but it could actually cut your treatment length in half.

    How old are you? Age plays a huge factor in cancer treatments.
  • rathgirl
    rathgirl Member Posts: 138 Member
    #3
    Hi
    I had that exact type. feel free to send me a message on here and we can talk. :) everything will be ok.
    Praying for you,
    Krysten
  • kavi2906
    kavi2906 Member Posts: 12
    #4
    Boner Donor said:

    Your In For A lot
    Hi, I don't have AML leukemia but I have ALL Leukemia which is the better of the two. I though relapsed meaning it came back so I was almost in the same boat as you. My road map is very similar to AML treatment protocol. I got many of the same chemo's as you. I have just finished intensive treatment and I'm now into maintenance. Still relapsed ALL is a little easier to beat then AML even though my treatment took 15 months to complete.

    What is it you'd like to talk about. All I know is that AML is a real pain to beat and you need to be prepared. If you are an adult that will be even harder. I went through my treatments as a childhood cancer which usually sees better results in getting cured and less casualties. The older you are usually the harder.

    The biggest pain for me were the in patient stays. You will have to stay in the hospital for 2-3 weeks at a time for MANY times. There different levels of cancer difficulty. Some are much easier then others. AML is not one of those easier ones. Even though I suffered a lot, I don't how AML patients can deal with what they are thrown and I've been through a **** lot.

    All I can say is get someone to stay with you at those in patient stays. My Mom took care of me and made the time and pain go through faster. Doing those stays alone really sucks.

    There is a chance you might get a bone marrow transplant, I've never done one but they are really intense but it could actually cut your treatment length in half.

    How old are you? Age plays a huge factor in cancer treatments.

    Hi
    Thanks for the info but u are actually scaring me.

    I am 32. And 3 phase of chemo is over . And now maintenance phase is gonna start. Atra and one more medicine. Dr. has told me to wear even the mask for 2 years. Didi it happen for u too....
    How is the life style during and after the treatment. When does it coem back to normal
  • kavi2906
    kavi2906 Member Posts: 12
    #5
    rathgirl said:

    Hi
    I had that exact type. feel free to send me a message on here and we can talk. :) everything will be ok.
    Praying for you,
    Krysten

    Hi
    Hi Krysten,

    I would like to know more about the life during and after treatment. The Dr. Has Rx Atra for 15 days every 3 months along with some other medicine which would go for 2 years.
    He has also told me to wear the mask :( continuously for 2 years . was it same for u too.
    How is the lifestyle during the treatment and post that. Can one lead a normal life.

    Cna u pls send me ur id . My id is kavita_passi@yahoomail.co.in
  • kavi2906
    kavi2906 Member Posts: 12
    #6
    rathgirl said:

    Hi
    I had that exact type. feel free to send me a message on here and we can talk. :) everything will be ok.
    Praying for you,
    Krysten

    Hi
    Hi Krysten,

    I would like to know more about the life during and after treatment. The Dr. Has Rx Atra for 15 days every 3 months along with some other medicine which would go for 2 years.
    He has also told me to wear the mask :( continuously for 2 years . was it same for u too.
    How is the lifestyle during the treatment and post that. Can one lead a normal life.

    Cna u pls send me ur id . My id is kavita_passi@yahoomail.co.in
  • rathgirl
    rathgirl Member Posts: 138 Member
    #7
    kavi2906 said:

    Hi
    Hi Krysten,

    I would like to know more about the life during and after treatment. The Dr. Has Rx Atra for 15 days every 3 months along with some other medicine which would go for 2 years.
    He has also told me to wear the mask :( continuously for 2 years . was it same for u too.
    How is the lifestyle during the treatment and post that. Can one lead a normal life.

    Cna u pls send me ur id . My id is kavita_passi@yahoomail.co.in

    hi
    i tried sending you an email but it failed. just send me a message on here with your email and i will try again.
    krysten

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