Worried about my treatment, or should I say lack of it.

Bubble Bum
Bubble Bum Member Posts: 2
in Anal Cancer #1
I had an operation to remove Hemorrhoids, in May 2009, shortly after I was told one of my Hemorrhoids was a Squamous Cell Carcinoma in Situ, which was high grade.

I was then referred to a professor at a university hospital (I am in the UK). He told me that it had been removed intact and it would be unlikely to return, he continued to monitor me with visual examinations. I was not given any further treatment.

After about 12 months I was given a biopsy and told my cells were not healthy, but not containing any cancer cells either, so he again contined to monitor me.

Following a recent visit and again visual examination, he has told me that I have discolouration next to the original cancer site, which is typical indication of the cells turning pre cancerous. He also added there is a further area of concern oposite the original site.

Quite honestly I was very shocked as I had been told I wouldnt have any further problems,
I really was not prepared for this news. He then said he would see me again in 6 months and organise another biopsy then, adding it can take years to develope into a cancer so there is no caurse for concern.

I visited my own General Praticioner with the news I had been given, as I am concerned no treatment is being done, he told me I should trust the Professor as he is one of the best in his field.

I would be very interested in all your thoughts on this matter, do you think this sounds right? I am very worried, why is he waiting for the biopsy? I dont understand.

Thanks for reading, Take Care Bubble Bum :(

Comments

  • mp327
    mp327 Member Posts: 4,440 Member
    #2
    Hi Bubble Bum
    I could be totally off base here, but it's my understanding that unless there are cells that are identified as cancerous, not pre-cancerous, that treatment such as chemo and radiation is not done. The cells that have been identified in your case are probably HSIL (high-grade squamous intraepithelial lesion) or AIN (anal intraepithelial neoplasia). If you look at the guidelines for treatment of anal cancer put out by the National Comprehensive Cancer Network (nccn.org), you will see that Tis (Carcinoma in situ) is listed under the definitions of TNN staging as Stage 0. However, in the treatment guidelines, there is no mention of any treatment for Tis. I would encourage you to register on the NCCN website and check this out for yourself. Also, you may find some very good information from reliable sources on the internet regarding the above-mentioned conditions, sometimes referred to as Bowen's disease. I wish you all the best and hope you'll keep us posted.
  • Bubble Bum
    Bubble Bum Member Posts: 2
    #3
    mp327 said:

    Hi Bubble Bum
    I could be totally off base here, but it's my understanding that unless there are cells that are identified as cancerous, not pre-cancerous, that treatment such as chemo and radiation is not done. The cells that have been identified in your case are probably HSIL (high-grade squamous intraepithelial lesion) or AIN (anal intraepithelial neoplasia). If you look at the guidelines for treatment of anal cancer put out by the National Comprehensive Cancer Network (nccn.org), you will see that Tis (Carcinoma in situ) is listed under the definitions of TNN staging as Stage 0. However, in the treatment guidelines, there is no mention of any treatment for Tis. I would encourage you to register on the NCCN website and check this out for yourself. Also, you may find some very good information from reliable sources on the internet regarding the above-mentioned conditions, sometimes referred to as Bowen's disease. I wish you all the best and hope you'll keep us posted.

    Thank you :)
    Hello mp327,

    Thank you very much for the information, I will indeed follow your suggestions. Thank you once again for taking the time to respond and I will let you know how I get on. Finally may I wish you good health and fortune always.

    Kind Regards
    Bubble Bum (Sharon, 51, UK, Female) :)
  • mp327
    mp327 Member Posts: 4,440 Member
    #4
    Bubble Bum said:

    Thank you :)
    Hello mp327,

    Thank you very much for the information, I will indeed follow your suggestions. Thank you once again for taking the time to respond and I will let you know how I get on. Finally may I wish you good health and fortune always.

    Kind Regards
    Bubble Bum (Sharon, 51, UK, Female) :)

    Thank you, Sharon!
    Please let us know what you find out. I wish you all the best!

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