He's winding down now

jojoshort
jojoshort Member Posts: 230 Member
in Esophageal Cancer #1
We are talking now about hospital beds and commodes and what our final wishes are. He now doesn't want to see anyone or even talk on the phone. From what I've read on the Hospice website some kind person posted here a few weeks ago, this is all to be expected, this social withdrawal.
I am hoping, with the help of Hospice, to keep him home and comfortable. Now he's developed thrush due to his low immune system (steroids daily for breathing). Call is in to the nurse and so we will treat symptoms as they come up.
It's just so hard to watch this beautiful man, who could do anything, fix anything, dream of such adventures and be so full of life, wind down and knowing that he's on his final weeks and days.
How lucky I have been to have had such a fantastic man in my life. How sad it is that he's leaving us so early.
Life really isn't fair. And yet it is what it is and so we deal with it as best we can.
Peace to all,
Jo-Ann

Comments

  • mruble
    mruble Member Posts: 174
    #2
    Prayers
    Jo-Ann --

    I'm so sorry to hear of your current struggles. My thoughts and prayers will be with you as you face each coming day.

    Mary
  • BMGky
    BMGky Member Posts: 621
    #3
    So sorry to hear of his
    So sorry to hear of his decline. Prayers for your strength and for his comfort. MG
  • fredswilma
    fredswilma Member Posts: 185
    #4
    Jo-Ann
    So sorry, I cannot
    Jo-Ann
    So sorry, I cannot find the right words just know that I am thinking of you and your family and praying for strength and comfort for you.
    Ann
  • mrsbotch
    mrsbotch Member Posts: 349
    #5
    Steve
    Jo-Ann

    I just wrote you a private e-mail and then read this. I am so very sorry . Vince was the same way. Strong, full of life, wanting to do so many things and was a wonderful man.

    You and Steve both have my heart.
    Damn this cancer to hell



    Barbara
  • nancyann3
    nancyann3 Member Posts: 173 Member
    #6
    So Sorry
    Very sorry for you both. I hope these days are peaceful for you both. We are walking down the same road with you. My Steve continues to decline. We are just enjoying each other and our kids and taking one day at a time.

    Take care
    Nancy
  • linda1120
    linda1120 Member Posts: 389
    #7
    I am so sorry
    Dear JoAnn,

    I am so sorry for your family. I wish there was more I could say or do. We are praying for you all.

    Linda
  • Daisylin
    Daisylin Member Posts: 365
    #8
    linda1120 said:

    I am so sorry
    Dear JoAnn,

    I am so sorry for your family. I wish there was more I could say or do. We are praying for you all.

    Linda

    JoAnn
    I hope you are able to enjoy some nice quiet family time in the next little while. So sorry for your heartache and pain..... wish there was something more we could do to help you right now.
    Chantal
  • Donna70
    Donna70 Member Posts: 852 Member
    #9
    Daisylin said:

    JoAnn
    I hope you are able to enjoy some nice quiet family time in the next little while. So sorry for your heartache and pain..... wish there was something more we could do to help you right now.
    Chantal

    prayers are with you
    Just so sorry to see this journey of yours and Steve's, many prayers are with you, hope you have some good peaceful days. take care,
    Donna70
  • Manf88
    Manf88 Member Posts: 20
    #10
    May you and your family find
    May you and your family find strength and peace to enjoy your time with your husband.

    -Laureen
  • jojoshort
    jojoshort Member Posts: 230 Member
    #11
    Manf88 said:

    May you and your family find
    May you and your family find strength and peace to enjoy your time with your husband.

    -Laureen

    Peace
    Indeed, we are finding peace with this decision. Tomorrow, we are scheduled to have the ambulance transport us to Hospice House. I have a blog which explains our decision.
    We find great comfort in this resource (hospice) which we have just begun to tap.
    Thank you for all your kind wishes. It's a great thing to be able to share with such supportive people.
    Peace to all,
    Jo-Ann
  • jojoshort
    jojoshort Member Posts: 230 Member
    #12
    jojoshort said:

    Peace
    Indeed, we are finding peace with this decision. Tomorrow, we are scheduled to have the ambulance transport us to Hospice House. I have a blog which explains our decision.
    We find great comfort in this resource (hospice) which we have just begun to tap.
    Thank you for all your kind wishes. It's a great thing to be able to share with such supportive people.
    Peace to all,
    Jo-Ann

    He's doing well in Hospice House
    He is doing well, relaxing and working on his computer and seems to be enjoying himself well enough! I think he is greatly relieved to be with folks who are caring for him 24/7. (Not that I wasn't, but he really felt he wanted a professional nursing staff on his side).
    His mind is sharp, his humor good, but I do see how tired and tough it is on his body. I told him anytime he wants to come home, we can make it happen.
    He seems pretty peaceful so far there, and so I guess he knew his body best and what he needed.
    While you never want to use it, Hospice is a great resource to have.
    I'll update periodically as time permits.
    He's fast becoming a staff favorite, and I know why! :)
    Jo-Ann
  • preacherchad
    preacherchad Member Posts: 60
    #13
    jojoshort said:

    He's doing well in Hospice House
    He is doing well, relaxing and working on his computer and seems to be enjoying himself well enough! I think he is greatly relieved to be with folks who are caring for him 24/7. (Not that I wasn't, but he really felt he wanted a professional nursing staff on his side).
    His mind is sharp, his humor good, but I do see how tired and tough it is on his body. I told him anytime he wants to come home, we can make it happen.
    He seems pretty peaceful so far there, and so I guess he knew his body best and what he needed.
    While you never want to use it, Hospice is a great resource to have.
    I'll update periodically as time permits.
    He's fast becoming a staff favorite, and I know why! :)
    Jo-Ann

    Jo-Ann;
    You are in our
    Jo-Ann;

    You are in our thoughts and prayers.

    chad
  • mruble
    mruble Member Posts: 174
    #14
    jojoshort said:

    He's doing well in Hospice House
    He is doing well, relaxing and working on his computer and seems to be enjoying himself well enough! I think he is greatly relieved to be with folks who are caring for him 24/7. (Not that I wasn't, but he really felt he wanted a professional nursing staff on his side).
    His mind is sharp, his humor good, but I do see how tired and tough it is on his body. I told him anytime he wants to come home, we can make it happen.
    He seems pretty peaceful so far there, and so I guess he knew his body best and what he needed.
    While you never want to use it, Hospice is a great resource to have.
    I'll update periodically as time permits.
    He's fast becoming a staff favorite, and I know why! :)
    Jo-Ann

    Good to hear
    Jo-Ann --

    It's good to hear that he's doing well, given the circumstances. All of you will continue to be in my thoughts and prayers.

    Mary
  • ShootingStar
    ShootingStar Member Posts: 15
    #15
    Prayers
    Jo-Ann, you and Steve are both in my thoughts and prayers.
  • cher76
    cher76 Member Posts: 292
    #16
    jojoshort said:

    He's doing well in Hospice House
    He is doing well, relaxing and working on his computer and seems to be enjoying himself well enough! I think he is greatly relieved to be with folks who are caring for him 24/7. (Not that I wasn't, but he really felt he wanted a professional nursing staff on his side).
    His mind is sharp, his humor good, but I do see how tired and tough it is on his body. I told him anytime he wants to come home, we can make it happen.
    He seems pretty peaceful so far there, and so I guess he knew his body best and what he needed.
    While you never want to use it, Hospice is a great resource to have.
    I'll update periodically as time permits.
    He's fast becoming a staff favorite, and I know why! :)
    Jo-Ann

    Jo-Ann, I am glad you all
    Jo-Ann, I am glad you all have found comfort there. Keeping you in our thoughts and prayers.
    Cheryl

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