tests on Monday
Comments
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Good luck Lou
I am so sorry about the cirrhosis. I spent the last 10 minutes or so trying to find something on the web about FOLFOX, or any other Chemo, listing this as a side effect with no success, though I did find that the ascites should have been an early warning sign to your onc.
The not so funny thing is that without treatment the cancer would likely have caused liver failure, and now, for you, this is what the treatment has done.
One thing; how does this make you a burden? Your family loves you, and from what I have gathered from previous posts, will continue to.
Like me, quality of life is as, or more, important as quantity is to you. Have you discussed working with a palliative care team with your doctors? This would be in conjunction with all the other treatments, and is not "giving up". From what I am reading, your symptoms can be manageable through diet and medication, and having a team that looks for the best quality of life mix in there can be a big help.
Blake0 -
Sorry
Sorry you are dealing with all of this. You tend to trust your doctors only because you aren't a doctor yourself and they are the ones that are supposed to be the experts. It's sad that your doctor didn't take the swelling of your stomach seriously enough. He probably thought the scan you had in March was the guide he was working on since you said it was normal. But with your stomach swelling so fast, you would have thought your doctor would have run more tests. Agree with Blake that you aren't a burden. Your family loves you and you didn't choose this path. I'm sure your scope will come back normal too. Hope that it goes well for you and keep us informed. You are always in my thoughts and prayers.
Kim0 -
G'day Lou
I am so sorry that you are in this position mate. It reminds me of an old cartoon I once saw. Two scientists were watching a rat go thru a maze. At the exit of the maze was a rat trap. One of the scientists says to the other'Who said anything about being fair'. After the lenghth of time you were ca free I could hardly believe that it had come back and now this. It is about time something went your way. I hope you can beat the odds.The liver is a remarkable organ perhaps there may just be enough good liver left to get some regrowth. The medical profession has not done you many favours so far perhaps you should ignore their predictions this time and just live life as if you have a future. All the best mate I will keep you in my thoughts Ron.0 -
You are in my prayers Lou!ron50 said:G'day Lou
I am so sorry that you are in this position mate. It reminds me of an old cartoon I once saw. Two scientists were watching a rat go thru a maze. At the exit of the maze was a rat trap. One of the scientists says to the other'Who said anything about being fair'. After the lenghth of time you were ca free I could hardly believe that it had come back and now this. It is about time something went your way. I hope you can beat the odds.The liver is a remarkable organ perhaps there may just be enough good liver left to get some regrowth. The medical profession has not done you many favours so far perhaps you should ignore their predictions this time and just live life as if you have a future. All the best mate I will keep you in my thoughts Ron.
Feel so sorry for your troubles !, cheer up my friend!0 -
don't trust doctors ?
dear lou,
but if we don't, who do we trust ? ourselves, god, this forum.
we been on the same folfox express, i have annoyed my onc every fortnight with queries about alternative treatments from juicing, to tea, to supplements, to diet.
everyones who been here long enough knows my story and yours. we are all so different,
just too many maybe's.
so just goodluck on monday. were you interested in reading the healthy liver and bowel book by sandra cabot.
hugs,
pete0 -
Sending Prayers
Lou, I am so sorry to hear of this, how horrible and I am sure it makes you very angry, rightfully so in my opinion. But please dont think you are a burden to your family, I am sure they love you and want you with them, no matter what. There are many stages of emotions that we all go through, and you will go through them too, just a suggestion, you might want to see a counselor to have someone to talk to about these emotions, I found that when I tried to talk to my partner about my emotions especially my anger, she would kind of take the blame, and that is not what I wanted, I just needed to talk about my feelings, so a third party is sometimes a good way to go. Please try to feel better, I will keep you in my prayers..
God Bless
HUGS
Beth0
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